Guest guest Posted January 24, 2011 Report Share Posted January 24, 2011 Haven't seen a brochure in quite a while...could you forward as an attachment for review? I know that when I received it, it was quite basic with very little information that wasn't already accessible elsewhere...Considering the Hell that we have all been through, maybe if everyone was able to review... Thanks! B. West -----Original Message----- I am going to try this one more time and then I am going to update the Brochure with what I have now. I have asked all of the Board Members what they would like to see changed, added or deleted Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2011 Report Share Posted January 24, 2011 Ms West: I don't know what Brochure you are referring to as the only Brochure we have must be requested from me and sent to the individual via the US Postal service. We have never sent it as an attachment because attachments are not allowed on this forum. I do send copies of our Brochures to anyone that requests then if they furnish a name and postal address. That is what the Brochure is for, giving the basic information about Still's disease and that is why it is only the basic information. " WE WILL WIN " Love Ya'll! Bob & Carole Dad & Mom " Never Fight Fair " Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 I would like to receive one of your brochures. Been diagnosed with Stills since 2006 and it has been a rough road for me...Please send to: Leonora 420 Dennie Lynn Grants, NM 87020 Â Thank you Subject: Re: UPDATING BROCHURE? To: Stillsdisease Date: Monday, January 24, 2011, 3:10 PM Â Ms West: I don't know what Brochure you are referring to as the only Brochure we have must be requested from me and sent to the individual via the US Postal service. We have never sent it as an attachment because attachments are not allowed on this forum. I do send copies of our Brochures to anyone that requests then if they furnish a name and postal address. That is what the Brochure is for, giving the basic information about Still's disease and that is why it is only the basic information. " WE WILL WIN " Love Ya'll! Bob & Carole Dad & Mom " Never Fight Fair " Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Hi Hunny If you have room you could add the " warm " line ( as opposed to a " hot " line) phone number. I have been getting quite a few calls, and glad that we're here for our people. What changes have you decided to make on the brochures. I read the 2008 version and it " still " stands. The only thing is on the back page. When we started to think about the icon for the Foundation, I suggested the Dragon, because it was a " now you see it now you don't " and the fire breathing for the high fevers, because it was so hard to get a diagnosis ( lo those many years ago); It was a magical now you see it now you don't.... so, maybe " when we began the foundation we used the Fire-breathing dragon as our icon. It represented the flame of high fevers, and the " flares " that we all experience " Love you both Cat ________________________________ To: stillsdisease Sent: Mon, January 24, 2011 10:39:39 AM Subject: UPDATING BROCHURE? I am going to try this one more time and then I am going to update the Brochure with what I have now. I have asked all of the Board Members what they would like to see changed, added or deleted in the present Brochure and have received very minor response for want of a better word? Now it's time for all of the members to express their views. But in doing so you must look at one of our Brochures and take into consideration the amount of " SPACE " that we have and where we would put whatever you have to add or change unless you have deletions to go with them. So please keep that in mind. Also please don't ask to change the Dragon on the front page of the Brochure as that Dragon has been with us since the Foundation was formed and I don't see it going anywhere anytime soon but maybe....? I am down to about 150 Brochures now so I will be updating it regardless and your input would be very helpful even if it may not be included in this immediate printing? Hopefully it will. But I will need this information by the beginning of next week at the latest. I know that some of you have made comments that some things needed to be changed in the Brochure, so now is the time for you to speak up and get it done. Thanking you in advance! Take care. Love Ya'll! " WE WILL WIN " Love Ya'll! Bob & Carole Dad & Mom " Never Fight Fair " Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Hey Sweetie: The only other thing that I have to add so far is the new medication Actemra which everyone is saying is working so good for them plus what you just sent me if that's the way that you want it put in there Warm Line " instead of " Hot Line " ? Or do you want me to come up with a different description such as Depression line or Feeling down line or Need someone to talk to line etc? I'll let you pick then I'll shorten it if I can lol! Take care. Love Ya! " WE WILL WIN " Love Ya'll! Bob & Carole " Never Fight Fair " Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 Hello I have given a lot of thought to any update of Stills Brochure, but to be honest I think it covers all aspects and information that it is able to give and therefore I feel in my view, no changes are necessary. I do apologize for not getting in touch just to let you know my thoughts - it was very remiss of me. Hope you are well today Joan U.K. Quote Link to comment Share on other sites More sharing options...
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