Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Annette, Please read the book "Up The Creek With A Paddle" by Bradley. It's a story of her and her husband who has PPMS and LDN. My advice is to give it more than a month. I'd give it six or months before making a final decision. LDN only works in 75% of the people who use it. Good Luck Edannette464@... wrote: Vicki, I live in Southern California. 30 miles east of L.A.. I have only been on LDN for 5 days, but since I have a progressive form of MS, I should know in the first month or so if it's going to work for me. I sure hope it does. If it does, I know I would want to get involved in something like that. If not, I'll be busy trying to find something to help me stabilize. So we should keep in touch. I have not prob. traveling up north. Love it up there. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Ed, Thanks!! I told my husband yesterday that I wanted to order that book. I am anxious to get it. Thanks! 75% sounds like pretty good odds. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 To Annette: I have been on LDN for 7 months and it has definitely helped me. I recently took a plane trip that would have exhausted me prior to the LDN. I was able to navigate while on my trip WITHOUT the use of a Companion Chair with the exception of the time spent in the airports. If you asked me 4 months ago if LDN was helping me, I probably would have said: “Probably a little.” With me it has been a very subtle change but after 7 months there is no question in my mind. As Ed has suggested, give the LDN more time. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Hi Bob; I'm a 64 year old male, doctors tell me I'm in excellant health if I didn't have MS, I was always a very active person prior to MS. My question is, I started LDN Aug 25, 2005, so I have a full 6 months on LDN, I still use my scooter but have made considerable improvement, I do now walk with a walker, is this about how you progressed? at least my bladder control is now normal. Jim RE: [low dose naltrexone] Annette 's question To Annette: I have been on LDN for 7 months and it has definitely helped me. I recently took a plane trip that would have exhausted me prior to the LDN. I was able to navigate while on my trip WITHOUT the use of a Companion Chair with the exception of the time spent in the airports. If you asked me 4 months ago if LDN was helping me, I probably would have said: “Probably a little.” With me it has been a very subtle change but after 7 months there is no question in my mind. As Ed has suggested, give the LDN more time. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Bob, Thanks so much for your email!! It's nice to hear other people's stories. Those airports are killers. I am so happy to hear of your success. I have only been on LDN since last Friday, so 7 days, and before I started LDN, I was on 2 - 10mg pills a day of baclofen and it was getting to the point where it wouldn't even touch the stiffness, etc. Now after just 7 days, I've been taking 1 for the first 5 days and the last two days I haven't had to take the afternoon one either. It's so hard to believe I think that, well, maybe I am just having good days, but it's got to be the LDN!! The subtle changes are hard to notice, you are right, but they are there. Sincerely, Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Annette, I actually went to see 2 high school friends, who were on vacation in the Bahamas, and stayed at the Hotel Riu. I also went to the casino at the Atlantis Hotel which was next door to the Riu. I was really getting around WITHOUT the wheel chair: I did not use it until I got back to the airport. I don’t know if you have ever been to the Riu (I understand that it was the Sheraton in the past) but there is a very steep ramp going down to the beach and I was able to navigate the ramp up and down AND walk in the sand to get to the chaise lounge on the beach (under an umbrella of course) WITH MY SHOES ON. That would not have happened a year ago. They had not seen me in 3 years and could not get over my improvement so stay with it and I am confident you will see improvement over time. Do not become impatient. Bob Lake From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of annette464@... Sent: Friday, March 03, 2006 6:38 PM low dose naltrexone Subject: Re: [low dose naltrexone] Annette 's question Bob, Thanks so much for your email!! It's nice to hear other people's stories. Those airports are killers. I am so happy to hear of your success. I have only been on LDN since last Friday, so 7 days, and before I started LDN, I was on 2 - 10mg pills a day of baclofen and it was getting to the point where it wouldn't even touch the stiffness, etc. Now after just 7 days, I've been taking 1 for the first 5 days and the last two days I haven't had to take the afternoon one either. It's so hard to believe I think that, well, maybe I am just having good days, but it's got to be the LDN!! The subtle changes are hard to notice, you are right, but they are there. Sincerely, Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Hi Annette, Also try soap putting soap in your bed. If that does not work then try putting it directly on your skin somehow while you sleep. My husband moves too much when he sleeps, so I put a sliver of soap on his shoulder that was bothering him and adhered it with an ace bandage and the pain was gone the next morning. Wow. Anyways it is also supposed to work very well for stiffness and spasms too. Aletha Re: [low dose naltrexone] Annette 's question Bob, Thanks so much for your email!! It's nice to hear other people's stories. Those airports are killers. I am so happy to hear of your success. I have only been on LDN since last Friday, so 7 days, and before I started LDN, I was on 2 - 10mg pills a day of baclofen and it was getting to the point where it wouldn't even touch the stiffness, etc. Now after just 7 days, I've been taking 1 for the first 5 days and the last two days I haven't had to take the afternoon one either. It's so hard to believe I think that, well, maybe I am just having good days, but it's got to be the LDN!! The subtle changes are hard to notice, you are right, but they are there. Sincerely, Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Aletha, This is a little late, but thanks for the suggestions about the soap!! Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Bob, WOW!! You HAVE come such a long way. I bet that's been one of your best vacations in a while. I just got my vacation time verified at work, and after your email, I can't wait to plan mine. Where? Who knows, but I won't be depressed about my MS because I think it's helping. Every day when my family asks me if it's helping, and it's only been 10 days, now I tell them about your story of it being subtle. We have to be patient!! You are right!! Sincerely, Annette Quote Link to comment Share on other sites More sharing options...
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