Craniocervical Fusion Surgery

[Guest guest]

Hey All,

I had met with Dr. Bolognese and the results were anything but favorable. The

scan Clearly shows that I have a retroflexed ondontoid. They issued me a CTO

collar and a sdtandard collar for trips. I have severe numbness in my legs,

nausea, and neck pain and headaches.

I have been decompressed, and shunted. I just feel like I have been defeated by

this damn disease.

Dr. B. said that at .8 they recco you have the cervical fusion surgery. Of

course, I have .837! It is clear as day. My ondontoid is curved and

compressiong my brain stem. The surgery is serious and I just dont think that I

am strong enough to deal with another surgery.

Can anyone tell me, if they know of anyone that has had this, that I can talk

to? I received emails from family members that said their loved one had

it....but, I need to talk to someone that has been through it. They say it is

very painful..... A long recovery and I will loose 40 % rotation. Uggghhhh!

Any advice would be greatly appreciated.

Thank you