Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Leon, I am new to the group sorry to hear about your denial letter SSDI can be tricky situation. I was just recently diagnosed with AOSD a few weeks ago but technically I have been termed disabled since about the age of 8. I was lucky and one of the Dr.s at a Chicago's Children's Hospital made the suggestion to my mom that my issues were severe enough to be termed disabled. Because I was a child and my mom was working and it had nothing to do with money. They didn't make my family jump through to many hoops. However I am on SSI as I have no working experience.. Last March, Apparently they had decided that because I was doing well in school that my disability had disappeared. I had to fight tooth and nail to keep it. I was already working with a State Vocational Rehab place. I should have been safe but somehow the review started before my first official plan was put in place. They somehow misplaced the letter that told me my income was going to be ceased and I was given about 2 weeks notice. I only learned about this because my Medicaid sent me a letter of denial as well. All I can say is do not give up. I know of very few adults who can get on SSDI on the first try. You just have to keep pushing for it. Get all the documents and paperwork yourself bring it into the Social Security Office and have them sign a paper saying they received. Once they realize you know your rights and way around it starts to get easier. There are also groups that work non for profit who will help you get all the right documentation and they are more easily able to talk with Social Security. I'm sorry you were denied but don't let the denial tell you how disabled you really are! It's there job to keep as many people off of SSDI as possible. Keep trekking and Good Luck, , ________________________________ To: Stillsdisease Sent: Sun, October 31, 2010 3:39:32 PM Subject: SSDI - Denied I got my SSDI denial letter saturday. In the denial letter they only list my local doctors. I gave the information for my doctors at s Hopkins to my representative from ALLSUP. Shouldn't they make sure all my information gets to SSDI? I sent them an email teklling them about it and to start the appeal or reconsideration process. I have long term disability, its not the money right now. Its about less worry. I am going through the hoops at Hpkins trying to get my shortness of breath and fatigue figured out. I am sure that will also help with the SSDI.Makes me second guess am I really that bad. But all I need is to try and do something as simple as changing the filter in the floor for the heat system, and I am wore out for hours. Thanks for listening everyone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Leon Do not read too much in to the letter if this is the first denial you have gotten as it is sadly very normal to get it the first time around and even the second. Mine was one of the longer ones and it was almost a three year fight including being turned down two times and then a hearing and after that it was still months later before I head the out come. To give you an idea I filed sept 2000 my hearing was in May 2002 I did not hear again from them tell Nov. 2002 and it was my lawyer who told me first that I finally was given SSDI. the good part was the back pay check was big but sadly it was all gone but a very small part to pay back every thing I owed from fighting my divorce at the same time some criminal actions by the now ex wife when she set me up to get every thing from our marriage including the kids and also all the money I barrowed to live on and travel to Idaho from Calif on for all the court dates for all of it together. all in all my back pay was over $23,000.00 and in the end I had less then $3,000 and that was gone fast also for truck repairs and trying to find a place to live and all the start up cost from it and then getting things for it as I have said before all I had at the time was the truck some clothing and tell then no money so I had to start from scratch at 44 years old. Funny part is the old Jerry reed song she got the gold mine I got the shaft well that was me. She got the house and every thing in it and all we had saved gotten and so on in our 26 years together. o well water under the bridge because to be honest I am a lot happier now the only things I still want is time with my kids and my family air looms. So as I said before I went off do not read too much into it Best to ya The Redneck Marty G. Be careful about reading health books. You may die of a misprint. Mark Twain I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 I was told by a worker at Social Security that they request all the records, but if the docs don't send it in in the time frame allotted, they can't do anything about it. I kept all our records, took them in to the SS office and they mailed them for me to the determination office. Unfortunately, sometimes, we have to be our own advocate. Good luck on your appeal. Also, my doc said that some doctors just list it as RA, which sometimes is too general. Again, good luck, don't give up. I was fortunate to have mine approved right off. But medical records are key! Gail (KY) Subject: SSDI - Denied To: Stillsdisease Date: Sunday, October 31, 2010, 4:39 PM I got my SSDI denial letter saturday. In the denial letter they only list my local doctors. I gave the information for my doctors at s Hopkins to my representative from ALLSUP. Shouldn't they make sure all my information gets to SSDI? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 I have to agree with Gail..the look on the worker's face when she saw my binders full of medical records she was astounded. I think at that time I had over 450 pages,and have far eclipsed that now. I contacted every single Dr/hospital/clinic/phsychiatrist etc to get all of my records to keep on file once I knew this wasn't something that would go away in short order, and though a total pain in the ass, it was one of the things I did that has proven to be a great asset. NOW...IF ONLY I COULD GET A HOLD OF MY MILITARY MEDICAL RECORDS!!!!! Best of luck, Kirk. I know that isn't much of a consolation, and waiting is probably as stressful as dealing with this disease... but they can't hold you up forever when you are truly sick. > > > I was told by a worker at Social Security that they request all the > records, but if the docs don't send it in in the time frame allotted, they > can't do anything about it. I kept all our records, took them in to the SS > office and they mailed them for me to the determination office. > Unfortunately, sometimes, we have to be our own advocate. Good luck on your > appeal. Also, my doc said that some doctors just list it as RA, which > sometimes is too general. > > Again, good luck, don't give up. I was fortunate to have mine approved > right off. But medical records are key! > > Gail (KY) > > > > From: Leon <leonghoward@... <leonghoward%40yahoo.com>> > Subject: SSDI - Denied > To: Stillsdisease <Stillsdisease%40yahoogroups.com> > Date: Sunday, October 31, 2010, 4:39 PM > > > > I got my SSDI denial letter saturday. In the denial letter they only list > my local doctors. I gave the information for my doctors at s Hopkins to > my representative from ALLSUP. Shouldn't they make sure all my information > gets to SSDI? > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.