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In a message dated 12/27/02 2:59:38 PM Eastern Standard Time,

zad420@... writes:

> ? A little

> about myself. I am 25 married with 3 kids, the newest one born march

> of this year. before her I was 165lbs since I've had her I am now

> 190-195 my all time high and it is very depressing. I graduated in

> May from nursing school

Hi Holley! Welcome to the group! You and I have a lot in common. I am also 25

and have 2 kids. At one time in my life I weighed about 245-250 and got down

to about 155 with Tae-Bo. Over the past year, my eating has been a mess and I

had quit working out (for a variety of excuses), so I have gained quite a bit

of weight. I am getting myself back on track though and am making Tae-Bo and

exercise a permanent part of my life again! Hang in there and know that you

can do it! There are people here that are in the same place you are and are

here to support you every step of the way!

:)

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In a message dated 12/27/2002 2:59:46 PM Eastern Standard Time,

zad420@... writes:

> Holley

>

Hi Holley :)

I'm Jenn. I'm 26 & I'm a stay at home mom. I have a

7yr old & a 7 month old & about 60lbs I want to lose :/ I haven't been doing

tae bo for too long this time around, so no results yet other than just

feeling better & being hopeful. Last time I did it a few years ago, I never

really kept track of weight loss (I wasn't real heavy to begin with then) but

I definitely noticed a huge difference in me.

Welcome :)

~Jenn

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> I would also like to know what everyone

> thinks about these new supplements Taebo select. Does billy really

> promote these? Has anyone tried them? I'm looking to lose 50+ lbs.

Holley,

Welcome to the group! This is a great group of people and you will

find plenty of support and motivation here :)

does not endorse or promote the TaeBo Select products. I am a

TaeBo Instructor and I was told personally by people in his office

that he did not promote these products. These products are

distributed by a Company called Malibu Naturals. This Company is run

by the same people who distribute the TaeBo tapes. has been in

a legal battle with them to get the TaeBo name back. I'm not sure of

all the specifics, but basically they own the TaeBo name and

has been engaged in legal battles with them to get the name back.

So, please don't believe everything that you hear about anything

associated with MN...they are a shady, shady company and they will do

anything they can to make a buck..including using 's name in

association with weight loss supplements.

Don't get me wrong, there are many good supplements out there. But,

please do your research before taking anything :) And TaeBo is

definitely a step in the right direction to a healthier you :)

Good Luck :)

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Hi Holley, I'm a relatively new member to this group though I did start doing

TaeBo Nov 7th. I enjoy my workouts and have about another 45lbs to lose (have

already lost 36, not doing TaeBo).

I can say that TaeBo is working. I lost .2lbs in a period of 30 days but 1

whole clothing size...so my body is currently busy building muscle to allow me

to workout with and soon it should go back to fat burning mode :)

Well...after it gets rid of all the junk I ate the last few days!

Take care and welcome

Trish

New Member

Hello everyone, new member my name is Holley. I tried taebo a few

years ago but had little success. I loved the way it made me feel

though. I since then have had another child and am ready to get rid

of this excess weight. I bought a couple new videos one including

taebo focus abes and glutes. Anybody have any comments on this video

I haven't watched it yet. I would also like to know what everyone

thinks about these new supplements Taebo select. Does billy really

promote these? Has anyone tried them? I'm looking to lose 50+ lbs. I

need alot of support and words of encouragement. There is alot of

messages on this board and it would take forever to look back and

read them all so those who don't mind could you post a short story

of yourself and some success stories to get me motivated? A little

about myself. I am 25 married with 3 kids, the newest one born march

of this year. before her I was 165lbs since I've had her I am now

190-195 my all time high and it is very depressing. I graduated in

May from nursing school. I work 12 hour shifts 5p-530am so my

motivation alot is due to lack of sleep. I look forward to meeting

alot of great people and losing alot of weight. Thanks in advance

and good luck to everyone.

Holley

As Deb has said: " Fitness is a journey and it begins with the first step. "

" This isn't about weight loss, it's about enlightenment " -

Visit our new vault site http://taeboon.isportsdot.com/

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Welcome to the group Holley. Tae-Bo and this group is a perfect start for your

weight loss journey :) We'll be here for you throughout it!! Best of luck :)

Darcy

New Member

Hello everyone, new member my name is Holley. I tried taebo a few

years ago but had little success. I loved the way it made me feel

though. I since then have had another child and am ready to get rid

of this excess weight. I bought a couple new videos one including

taebo focus abes and glutes. Anybody have any comments on this video

I haven't watched it yet. I would also like to know what everyone

thinks about these new supplements Taebo select. Does billy really

promote these? Has anyone tried them? I'm looking to lose 50+ lbs. I

need alot of support and words of encouragement. There is alot of

messages on this board and it would take forever to look back and

read them all so those who don't mind could you post a short story

of yourself and some success stories to get me motivated? A little

about myself. I am 25 married with 3 kids, the newest one born march

of this year. before her I was 165lbs since I've had her I am now

190-195 my all time high and it is very depressing. I graduated in

May from nursing school. I work 12 hour shifts 5p-530am so my

motivation alot is due to lack of sleep. I look forward to meeting

alot of great people and losing alot of weight. Thanks in advance

and good luck to everyone.

