Re: kineret dosen't seem to be working

[Guest guest]

 fightingbackat40 

 I felt this same way when trying Remacaiad and in the end it never did change

much even when taken off of it . found out it and I did not get a long also

being it tried to kill me . then down the line they started to add other things

to my Stills DX like firbro and now my ALC (Anti lupus conclugulant). My

rumatolagest now days has a hard time some times figuring out is it my stills

acting up or one of the other things. we will not use Predasion  if at al

possible because of what happened when I was using it ( a mental change of a big

kind and a bad kind) so we have stayed with some old prov-en and yet cheap

costing drugs. I am lucky as they also seam to work for me not fast by any means

but slow build ups . even when the doses were increased it took month for me to

really start feeling them such as my MTX doses . I do know going from pills to

shots did help this a lot. I do also know that staying in full contact with my

doctors has been a very good thing but also being fully honest with them is a

big key also meaning do not make light of how you feel at all as between the

test and your words that is about all they have to go one so if you make it

sound like its not really to bad that plays into it just as if your saying its

so bad and nothing other supports it . now both could be true and if they are

that's fine but some times we as people tend to make it sound as if were doing

better then we are or worse then we really are and that makes the docs job a bit

harder as they have to try and sort it out to whats real then. This is were them

daily Journals come in real handy as they prove your point both ways if you have

been writing down your temps pain levels and also weather that day and any other

thing going on that may effect you one way or the other. So if you been using

them great if not well get to it and start as they will only help you in the

long run.

Hugs ya all

The  Redneck  

Marty G     

 

  " I am having an out of money experience. "

" No man's life, liberty, or property is safe while the legislature is in

session. "

...............................Mark Twain (1866)

To learn more about Stills Disease or to make a tax deductible donation:

 http://www.stillsdisease.org/stills_info

[Guest guest]

jccaley...

It is possible that Kineret isn't for you. We were lucky - it was for my

daughter. There are other meds out there....I am surprised that you haven't had

labs done - usually at least once/mo. If you definitely have Stills, then the

symptoms that you have sound like Stills...you just may need a second opinion.

Weight gain is common with Prednisone and lasts for quite a while after....Do

keep a journal for all symptoms and maybe photos and any links to your symptoms.

Take good care........

B. West

[Guest guest]

Hi Zach,

i'm waiting for kineret aprovement. I dont know if it works with me or not.

i sent you an invitation to facebook

i'm from portugal

Judite Ventura

>

>

>

> jccaley...

>

> It is possible that Kineret isn't for you. We were lucky - it was for my

> daughter. There are other meds out there....I am surprised that you haven't

> had labs done - usually at least once/mo. If you definitely have Stills,

> then the symptoms that you have sound like Stills...you just may need a

> second opinion. Weight gain is common with Prednisone and lasts for quite a

> while after....Do keep a journal for all symptoms and maybe photos and any

> links to your symptoms. Take good care........

>

> B. West

>

>

>