People understanding our disease

[Guest guest]

Thank you Fanscesca,

That IS very good advise and something I have done with my spouse over the years

and even one of my girlfriends twice. It does help and our free brochures do as

well it's just that this past week was particularily hard because so many have

seen me so well for so many years and the joint damage is so internal and not

grosly visable but very bad that others can't really know the full extent of

your pain and limitations. That's why this family is so wonderful. I appreciate

your and everyones support and understanding. Today I was able to get my pain

medication for the first time in a week and that took a while to get my pain

under control but finally it has worked. Going without it was very hard and not

recommended, lol, but a mix up with the lab work. At least my new pain

management doctor said because of it and my case, they would never use that lab

again. I am finding they are wonderful and seeminly bad cicumstances sometimes

can turn out to be blessings in disguise. By the way, coming off the mountain

means that I live in a communtiy that is on a mountain a mile high and off the

" hill " as we call it is a hairpin, windy mountain drive for 45 minutes to get to

any cities below where all other doctor appointments and shopping that is

cheaper is.

Have a wonderful day all,

Now is the only true moment we have in time.

> From: francescafair@...

> Subject: RE: Flaring with upset

I don't know if this helps at all and you may well do this anyway, but with

everyone's permission, I started involving my close friends and family in my

actual appointments. It means they get to hear everything from the horses mouth.

> Love

>

> Francesca