Holley

As Deb has said: " Fitness is a journey and it begins with the first step. "

" This isn't about weight loss, it's about enlightenment " -

Visit our new vault site http://taeboon.isportsdot.com/

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  • 4 years later...

Hi Mirka, and welcome. Non of like the reason for being part of this group, but

we love

the sharing and support from so many wonderful people who understand what you

are

going through. Send us any concerns, anecdotes, questions, anything you want to

share

and hopefully someone will be able to relate. What is important while your dad

still is

functioning cognitively at a level where legalities can be dealt with, is to get

his will,

wishes for care, including end of life support, power of attorney, financial

business set up

so you or whomever his caregiver is can deal with what needs attention as his

dementia

progresses. My mother had everything we could think of in place and it made my

slipping

in and assuming more and more of her business matters, then medical decisions,

so much

easier.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> Hi all!

>

> I'm new to this group. My name is Mirka and I'm originally from

> Finland but at the moment I live in Switzerland. My 56 yrs old father

> was diagnosed with LBD just two weeks ago.

>

> Mirka

>

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Hi Mirka -- welcome to the group. I'm sorry you have to be here, but

at the same time glad that you found us. Please let us know what

medications your dad is currently on. Let us know what your questions

and concerns are. We're here to support you in this journey.

Here's some links to some of the most useful information pieces about

LBD:

Brochure:

http://www.lewybodydementia.org/docs/brochure/3_brochure.pdf

Great overview:

http://www.emedicine.com/neuro/topic91.htm

Info about medicine that helps LBD:

http://www.lewybodydementia.org/Boevelink.php

Visit our Links section - tons of useful info available:

http://health.groups.yahoo.com/group/LBDcaregivers/links

; loving daughter of Maureen of Boston, MA; dx'd with LBD in

2/2006; fell victim to rapid decline from Risperidone; Was successful

on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept.

30th, 2006.

Visit the LBDCaregivers board on the web:

http://groups.yahoo.com/group/LBDcaregivers/

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Mirka

Welcome to the group. This is the place to be when a LO is diagnosed with

LBD. You will get any question answered here. This is also the place to cry,

vent, and laugh. No question is foolish.

There is a lot of info that you can get from the links. Read all you can

because you will need to know what is going on with your Father. Not all LO's go

through this terrible illness the same but you will see some simularities.

My suggestions are that you keep a diary on your Dad showing any different

behaviors he may have. Meds are a big thing with LBD. Go slow and small doses.

There is a link that tell you about the NO No Meds. Make sure his Doctor has

that list.

Good Luck and Cyberhugs to you and your family,

Jacqui in So Florida

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Mirka, Welcome to the list that we don't want, but love with all our hearts.

Just as helped Kathy, who I welcome warmly also, I am sure you will

be helped too.

Imogene

In a message dated 1/4/2007 6:02:27 AM Central Standard Time,

mtorregg@... writes:

Hi all!

I'm new to this group. My name is Mirka and I'm originally from

Finland but at the moment I live in Switzerland. My 56 yrs old father

was diagnosed with LBD just two weeks ago.

Mirka

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Hi Mirka,

I am also new to this group.

My Mother In Law has just been diagnosed LBD a few weeks ago.

Very supportive

Hugs Lyn

-- New member

Hi all!

I'm new to this group. My name is Mirka and I'm originally from

Finland but at the moment I live in Switzerland. My 56 yrs old father

was diagnosed with LBD just two weeks ago.

Mirka

Welcome to LBDcaregivers.

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Mirka,

You do have an on-line Lady over in the UK that has a site too, at:

www.lewybody.org

Just makes it a little closer. is great and her Dad is here in Florida

with her Mom. Say Hi if you email her.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

New member

Hi all!

I'm new to this group. My name is Mirka and I'm originally from

Finland but at the moment I live in Switzerland. My 56 yrs old father

was diagnosed with LBD just two weeks ago.

Mirka

Welcome to LBDcaregivers.

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  • 1 month later...

