Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 I have had one of the Chiari doctors on the Chiari specialist list refuse to see my daughter. I sent all of her records to him and his nurse called me back and told me that he would not see my daughter and would not give me an explanation why, so just wanted to let you know that it does happen even with the Chiari specialist doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2012 Report Share Posted March 16, 2012 , I am sorry this has happened. Others I know have had the same expereince, when the doctor doesn't feel he/she can help. The real problem is the not giving an explanation. I hope you find someone to help your daughter. Peggy ________________________________ To: Sent: Friday, March 16, 2012 9:39 AM Subject: Re: chiari doctor refused to see my daughter  I have had one of the Chiari doctors on the Chiari specialist  list refuse to see my daughter. I sent all of her records to him and his nurse called me back and told me that he would not see my daughter and would not give me an explanation why, so just wanted to let you know that it does happen even with the Chiari specialist doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 I'm also sorry that this hapenned to you...I do know of a Chiari specialist that will not see children that have been previously operated on by other neurosurgeons... Was this the case with your daughter? To: From: pegcurtacci@... Date: Fri, 16 Mar 2012 07:56:58 -0700 Subject: Re: chiari doctor refused to see my daughter , I am sorry this has happened. Others I know have had the same expereince, when the doctor doesn't feel he/she can help. The real problem is the not giving an explanation. I hope you find someone to help your daughter. Peggy ________________________________ To: Sent: Friday, March 16, 2012 9:39 AM Subject: Re: chiari doctor refused to see my daughter I have had one of the Chiari doctors on the Chiari specialist list refuse to see my daughter. I sent all of her records to him and his nurse called me back and told me that he would not see my daughter and would not give me an explanation why, so just wanted to let you know that it does happen even with the Chiari specialist doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 Thank you, I think too it is because they dont think they can help, but they should let you know why they wont see you, with this condition as everybody knows, they go through so much as it is and you feel like your getting the cold shoulder and it is really sad to be so sick and being in this postion.   I believe that our medical care system has gotten so bad and the cost has liked tripled or more in the past years, its like most of them dont care, or they want to blame the condition on the patient. I can go on and on about the nightmares stories that  My daughter and I have been through with the medical community, and I know we arent the only ones that these things have happen to cause I have talk to other people that have went through the same things, its like the normal now and it is really scary to see our medical community go in this direction.  Sadly my  daughter has  gotten where she would rather die than go  to the emergency room and I bet she isnt the only sick person that feels that way.    Subject: Re: chiari doctor refused to see my daughter To: " " < > Date: Friday, March 16, 2012, 8:56 AM  , I am sorry this has happened. Others I know have had the same expereince, when the doctor doesn't feel he/she can help. The real problem is the not giving an explanation. I hope you find someone to help your daughter. Peggy ________________________________ To: Sent: Friday, March 16, 2012 9:39 AM Subject: Re: chiari doctor refused to see my daughter  I have had one of the Chiari doctors on the Chiari specialist  list refuse to see my daughter. I sent all of her records to him and his nurse called me back and told me that he would not see my daughter and would not give me an explanation why, so just wanted to let you know that it does happen even with the Chiari specialist doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2012 Report Share Posted March 17, 2012 I know that some of them are not allowed by the hospital to do children. Don't know how old your daughter is.... I know my surgeon is not allowed to do children because of the hospital regulations. Cortney Quote Link to comment Share on other sites More sharing options...
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