Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 Maggie, I am glad your Mother's Parkinson symptoms have improved. Does she take medication for them? My mother has had Parkinson's for over 35 years and its very bad. She doesn't move well and now she sometimes she shakes so much she will slip out of her wheelchair. She takes a lot of Siniment which is not too good. Hugs Vallerie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 Vallerie Thank you so much for your e mail. Funny thing that happened. Took my mother to her Neurologist and he said to me flat out. Parkinson medicine Sinimet is not a cure. It would not even bother me if you took her totally off, these are strong chemicals...At first i thought, i can't take my mother off her medicine, but then it made me think. (she was taking twice a day morning and evening) I could maybe try to put her on once a day since doctor was so negative, so i put her on once a day. After she was on once a day for 2 weeks and i saw she had not worsen, i tried to see if cutting back more would help. She is now on 1/2 pill once a day and she is so much better, and her shaking is almost gone. Don t ask me how this is possible, but at times if i see her shaking her leg, i will say. MOM do you think you could stop shaking your leg and she does stop. Meaning to me that she should have never been on that medicine twice a day. Sinimet is one of those very strong chemicals that really does more damaage than help, much to our loved ones. Make sure if you take your mom to a Neurologist, get his pinion on dosage ( If she should be on that strong of a dose). Stay in touch, hope we are helping each other. I appreciate your e mail very much Maggie --- Vallerie Edmonds wrote: > Maggie, > I am glad your Mother's Parkinson symptoms have > improved. Does she take medication for them? My > mother has had Parkinson's for over 35 years and its > very bad. She doesn't move well and now she > sometimes she shakes so much she will slip out of > her wheelchair. She takes a lot of Siniment which > is not too good. > Hugs > Vallerie > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 Hi Maggie, We seem to find that the Sinemet may help our los initially, but as the dementia progresses it tends to become a drug we need to wean them from. My mother crashed from Sinemet, walking with a walker, feeding herself regular food, communicating with some difficulty to needing to be hospitalized, unable to walk, talk, difficulty swallowing, hallucinating. She never did walk again needed nh care from hospital, but weaning her from the Sinemet helped her symptoms until the dementia made things worse. It truly is a roller coaster. , Oakville Ont. Mother, age 92, died Aug. 12/06 after 13 year decline from PDD > > > Maggie, > > I am glad your Mother's Parkinson symptoms have > > improved. Does she take medication for them? My > > mother has had Parkinson's for over 35 years and its > > very bad. She doesn't move well and now she > > sometimes she shakes so much she will slip out of > > her wheelchair. She takes a lot of Siniment which > > is not too good. > > Hugs > > Vallerie > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 , Thank you so much for your e mail. So glad you wrote me, we both agree that dealing with Sinemet is like a double bladed knife. It can do tons of damage instead of helping most of the time. I have seen, severe decline on so many friends and relatives that are put on this drug. Ofcourse sometimes if shaking severe they have to go on it. My mother has improved in this area, i can t explain why but glad she has. The less drugs our loved ones are on the better. Dementia does so much damage already, we don t need extra drugs that are causing damage. Stay in touch. Maggie --- stimtimminss wrote: > Hi Maggie, > We seem to find that the Sinemet may help our los > initially, but as the dementia > progresses it tends to become a drug we need to wean > them from. My mother crashed > from Sinemet, walking with a walker, feeding herself > regular food, communicating with > some difficulty to needing to be hospitalized, > unable to walk, talk, difficulty swallowing, > hallucinating. She never did walk again needed nh > care from hospital, but weaning her > from the Sinemet helped her symptoms until the > dementia made things worse. It truly is a > roller coaster. > > , Oakville Ont. > > Mother, age 92, died Aug. 12/06 after 13 year > decline from PDD > > > > > > > Maggie, > > > I am glad your Mother's Parkinson symptoms have > > > improved. Does she take medication for them? > My > > > mother has had Parkinson's for over 35 years and > its > > > very bad. She doesn't move well and now she > > > sometimes she shakes so much she will slip out > of > > > her wheelchair. She takes a lot of Siniment > which > > > is not too good. > > > Hugs > > > Vallerie > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 Maggie, My mom was Dx with Parkinson's Disease when she was 40 years old. She started taking a very small dose of Sinimet back in the mid 1970s and stayed on a very small dose for many years. For her, the Sinimet was a good thing, kept her active and as a kid I never really thought much about the Parkinson's Disease since it didn't really slow her down. Sinimet does a