Hi Lynn, You are in a good place to get answers. A big warm Welcome! I am

glad you are here. The more input we all have the more we learn.

I feel bad for you, and your Mom. Yes, no matter how you cut it, it hurts,

but we turn to each other

and talk about it, just like you did. We have a fine group that lovingly and

willingly help any way we can. Some have already been through it, and they

guide us a great deal. I appreciate their efforts to make our lives a little

less stressful with their input.

Hang in there. I know the helpless feeling, and with your being a nurse I

can imagine how hard it must hit. It was like me when daddy died of a massive

heart attack. I frantically tried to save him with mouth to mouth. The whole

route of CPR. The helpless feeling, and questioning if I did everything right,

was horrible. I know I did, but try to tell me that at the time. I loved my

father very dearly. I had gone commercial fishing with him for almost six

years. To loose him was traumatic.

I know other's pain. And, let me tell you I feel it too. But, with our love

and helpfulness we all get by.

Love, and welcome a whole big bunch,

Imogene

Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with

Parkinsonism.

In a message dated 2/27/2007 11:21:35 PM Central Standard Time,

lynnepoo57@... writes:

Hi, I'm a new member to this group. Let me tell you a little about my

situation. My Mom was diagnosed w/ Parkinson's in 2000. I know she had

it for about 2 yrs prior but was unable to get through to the MD. In

2000, I sought a new MD, whom is a Geriatric MD. She immediatly put Mom

in the hospital and diagnosed PD in 2 stage. Started trating her and

was sent to a Neurologist. She has been very well cared for by both MD's

Two and one half years ago Mom started " failing " mentally and

physically. She's been taken care of w/ 24hr homecare givers in her

home ever since. We were lucky that they had save a lot of money.

Since Nov. 2005 has been treated for LD. We have tried several meds

that have helped but seem to " wear off " .She's now on Seroquel. and I

also have to give her Geodon injections about once a wk to " break " the

frightening hallucinations. I'm also a nurse.

I'm having a lot of trouble dealing w/ this and there is no support

group to talk to in my area (rural IL. I find it sooo hard to see her

this way and have found no answers. As a nurse, I feel at times I

should be able to " fix " it. Even though I know that I can't.

Mom opnly live about 1 mile from me. I talk to everyday and see her

about 3x's a wk. (I have a hard time going to see her in this condition.

I'm at aloss on how to comfort her !!!! Does anyone have advise????

Thanks, Lynn

Welcome to LBDcaregivers.

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I have a printout of my husband.

The date I made an update on his information

His weight and height, and age.

All his doctors and phone numbers

All his medications, and what he is allergic to.

And any other information a doctor may need

At the bottom I have in large print

If an LBD patient is given antipsychotic medicines He will

go into a downhill spiral that can't be reversed.

Then I say in very large letter

" Do not give (husband's name) antipsychotic medications "

This works well when he goes to the hospital and the staff is

ignorant about LBD. They think it is just like any other dementia.

Imogene

Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with

Parkinsonism.

In a message dated 2/28/2007 11:14:54 AM Central Standard Time,

jchristensen1953@... writes:

Lynn: Welcome to the place where no one wants to be.

I don't know if you have read the list of meds that

are not good for LBD, but I would certainly question

the use of Geodun. It is one of them that shouldn't

be used, and my husband worsened on this an other

antipsychotic meds, which I believe contributing to a

quicker decline. Seroquel is another, but is

considered to be less problematic than the others.

How old is your mother? It sounds as if she has good

doctors, which is a real plus.

There are lots of answers for your questions on this

site, so don't be afraid to ask for help if you need

it.

June, husband dx'd AD 1999; possible LBD June 2006,

died Nov 2006.

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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Hi Lynn, it looks like you and I are newcomers to this group and I can tell

already that we are going to need well needed support. I am sorry about your

Mom. I lost my mother 2 years ago. She was 93 and lived a good long life. My

husband, 71, has just been diagnosed with LBD and I am still reeling from this

harsh reality and I must say would like to run through the streets screaming and

pulling my hair out....I won't. I'd probably get arrested! Good luck to you

and your Mom. Irene

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Lynn: Welcome to the place where no one wants to be.

I don't know if you have read the list of meds that

are not good for LBD, but I would certainly question

the use of Geodun. It is one of them that shouldn't

be used, and my husband worsened on this an other

antipsychotic meds, which I believe contributing to a

quicker decline. Seroquel is another, but is

considered to be less problematic than the others.

How old is your mother? It sounds as if she has good

doctors, which is a real plus.

There are lots of answers for your questions on this

site, so don't be afraid to ask for help if you need

it.

June, husband dx'd AD 1999; possible LBD June 2006,

died Nov 2006.

