21 yr old daughter flare up after 1 yr & now Hep.A ??

[Guest guest]

Frustrated. There just has to be a way to CURE this! Traditional/Western

medicine is only putting a " band-aid " on the symptoms but it will never cure

what my daughter was (process-of-elimination) diagnosed with adult-onset Stills

Disease (RA). Methotrexate was awful (rapid heartbeat). Lisinopril seems to work

the best but was not enough when she flared up about 3 weeks ago. Mayo doctor(s)

said that he wouldn't really do anything more than what Marshfield doctors are

doing.. They put her back on Prednisone but it wasn't enough either to keep her

fever and swollen joints down and the added rash all over her body, so they

infused her with 120 mg. That helped get her through finals and now she is

dropped back down to 60 mg a day of Prednisone but also added a second

Lisinopril injection every other day. Her eyes turned yellow after a week of

being on the higher dose infusions of Prednisone and sure enough her liver is

screwed up! Spleen swollen and billidum? numbers keep going up. One test says

she now has Hepatitis A and another says not.. WTH?! Does anyone have any

experience or is going in another direction to CURE Stills? I don't know where

to start but I am extremely worried about her staying on these meds that are

just making it worse!