Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 In a message dated 12/27/02 2:59:38 PM Eastern Standard Time, zad420@... writes: > ? A little > about myself. I am 25 married with 3 kids, the newest one born march > of this year. before her I was 165lbs since I've had her I am now > 190-195 my all time high and it is very depressing. I graduated in > May from nursing school Hi Holley! Welcome to the group! You and I have a lot in common. I am also 25 and have 2 kids. At one time in my life I weighed about 245-250 and got down to about 155 with Tae-Bo. Over the past year, my eating has been a mess and I had quit working out (for a variety of excuses), so I have gained quite a bit of weight. I am getting myself back on track though and am making Tae-Bo and exercise a permanent part of my life again! Hang in there and know that you can do it! There are people here that are in the same place you are and are here to support you every step of the way! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 In a message dated 12/27/2002 2:59:46 PM Eastern Standard Time, zad420@... writes: > Holley > Hi Holley I'm Jenn. I'm 26 & I'm a stay at home mom. I have a 7yr old & a 7 month old & about 60lbs I want to lose :/ I haven't been doing tae bo for too long this time around, so no results yet other than just feeling better & being hopeful. Last time I did it a few years ago, I never really kept track of weight loss (I wasn't real heavy to begin with then) but I definitely noticed a huge difference in me. Welcome ~Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 > I would also like to know what everyone > thinks about these new supplements Taebo select. Does billy really > promote these? Has anyone tried them? I'm looking to lose 50+ lbs. Holley, Welcome to the group! This is a great group of people and you will find plenty of support and motivation here does not endorse or promote the TaeBo Select products. I am a TaeBo Instructor and I was told personally by people in his office that he did not promote these products. These products are distributed by a Company called Malibu Naturals. This Company is run by the same people who distribute the TaeBo tapes. has been in a legal battle with them to get the TaeBo name back. I'm not sure of all the specifics, but basically they own the TaeBo name and has been engaged in legal battles with them to get the name back. So, please don't believe everything that you hear about anything associated with MN...they are a shady, shady company and they will do anything they can to make a buck..including using 's name in association with weight loss supplements. Don't get me wrong, there are many good supplements out there. But, please do your research before taking anything And TaeBo is definitely a step in the right direction to a healthier you Good Luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 Hi Holley, I'm a relatively new member to this group though I did start doing TaeBo Nov 7th. I enjoy my workouts and have about another 45lbs to lose (have already lost 36, not doing TaeBo). I can say that TaeBo is working. I lost .2lbs in a period of 30 days but 1 whole clothing size...so my body is currently busy building muscle to allow me to workout with and soon it should go back to fat burning mode Well...after it gets rid of all the junk I ate the last few days! Take care and welcome Trish New Member Hello everyone, new member my name is Holley. I tried taebo a few years ago but had little success. I loved the way it made me feel though. I since then have had another child and am ready to get rid of this excess weight. I bought a couple new videos one including taebo focus abes and glutes. Anybody have any comments on this video I haven't watched it yet. I would also like to know what everyone thinks about these new supplements Taebo select. Does billy really promote these? Has anyone tried them? I'm looking to lose 50+ lbs. I need alot of support and words of encouragement. There is alot of messages on this board and it would take forever to look back and read them all so those who don't mind could you post a short story of yourself and some success stories to get me motivated? A little about myself. I am 25 married with 3 kids, the newest one born march of this year. before her I was 165lbs since I've had her I am now 190-195 my all time high and it is very depressing. I graduated in May from nursing school. I work 12 hour shifts 5p-530am so my motivation alot is due to lack of sleep. I look forward to meeting alot of great people and losing alot of weight. Thanks in advance and good luck to everyone. Holley As Deb has said: " Fitness is a journey and it begins with the first step. " " This isn't about weight loss, it's about enlightenment " - Visit our new vault site http://taeboon.isportsdot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 Welcome to the group Holley. Tae-Bo and this group is a perfect start for your weight loss journey We'll be here for you throughout it!! Best of luck Darcy New Member Hello everyone, new member my name is Holley. I tried taebo a few years ago but had little success. I loved the way it made me feel though. I since then have had another child and am ready to get rid of this excess weight. I bought a couple new videos one including taebo focus abes and glutes. Anybody have any comments on this video I haven't watched it yet. I would also like to know what everyone thinks about these new supplements Taebo select. Does billy really promote these? Has anyone tried them? I'm looking to lose 50+ lbs. I need alot of support and words of encouragement. There is alot of messages on this board and it would take forever to look back