--- lynnepoo57 wrote:

> Hi, I'm a new member to this group. Let me tell you

> a little about my

> situation. My Mom was diagnosed w/ Parkinson's in

> 2000. I know she had

> it for about 2 yrs prior but was unable to get

> through to the MD. In

> 2000, I sought a new MD, whom is a Geriatric MD. She

> immediatly put Mom

> in the hospital and diagnosed PD in 2 stage. Started

> trating her and

> was sent to a Neurologist. She has been very well

> cared for by both MD's

> Two and one half years ago Mom started " failing "

> mentally and

> physically. She's been taken care of w/ 24hr

> homecare givers in her

> home ever since. We were lucky that they had save a

> lot of money.

> Since Nov. 2005 has been treated for LD. We have

> tried several meds

> that have helped but seem to " wear off " .She's now on

> Seroquel. and I

> also have to give her Geodon injections about once a

> wk to " break " the

> frightening hallucinations. I'm also a nurse.

> I'm having a lot of trouble dealing w/ this and

> there is no support

> group to talk to in my area (rural IL. I find it

> sooo hard to see her

> this way and have found no answers. As a nurse, I

> feel at times I

> should be able to " fix " it. Even though I know that

> I can't.

> Mom opnly live about 1 mile from me. I talk to

> everyday and see her

> about 3x's a wk. (I have a hard time going to see

> her in this condition.

> I'm at aloss on how to comfort her !!!! Does anyone

> have advise????

> Thanks, Lynn

>

>

________________________________________________________________________________\

____

Cheap talk?

Check out Yahoo! Messenger's low PC-to-Phone call rates.

http://voice.yahoo.com

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Welcome Lynn,

I'm so sorry you have had to search out this group but happy that

you found us. I find it hard to see my Dad failing too and even

though I'm not a nurse I too feel like I should be able to fix

things. I think that no matter what ones occupation is that there

is that sense of I or someone should be able to fix it. My personal

opinion is we have come so far in many ways medically that we get

frustrated and even angry when something can't be fixed.

My way of comforting my Dad may not work for everyone but when he

starts with the " oh woe is me " party I remind him that things could

be a lot worse. He will ask me how and I will give him some

generalizations. Especially because he is such a news person I will

pull from the current headlines or people we know with some painful

condition. I don't know if you are a religious person or not but we

are so I remind him that whatever we are facing God is in control

and we just have to trust Him to know what is best.

I hope somehow this has helped in some way. Always feel free to

come her and ask for help or vent. There are a lot of people on

this board that have been there or are there with helpful advice.

Hugs coming your way,

Leah

>

> Hi, I'm a new member to this group. Let me tell you a little about

my

> situation. My Mom was diagnosed w/ Parkinson's in 2000. I know she

had

> it for about 2 yrs prior but was unable to get through to the MD.

In

> 2000, I sought a new MD, whom is a Geriatric MD. She immediatly

put Mom

> in the hospital and diagnosed PD in 2 stage. Started trating her

and

> was sent to a Neurologist. She has been very well cared for by

both MD's

> Two and one half years ago Mom started " failing " mentally and

> physically. She's been taken care of w/ 24hr homecare givers in

her

> home ever since. We were lucky that they had save a lot of money.

> Since Nov. 2005 has been treated for LD. We have tried several

meds

> that have helped but seem to " wear off " .She's now on Seroquel. and

I

> also have to give her Geodon injections about once a wk to " break "

the

> frightening hallucinations. I'm also a nurse.

> I'm having a lot of trouble dealing w/ this and there is no

support

> group to talk to in my area (rural IL. I find it sooo hard to see

her

> this way and have found no answers. As a nurse, I feel at times I

> should be able to " fix " it. Even though I know that I can't.

> Mom opnly live about 1 mile from me. I talk to everyday and see

her

> about 3x's a wk. (I have a hard time going to see her in this

condition.

> I'm at aloss on how to comfort her !!!! Does anyone have

advise????

> Thanks, Lynn

>

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Guest guest

, bless your heart. I hear you loud and clear. I am sorry for the

stress and pain you are enduring, but, I want you to know you have found the

right place.

I send you a big warm welcome, and know you will be right at home. I sure am.

Please tell us about your struggle with your husband's long term diagnosis,

and how he is doing now.

My husband will be seventy-three in May. So far he has been a sweetheart,

and very cooperative.

Well, there was a time he wasn't, but that was before diagnosis, and Zoloft.

He became agitated easily when trying to do things around the house, whether

I had ask him to do it, or he wanted to do it on his own. I couldn't stay

around him. Now, I know that he was trying with all he had and still couldn't

do things. It was exhausting and frustrating to him. Poor Darling. When he

realized he couldn't do projects any longer, he relaxed, and we get someone

else.

