Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Kathy, my father Pem went through this with his wife, Babe. It was sooo hard for him to take the abuse because that is what it is. The LBD person has no idea they are doing this and has no way to control themselves...they cannot understand what they are doing.... My father needed more support but she wouldn't let up on him for leaving the house. Finally he got the Dept of Aging folks to bring in help so he could get out of the house. Your mother needs to get away and use other people to help her care for him. The night situation...I don't know how long it will last but this needs to go back to your DR. Sleep aids are not the greatest for LBD's but we used Seroquel to get her to sleep during these times. You all may need to give him some doses aduring the night. Others here can tell you what worked for their LBD's LO's. Tell your mother to let it all go in one ear and out the other...my Babe was the same....good to some, horrible to family. It's like dealing with a three yo child. So frustrating. Love Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Lyn, it is because some brain cells are destroyed and some aren't. It depends which areas are clear of dead cells, whether they act normal, or the other way around. It depends on what cells are damaged or destroyed, whether they are violent, sweet, acting out, cursing, or in other bad ways that they act. They sure can't help it. We can look at the person and they look so normal and sometimes act so normal, and yet, you can't explain a thing to them. They don't comprehend reasoning. " Their reasoner is broke, " as one person put it. Figuring things out is one of the first things to go, as a rule, In LBD. Imogene In a message dated 1/4/2007 11:58:00 PM Central Standard Time, lynbrian7@... writes: I understand with what you are saying but what confuses me is that they still know who you are. If they know that why do they think like that. Hugs Lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 I understand with what you are saying but what confuses me is that they still know who you are. If they know that why do they think like that. Hugs Lyn -- Re: behavior Kathy Kathy, my father Pem went through this with his wife, Babe. It was sooo hard for him to take the abuse because that is what it is. The LBD person has no idea they are doing this and has no way to control themselves...they cannot understand what they are doing.... My father needed more support but she wouldn't let up on him for leaving the house. Finally he got the Dept of Aging folks to bring in help so he could get out of the house. Your mother needs to get away and use other people to help her care for him. The night situation...I don't know how long it will last but this needs to go back to your DR. Sleep aids are not the greatest for LBD's but we used Seroquel to get her to sleep during these times. You all may need to give him some doses aduring the night. Others here can tell you what worked for their LBD's LO's. Tell your mother to let it all go in one ear and out the other...my Babe was the same....good to some, horrible to family. It's like dealing with a three yo child. So frustrating. Love Sara Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Lyn, The other thing that will happen is that it is a progressive disease. If they know you now, that will change and continue to change. One of the other things that really helped me was that all reflective windows and pictures and mirrors need to be covered. Especially at night what they see in reflective glass becomes " real " to them. We lost a lot of people the day I discovered I could cover Mom's big mirror in her bedroom. She was very clear that it wasn't her in the mirror. It is not who she remembered herself looking like. Hugs, and hope this site gives you lots of info to help with the caregiving. Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Re: behavior Kathy Kathy, my father Pem went through this with his wife, Babe. It was sooo hard for him to take the abuse because that is what it is. The LBD person has no idea they are doing this and has no way to control themselves...they cannot understand what they are doing.... My father needed more support but she wouldn't let up on him for leaving the house. Finally he got the Dept of Aging folks to bring in help so he could get out of the house. Your mother needs to get away and use other people to help her care for him. The night situation...I don't know how long it will last but this needs to go back to your DR. Sleep aids are not the greatest for LBD's but we used Seroquel to get her to sleep during these times. You all may need to give him some doses aduring the night. Others here can tell you what worked for their LBD's LO's. Tell your mother to let it all go in one ear and out the other...my Babe was the same....good to some, horrible to family. It's like dealing with a three yo child. So frustrating. Love Sara Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Donna Mido wrote: > One of the other things that really helped me was that all reflective > windows and pictures and mirrors need to be covered. Especially at > night what they see in reflective glass becomes " real " to them. > > We lost a lot of people the day I discovered I could cover Mom's big > mirror in her bedroom. She was very clear that it wasn't her in the > mirror. It is not who she remembered herself looking like. I also found that the TV was part of the problem. Much of what was seen or heard on the television got incorporated into hallucinations, especially what Mom heard when she was in a dozing, half-awake state. The Seroquel has been amazing in nearly completely stopping the hallucinations (for now, at least), but I still try to have her TV turned off if she's not actively watching it. jacqui (in Puget Sound) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 From what I can understand about how the Lewy's Bodies kill brain cells (and someone correct me if I'm OUT there), cell death isn't as random as they used to think. Since we still don't know all the answers to the brain function....just know that when those cells that determine certain behaviors are affected, it changes the way are normal brain paths function.....so people think they are acting normal but they are not. Later today I'll find the book with the latest research...I have to run just now. Sara Quote Link to comment Share on other sites More sharing options...
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