and read them all so those who don't mind could you post a short story of yourself and some success stories to get me motivated? A little about myself. I am 25 married with 3 kids, the newest one born march of this year. before her I was 165lbs since I've had her I am now 190-195 my all time high and it is very depressing. I graduated in May from nursing school. I work 12 hour shifts 5p-530am so my motivation alot is due to lack of sleep. I look forward to meeting alot of great people and losing alot of weight. Thanks in advance and good luck to everyone. Holley As Deb has said: " Fitness is a journey and it begins with the first step. " " This isn't about weight loss, it's about enlightenment " - Visit our new vault site http://taeboon.isportsdot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hi Mirka, and welcome. Non of like the reason for being part of this group, but we love the sharing and support from so many wonderful people who understand what you are going through. Send us any concerns, anecdotes, questions, anything you want to share and hopefully someone will be able to relate. What is important while your dad still is functioning cognitively at a level where legalities can be dealt with, is to get his will, wishes for care, including end of life support, power of attorney, financial business set up so you or whomever his caregiver is can deal with what needs attention as his dementia progresses. My mother had everything we could think of in place and it made my slipping in and assuming more and more of her business matters, then medical decisions, so much easier. , Oakville Ont. Mother, age 92, died Aug. 12/06 after 13 year decline from PDD > > Hi all! > > I'm new to this group. My name is Mirka and I'm originally from > Finland but at the moment I live in Switzerland. My 56 yrs old father > was diagnosed with LBD just two weeks ago. > > Mirka > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hi Mirka -- welcome to the group. I'm sorry you have to be here, but at the same time glad that you found us. Please let us know what medications your dad is currently on. Let us know what your questions and concerns are. We're here to support you in this journey. Here's some links to some of the most useful information pieces about LBD: Brochure: http://www.lewybodydementia.org/docs/brochure/3_brochure.pdf Great overview: http://www.emedicine.com/neuro/topic91.htm Info about medicine that helps LBD: http://www.lewybodydementia.org/Boevelink.php Visit our Links section - tons of useful info available: http://health.groups.yahoo.com/group/LBDcaregivers/links ; loving daughter of Maureen of Boston, MA; dx'd with LBD in 2/2006; fell victim to rapid decline from Risperidone; Was successful on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept. 30th, 2006. Visit the LBDCaregivers board on the web: http://groups.yahoo.com/group/LBDcaregivers/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Mirka Welcome to the group. This is the place to be when a LO is diagnosed with LBD. You will get any question answered here. This is also the place to cry, vent, and laugh. No question is foolish. There is a lot of info that you can get from the links. Read all you can because you will need to know what is going on with your Father. Not all LO's go through this terrible illness the same but you will see some simularities. My suggestions are that you keep a diary on your Dad showing any different behaviors he may have. Meds are a big thing with LBD. Go slow and small doses. There is a link that tell you about the NO No Meds. Make sure his Doctor has that list. Good Luck and Cyberhugs to you and your family, Jacqui in So Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Mirka, Welcome to the list that we don't want, but love with all our hearts. Just as helped Kathy, who I welcome warmly also, I am sure you will be helped too. Imogene In a message dated 1/4/2007 6:02:27 AM Central Standard Time, mtorregg@... writes: Hi all! I'm new to this group. My name is Mirka and I'm originally from Finland but at the moment I live in Switzerland. My 56 yrs old father was diagnosed with LBD just two weeks ago. Mirka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hi Mirka, I am also new to this group. My Mother In Law has just been diagnosed LBD a few weeks ago. Very supportive Hugs Lyn -- New member Hi all! I'm new to this group. My name is Mirka and I'm originally from Finland but at the moment I live in Switzerland. My 56 yrs old father was diagnosed with LBD just two weeks ago. Mirka Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Mirka, You do have an on-line Lady over in the UK that has a site too, at: www.lewybody.org Just makes it a little closer. is great and her Dad is here in Florida with her Mom. Say Hi if you email her. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. New member Hi all! I'm new to this group. My name is Mirka and I'm originally from Finland but at the moment I live in Switzerland. My 56 yrs old father was diagnosed with LBD just two weeks ago. Mirka Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Hi Lynn, My mom was also from rural Illinois, southern city called Centralia - any connection? And Welcome! Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Hi Lynn, You are in a good place to get answers. A big warm Welcome! I am glad you are here. The more input we all have the more we learn. I feel bad for you, and your Mom. Yes, no matter how you cut it, it hurts, but we turn to each other and talk about it, just like you did. We have a fine group that lovingly and willingly help any way we can. Some have already been through it, and they guide us a great deal. I appreciate their efforts to make our lives a little less stressful with their input. Hang in there. I know the helpless feeling, and with your being a nurse I can imagine how hard it must hit. It was like me when daddy died of a massive heart attack. I frantically tried to save him with mouth to mouth. The whole route of CPR. The helpless feeling, and questioning if I did everything right, was horrible. I know I did, but try to tell me that at the time. I loved my father very dearly. I had gone commercial fishing with him for almost six years. To loose him was traumatic. I know other's pain. And, let me tell you I feel it too. But, with our love and helpfulness we all get by. Love, and welcome a whole big bunch, Imogene Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with Parkinsonism. In a message dated 2/27/2007 11:21:35 PM Central Standard Time, lynnepoo57@... writes: Hi, I'm a new member to this group. Let me tell you a little about my situation. My Mom was diagnosed w/ Parkinson's in 2000. I know she had it for about 2 yrs prior but was unable to get through to the MD. In 2000, I sought a new MD, whom is a Geriatric MD. She immediatly put Mom in the hospital and diagnosed PD in 2 stage. Started trating her and was sent to a Neurologist. She has been very well cared for by both MD's Two and one half years ago Mom started " failing " mentally and physically. She's been taken care of w/ 24hr homecare givers in her home ever since. We were lucky that they had save a lot of money. Since Nov. 2005 has been treated for LD. We have tried several meds that have helped but seem to " wear off " .She's now on Seroquel. and I also have to give her Geodon injections about once a wk to " break " the frightening hallucinations. I'm also a nurse. I'm having a lot of trouble dealing w/ this and there is no support group to talk to in my area (rural IL. I find it sooo hard to see her this way and have found no answers. As a nurse, I feel at times I should be able to " fix " it. Even though I know that I can't. Mom opnly live about 1 mile from me. I talk to everyday and see her about 3x's a wk. (I have a hard time going to see her in this condition. I'm at aloss on how to comfort her !!!! Does anyone have advise???? Thanks, Lynn Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 I have a printout of my husband. The date I made an update on his information His weight and height, and age. All his doctors and phone numbers All his medications, and what he is allergic to. And any other information a doctor may need At the bottom I have in large print If an LBD patient is given antipsychotic medicines He will go into a downhill spiral that can't be reversed. Then I say in very large letter " Do not give (husband's name) antipsychotic medications " This works well when he goes to the hospital and the staff is ignorant about LBD. They think it is just like any other dementia. Imogene Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with Parkinsonism. In a message dated 2/28/2007 11:14:54 AM Central Standard Time, jchristensen1953@... writes: Lynn: Welcome to the place where no one wants to be. I don't know if you have read the list of meds that are not good for LBD, but I would certainly question the use of Geodun. It is one of them that shouldn't be used, and my husband worsened on this an other antipsychotic meds, which I believe contributing to a quicker decline. Seroquel is another, but is considered to be less problematic than the others. How old is your mother? It sounds as if she has good doctors, which is a real plus. There are lots of answers for your questions on this site, so don't be afraid to ask for help if you need it. June, husband dx'd AD 1999; possible LBD June 2006, died Nov 2006. <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Hi Lynn, it looks like you and I are newcomers to this group and I can tell already that we are going to need well needed support. I am sorry about your Mom. I lost my mother 2 years ago. She was 93 and lived a good long life. My husband, 71, has just been diagnosed with LBD and I am still reeling from this harsh reality and I must say would like to run through the streets screaming and pulling my hair out....I won't. I'd probably get arrested! Good luck to you and your Mom. Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Lynn: Welcome to the place where no one wants to be. I don't know if you have read the list of meds that are not good for LBD, but I would certainly question the use of Geodun. It is one of them that shouldn't be used, and my husband worsened on this an other antipsychotic meds, which I believe contributing to a quicker decline. Seroquel is another, but is considered to be less problematic than the others. How old is your mother? It sounds as if she has good doctors, which is a real plus. There are lots of answers for your questions on this site, so don't be afraid to ask for help if you need it. June, husband dx'd AD 1999; possible LBD June 2006, died Nov 2006. --- lynnepoo57 wrote: > Hi, I'm a new member to this group. Let me tell you > a little about my > situation. My Mom was diagnosed w/ Parkinson's in > 2000. I know she had > it for about 2 yrs prior but was unable to get > through to the MD. In > 2000, I sought a new MD, whom is a Geriatric MD. She > immediatly put Mom > in the hospital and diagnosed PD in 2 stage. Started > trating her and > was sent to a Neurologist. She has been very well > cared for by both MD's > Two and one half years ago Mom started " failing " > mentally and > physically. She's been taken care of w/ 24hr > homecare givers in her > home ever since. We were lucky that they had save a > lot of money. > Since Nov. 