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Has anyone been diagnosed with a PFO? If so, do you have a connective tissue

disorder, and did the PFO cause problems, like blood clots?

Did you have surgery to close it?

Thanks,

Pam

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I have a PFO, I don't have any connective tissue problems.  the PFO has never

caused any problems for me but they won't do anything about closing it until I

have a stroke or clot pass.  They normally don't cause any problems and more

people have them than not without ever knowing it.  Mine was found while having

a bubble echo done checking for POTS.

________________________________

To:

Sent: Tuesday, March 20, 2012 9:54 AM

Subject: PFO

 

Has anyone been diagnosed with a PFO? If so, do you have a connective tissue

disorder, and did the PFO cause problems, like blood clots?

Did you have surgery to close it?

Thanks,

Pam

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Guest guest

HI Pam,

My daughter has one, and the dr who diagnosed it was a pedatritac dr who said he

told me, but i don't remember him telling me. So i looked up her records one day

around last yr and found it written in the report when she was hospitalized for

an eating disorder at stanford. I was looking at her reports because she has

been feeling like passing out and her blood pressure has been low. Her adult

cardilogist blew her off and said it was a tiny one and pointed to the crack in

the door to compare it!

So i called her pedatritac cardilogist who told me he didnt measure it so i

asked why and he said because it opens and closes. In his own report he stated

that i could be discused to close it in the future. I mailed him his own report

and i have no response.

 Hers also has left to right flow and right to left flow, which i read about it

and one of those isnt good to have. When i told the dr he should have measured

it the conversation became a little weird and he abrubtley hung up saying he

didnt have to answer any more questions.

 

I am very disapointed in the medical care i find, and think it is careless

political  facility control causeing issues like this.

Joyce

Subject: PFO

To:

Date: Tuesday, March 20, 2012, 6:54 AM

 

Has anyone been diagnosed with a PFO? If so, do you have a connective tissue

disorder, and did the PFO cause problems, like blood clots?

Did you have surgery to close it?

Thanks,

Pam

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