Up Date Evelyn stills desease

January 26, 2011

Hi everyone just a little update of myself well I've been reading the post and

I think it is that the doctor dont whant to start you in mtx well I think

all the doctors are difrent because my doctor that was the first medicine he

wanted to put me in.But like I said before sad but true and not saying it in a

bad way is because is from the doctors that we should get all the

imformation.But that is why this group exist.I've learn so much in here I was

so ingnorant of my desease.I already have 3 precious kids but I want more and I

ask my doctor about mtx and he told me that if I took that medication it needs

at least 6 months for the body to take it out of the organism.I've read all the

medication that everybody is taking but not the one that Im taking :IMURAN:And

10 mg of prednisone and I have to try to lower the dose Im in 7 now.But Im

afraid that it is not working.

Re: Re: Are there any doctors that are Experts in AOSD

I called my PCP today and his nurse called me back she said that I shouldn't go

on MTX as should only be the last resort. She said she was gonna talk to the

doctor and call me back it's past 5pm already so I guess we will see. I don't

want to go on MTX if it is so bad for me. However I think I deserve the chance

to try different medications I know there is more than just plaquenil or MTX

available. I've been on Plaquenil for 3 months they say it can take up to

6months well that is great in all but what happens if it starts attacking my

liver in the mean time again. I already have the early stages of a different

auto-immune liver disease I don't feel like being a guinea pig when they can't

even prove to me what I really have.

The nurse for my PCP just called back and instead of giving me a referral told

me to see my rheumy again. Well my rheumy can't refer me anywhere....gurr just

agravated.

<3 aka Jalee ..<>..One in a Million <3

<3 Female 25yrs old ..<>.. Mandan, ND <3

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