2005 has been treated for LD. We have > tried several meds > that have helped but seem to " wear off " .She's now on > Seroquel. and I > also have to give her Geodon injections about once a > wk to " break " the > frightening hallucinations. I'm also a nurse. > I'm having a lot of trouble dealing w/ this and > there is no support > group to talk to in my area (rural IL. I find it > sooo hard to see her > this way and have found no answers. As a nurse, I > feel at times I > should be able to " fix " it. Even though I know that > I can't. > Mom opnly live about 1 mile from me. I talk to > everyday and see her > about 3x's a wk. (I have a hard time going to see > her in this condition. > I'm at aloss on how to comfort her !!!! Does anyone > have advise???? > Thanks, Lynn > > ________________________________________________________________________________\ ____ Cheap talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. http://voice.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Welcome Lynn, I'm so sorry you have had to search out this group but happy that you found us. I find it hard to see my Dad failing too and even though I'm not a nurse I too feel like I should be able to fix things. I think that no matter what ones occupation is that there is that sense of I or someone should be able to fix it. My personal opinion is we have come so far in many ways medically that we get frustrated and even angry when something can't be fixed. My way of comforting my Dad may not work for everyone but when he starts with the " oh woe is me " party I remind him that things could be a lot worse. He will ask me how and I will give him some generalizations. Especially because he is such a news person I will pull from the current headlines or people we know with some painful condition. I don't know if you are a religious person or not but we are so I remind him that whatever we are facing God is in control and we just have to trust Him to know what is best. I hope somehow this has helped in some way. Always feel free to come her and ask for help or vent. There are a lot of people on this board that have been there or are there with helpful advice. Hugs coming your way, Leah > > Hi, I'm a new member to this group. Let me tell you a little about my > situation. My Mom was diagnosed w/ Parkinson's in 2000. I know she had > it for about 2 yrs prior but was unable to get through to the MD. In > 2000, I sought a new MD, whom is a Geriatric MD. She immediatly put Mom > in the hospital and diagnosed PD in 2 stage. Started trating her and > was sent to a Neurologist. She has been very well cared for by both MD's > Two and one half years ago Mom started " failing " mentally and > physically. She's been taken care of w/ 24hr homecare givers in her > home ever since. We were lucky that they had save a lot of money. > Since Nov. 2005 has been treated for LD. We have tried several meds > that have helped but seem to " wear off " .She's now on Seroquel. and I > also have to give her Geodon injections about once a wk to " break " the > frightening hallucinations. I'm also a nurse. > I'm having a lot of trouble dealing w/ this and there is no support > group to talk to in my area (rural IL. I find it sooo hard to see her > this way and have found no answers. As a nurse, I feel at times I > should be able to " fix " it. Even though I know that I can't. > Mom opnly live about 1 mile from me. I talk to everyday and see her > about 3x's a wk. (I have a hard time going to see her in this condition. > I'm at aloss on how to comfort her !!!! Does anyone have advise???? > Thanks, Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 , bless your heart. I hear you loud and clear. I am sorry for the stress and pain you are enduring, but, I want you to know you have found the right place. I send you a big warm welcome, and know you will be right at home. I sure am. Please tell us about your struggle with your husband's long term diagnosis, and how he is doing now. My husband will be seventy-three in May. So far he has been a sweetheart, and very cooperative. Well, there was a time he wasn't, but that was before diagnosis, and Zoloft. He became agitated easily when trying to do things around the house, whether I had ask him to do it, or he wanted to do it on his own. I couldn't stay around him. Now, I know that he was trying with all he had and still couldn't do things. It was exhausting and frustrating to him. Poor Darling. When he realized he couldn't do projects any longer, he relaxed, and we get someone else. We are glad that you are here, , and are looking forward to your mail. Love a bunch, Imogene Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with Parkinsonism. In a message dated 3/1/2007 8:11:07 AM Central Standard Time, barryandshelley@... writes: I'm so glad that I'm now finally able to talk to some other caregivers with loved ones that have Lewy Body. I'm a new member, and have been living in a lot of despair since my husband's diagnosis last October. It took a few years and many specialists to find out what was going on and the process has left me and the family worn out and almost crazy with dread and anxiety. Anyway, I'm here now, and look forwrd to getting and possibly giving some support. <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 Irene, I am not aware of those medications. Someone else must have mentioned something about them. Hang in there, Friday is coming, and you'll have many answers before long. Sorry I can't help. But, I wish I could. I do implore everyone to sign their names to their letters. New members do not kmow who you are. Thanks for your great letters, and more thanks when your name it