fatty liver, hemochromatosis

[Guest guest]

Hello, I also have a moderately enlarged fatty liver (iron overload) that was

found on a ultra sound last month. I have had a high ferritin level's over 950,

normal is around 25. It's been high for several years, with no diagnoses.

I finally found a good hematologist (blood specialist) that diagnosed me with

hereditary hemochromatosis. This is Iron overload in your organs.

Once absorbed, the excess iron doesn't leave the body. Instead, it's stored in

synovium (joints) and major organs such as the liver, heart, brain, pancreas,

and lungs. Over many years, iron accumulates to toxic levels that can damage or

even destroy an organ. The iron overload can cause many health problems, most

frequently a form of diabetes that's often resistant to insulin treatment.

Because of this, hereditary hemochromatosis is sometimes called " bronze

diabetes. "

The most effective treatment for hemochromatosis is to reduce iron in the body

by phlebotomy (withdrawal of blood from the arm veins).

However, this treatment increased my fatigued, so I had to postpone further

treatment until I gain my strength.

The hematologist reported that my high ferritin level is also a autoimmune

disorder and hemochromatosis because after multiple phlebotomy's my ferritin

level only dropped to 825 . My rhematologist reported that it's not autoimmune??

Any suggestions?

Thanks

Jack

>

> >Hello everyone, I hope all is well. On Friday I had to have a ultrasound on

my

> >liver and rest of my stomach. I got the results today. It says that I have a

> >mild fatty liver? Now this really confuses me as I do not drink alcohol #1

> >cause. I am not overweight the #2 cause. I do not have type 2 diabetes #3

cause.

> >I am fairly active accept these last month since I had my latest fever

spikes.

> >Before that I exercised for at least an half an hour probably 5 times a week.

> >Now I was wondering if this can be stills related. I did an archive check on

> >Fatty Liver and nothing came up. Just like PBC (primary biliary cirrhosis)

PBC

> >can cause this but I can see a GI until Dec. 14th so I just wanted to see if

> >AOSD can cause this.

> >

> > aka Jalee

> >One in a Million

> >

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