Re: Just Introducing Myself...

[Guest guest]

Welcome!!!

Have you been to a neuro doctor?

hatikvah36 wrote:

>Hi, all. I just joined this group and wanted to say a quick hello to everyone

and let you all know that I am so glad I found you. I have been suffering with

symptoms for many years and have just recently been diagnosed, so although I am

not new to dealing with the condition, I am still at the beginning of the

learning curve when it comes to finding out all the facts. It is nice to know

there is a place to go to talk to others who know what it is like and have been

down this road before me.

>I also want to let everyone know that having been symptomatic for 17 years, I

have dealt with a lot of the ups and downs and I am a good listener and am happy

to hear from anyone who wants to talk or could use a friend who understands how

hard it can be.

>Thanks a bunch and nice to meet you all!

>Cheryl

>

[Guest guest]

Cheryl, welcome to a great group, with great moderators and lots of good

info.Visiting the web site will give you a lot of information.

Best wishes as you move forward on your CHiari journey.

Peggy

________________________________

To:

Sent: Friday, March 23, 2012 12:28 AM

Subject: Just Introducing Myself...

 

Hi, all. I just joined this group and wanted to say a quick hello to everyone

and let you all know that I am so glad I found you. I have been suffering with

symptoms for many years and have just recently been diagnosed, so although I am

not new to dealing with the condition, I am still at the beginning of the

learning curve when it comes to finding out all the facts. It is nice to know

there is a place to go to talk to others who know what it is like and have been

down this road before me.

I also want to let everyone know that having been symptomatic for 17 years, I

have dealt with a lot of the ups and downs and I am a good listener and am happy

to hear from anyone who wants to talk or could use a friend who understands how

hard it can be.

Thanks a bunch and nice to meet you all!

Cheryl

[Guest guest]

Thanks for the welcome :-)

 

Yes, I have had an initial visit with a neurosurgeon who has a lot of experience

with Chiari.  He is having me go for some more tests and try a few final things

to make sure surgery is necessary since I am rather borderline as far as

tonsillar herniation... about 5 mm.  I go Monday to get a CT-guided occipital

nerve root block.  I have had a couple before but they were done differently and

he says these work better.  He wants to make sure my headaches aren't coming

from that nerve.  I also have to see a urologist about bladder issues because he

says I have several signs of tethered cord as well.  So after all that I will go

back and see where I stand as far as surgery. 

Cheryl

[Guest guest]

Hi Cheryl,

Welcome to the group!  With the website and the support from the people that are

here both that still suffer and the ones that hang around to help others, you

will find a wealth of information. 

Wyoming

Decompressed, Detethered, High Spinal Pressure, Osteoporosis,

EDS and still have cerebral tonsils wrapped around brainstem making it

" sensitive "