good job of helping the Parkinson's symptoms but if you get too high a dose it can actually make the symptoms worse. And Sinimet eventually loses its effectiveness as the disease progresses. In my moms case, she has had Parkinson's so long that she takes medicine every three hours and sometimes she gets very little relief. And of course the side effects can be very rough. My mother didn't have trouble with it until the last few years now that she is so much older. I guess too, she has had so much destruction of brain cells as the disease has progressed. We just recently cut her dose back about 25%. She is having more dyskinisies on the lower dose but the higher dose with driving her crazy. I am glad your mother is doing as well on the lower dose. The lower the dose the better, especially in our older LOs. Hugs Vallerie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 Hi Vallerie, It is so rare to hear of someone that young with Parkinson. Pretty shocking. But can happen. I sure hope a new medication comes up to take place of sinimet in case my mother and others need to get back on it. It seems that for diabetes there are so many new medicines but not for Parkinson. Thank you for all your in-put. Hope and pray your mom gets better, and like i always say GOD send me a miracle. Take care Maggie --- Vallerie Edmonds wrote: > Maggie, > My mom was Dx with Parkinson's Disease when she was > 40 years old. She started taking a very small dose > of Sinimet back in the mid 1970s and stayed on a > very small dose for many years. For her, the > Sinimet was a good thing, kept her active and as a > kid I never really thought much about the > Parkinson's Disease since it didn't really slow her > down. > > Sinimet does a good job of helping the Parkinson's > symptoms but if you get too high a dose it can > actually make the symptoms worse. And Sinimet > eventually loses its effectiveness as the disease > progresses. In my moms case, she has had > Parkinson's so long that she takes medicine every > three hours and sometimes she gets very little > relief. And of course the side effects can be very > rough. My mother didn't have trouble with it until > the last few years now that she is so much older. I > guess too, she has had so much destruction of brain > cells as the disease has progressed. We just > recently cut her dose back about 25%. She is having > more dyskinisies on the lower dose but the higher > dose with driving her crazy. > > I am glad your mother is doing as well on the lower > dose. The lower the dose the better, especially in > our older LOs. > Hugs > Vallerie > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 Maggie, I always thought Parkinson's Disease was mostly a disease of older adults and I commented about that once to one of my moms Neurologist. He told me that he had almost as many younger patients as he did older patients. That surprised me. I have met several people over the last few years that were dx in their early 40s. I think those who have onset earlier usually do better over the years than those who get it later in life. I think J Fox was dx at age 29. Yes, it would truly be wonderful if there were more options in medication and therapies for those with Parkinson's Disease. I believe that Parkinson's and the many forms of dementia are all related and any breakthough in either would help the other. I pray that one day there can be a cure for both but I don't think it will come in time to help my mother. But if someone in the future can be helped that will be wonderful. Hugs Vallerie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 Vallerie It trully would be good if had better options. The part i do not believe is the stem cells study. I lived in Florida and i had knowledge of experiments doctors have been doing for over 26 years. Nothing has to this date as far as i know, cured anything. I don t understand the people that are holding their breaths for such a study, but i don t trust it specially when people want government to pay for it. Let's be realistic, if there was hope on stem cell some big pharmaceutical would have jumped on that study they already spend billions on other studies. maggie --- Vallerie Edmonds wrote: > Maggie, > I always thought Parkinson's Disease was mostly a > disease of older adults and I commented about that > once to one of my moms Neurologist. He told me that > he had almost as many younger patients as he did > older patients. That surprised me. I have met > several people over the last few years that were dx > in their early 40s. I think those who have onset > earlier usually do better over the years than those > who get it later in life. I think J Fox was > dx at age 29. > > Yes, it would truly be wonderful if there were more > options in medication and therapies for those with > Parkinson's Disease. I believe that Parkinson's and > the many forms of dementia are all related and any > breakthough in either would help the other. I pray > that one day there can be a cure for both but I > don't think it will come in time to help my mother. > But if someone in the future can be helped that will > be wonderful. > Hugs > Vallerie > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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