there. Lots of love everyone, and try not to bounce off the walls with all the problems. You are all very special. Imogene Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with Parkinsonism. In a message dated 3/1/2007 3:55:14 PM Central Standard Time, irenevictoria.manias@... writes: No problem Imogene....you have your hat in a lot of rings. He takes Mirapex and niaprizine which is an antihistamine. Irene <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 , I am so glad you found this site. When my sister and I did, I felt like a ton of bricks was lifted off my shoulders. All the oddities, and extreme fluctuations in behavior, the runny nose, everything-- was experienced by someone else here and they all had great hints and advice . You will find a endless well of information-- I know I have carried the list of good and bad meds in my pocketbook for 4 years now and now my mom (not LEWY) is going in for her 3rd operation (due to osteo arthritis -- bones keep breaking ) and the article on anesthetia and the elderly is coming with us!! POST QUESTIONS, VENT, JOIN IN -- somehow finding people who share your burden makes it more bearable... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 No problem Imogene....you have your hat in a lot of rings. He takes Mirapex and niaprizine which is an antihistamine. Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 How awful Donna to know something is bad and to have them give it to your father anyway. I must remember Haldol, but perhaps here in Italy it has another name. I will walk on eggshells. Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 I know you wrote to Donna, but I would like to throw my two cents in also. How common a runny nose is, I do not know, but I have seen enough letters on here to know many have it. And, My own darling husband has used many, many, boxes of Kleenex. If he didn't hold two under his nose all the time, he would drip all over the place. He would use two at a time, and yet only for a minute, or only once. They would become soaked. That is how bad it has been. Right now it seems to have abated awhile, but it could very well come back. I hope this helps some. Imogene Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with Parkinsonism. In a message dated 3/1/2007 8:05:55 PM Central Standard Time, getalife106@... writes: What is the " runny nose " you refer to here, is it common? My dad has just started doing that! Joanne daughter of Joe 88 <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 , I keenly appreciate your beautiful letter of positive help. I have kept a copy of it. You have reached out again to help others, when you could cry out, " I need help. " Thank you very much for your loving attitude, positive words, and very helpful hints. You have done all this on the day of your father's funeral. What a sweetheart you are! You have applied some very nice ways to handle a very difficult job, and I know your father felt loved, and safe. May many blessing go your way dear lady. You are a gem, and I beg of you to remain with the List. We need your loving help. Imogene In a message dated 3/1/2007 11:16:09 PM Central Standard Time, coyote81067@... writes: Hi, I'm so sorry your mom has this disease. I remember joining this group with words like " A week ago I never even HEARD of LBD and now, here I am... " Now that I have just recently reached the end of this journey (today was Dad's funeral), I can tell you where I have no regrets. When your mom has clarity, talk to her openly, let her know that you will make sure everything is ok, that she is safe and she is loved. When your mom says things that are weird or non-sensical, go along with it. It feels weird to do at first, but but once you accept that this is part of the disease, it helps your loved one to not feel that there is so much " wrong " with them (or you!). For example if my Dad would say " shhh, the people can hear us " I wouldnt say " what people? " (to him the people were very real) ..so simply saying " ok, I will speak more quietly " works fine. If my Dad looked at me and thought I was his mother, not his daughter, I would just go along with it. Somedays I am sure my Dad woke back up in a world where he was 4, why mess with that? I mean, just imagine living in a world where nothing makes sense all the time. We, the caregivers, have the opportunity to ease the fear and uncertainty. I dont mean lie 24/7, but take every moment as it comes and do what you can, because although this is hard on us and you want to remind and correct ....it is not worth the anguish you put yourself and your loved one through. Its a long journey, stay strong, take care of yourself, and just love your Mom through it all. <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 Donna, What is the " runny nose " you refer to here, is it common? My dad has just started doing that! Joanne daughter of Joe 88 donna wrote: , I am so glad you found this site. When my sister and I did, I felt like a ton of bricks was lifted off my shoulders. All the oddities, and extreme fluctuations in behavior, the runny nose, everything-- was experienced by someone else here and they all had great hints and advice . You will find a endless well of information-- I know I have carried the list of good and bad meds in my pocketbook for 4 years now and now my mom (not LEWY) is going in for her 3rd operation (due to osteo arthritis -- bones keep breaking ) and the article on anesthetia and the elderly is coming with us!! POST QUESTIONS, VENT, JOIN IN -- somehow finding people who share your burden makes it more bearable... --------------------------------- We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.