We are glad that you are here, , and are looking forward to your mail.

Love a bunch,

Imogene

Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with

Parkinsonism.

In a message dated 3/1/2007 8:11:07 AM Central Standard Time,

barryandshelley@... writes:

I'm so glad that I'm now finally able to talk to some other caregivers

with loved ones that have Lewy Body. I'm a new member, and have been

living in a lot of despair since my husband's diagnosis last October.

It took a few years and many specialists to find out what was going on

and the process has left me and the family worn out and almost crazy

with dread and anxiety. Anyway, I'm here now, and look forwrd to

getting and possibly giving some support.

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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Guest guest

Irene, I am not aware of those medications. Someone else must have mentioned

something about them.

Hang in there, Friday is coming, and you'll have many answers before long.

Sorry I can't help. But, I wish I could.

I do implore everyone to sign their names to their letters. New members do

not kmow who you are. Thanks for your great letters, and more thanks when

your name it there.

Lots of love everyone, and try not to bounce off the walls with all the

problems. You are all very special.

Imogene

Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with

Parkinsonism.

In a message dated 3/1/2007 3:55:14 PM Central Standard Time,

irenevictoria.manias@... writes:

No problem Imogene....you have your hat in a lot of rings. He takes Mirapex

and niaprizine which is an antihistamine. Irene

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email to everyone. Find out more about what's free from AOL at

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Guest guest

,

I am so glad you found this site. When my sister and I did, I felt

like a ton of bricks was lifted off my shoulders. All the oddities,

and extreme fluctuations in behavior, the runny nose, everything-- was

experienced by someone else here and they all had great hints and

advice . You will find a endless well of information-- I know I have

carried the list of good and bad meds in my pocketbook for 4 years now

and now my mom (not LEWY) is going in for her 3rd operation (due to

osteo arthritis -- bones keep breaking ) and the article on anesthetia

and the elderly is coming with us!!

POST QUESTIONS, VENT, JOIN IN -- somehow finding people who share your

burden makes it more bearable...

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How awful Donna to know something is bad and to have them give it to your father

anyway. I must remember Haldol, but perhaps here in Italy it has another name.

I will walk on eggshells. Irene

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Guest guest

I know you wrote to Donna, but I would like to throw my two cents in also.

How common a runny nose is, I do not know, but I have seen enough letters on

here to know many have it.

And, My own darling husband has used many, many, boxes of Kleenex. If he

didn't hold two under his nose all the time, he would drip all over the place.

He would use two at a time, and yet only for a minute, or only once. They

would become soaked. That is how bad it has been. Right now it seems to have

abated awhile, but it could very well come back.

I hope this helps some.

Imogene

Caregiver for my True Texas Gentleman husband of 36 years. He has LBD with

Parkinsonism.

In a message dated 3/1/2007 8:05:55 PM Central Standard Time,

getalife106@... writes:

What is the " runny nose " you refer to here, is it common? My dad has just

started doing that!

Joanne daughter of Joe 88

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, I keenly appreciate your beautiful letter of positive help. I

have kept a copy of it.

You have reached out again to help others, when you could cry out, " I need

help. " Thank you very much for your loving attitude, positive words, and very

helpful hints.

You have done all this on the day of your father's funeral. What a

sweetheart you are! You have applied some very nice ways to handle a very

difficult

job, and I know your father felt loved, and safe.

May many blessing go your way dear lady. You are a gem, and I beg of you to

remain with the List. We need your loving help.

Imogene

In a message dated 3/1/2007 11:16:09 PM Central Standard Time,

coyote81067@... writes:

Hi,

I'm so sorry your mom has this disease. I remember joining this group

with words like " A week ago I never even HEARD of LBD and now, here I

am... " Now that I have just recently reached the end of this journey

(today was Dad's funeral), I can tell you where I have no regrets.

When your mom has clarity, talk to her openly, let her know that you

will make sure everything is ok, that she is safe and she is loved.

When your mom says things that are weird or non-sensical, go along

with it. It feels weird to do at first, but but once you accept that

this is part of the disease, it helps your loved one to not feel that

there is so much " wrong " with them (or you!). For example if my Dad

would say " shhh, the people can hear us " I wouldnt say " what people? "

(to him the people were very real) ..so simply saying " ok, I will

speak more quietly " works fine. If my Dad looked at me and thought I

was his mother, not his daughter, I would just go along with it.

Somedays I am sure my Dad woke back up in a world where he was 4, why

mess with that? I mean, just imagine living in a world where nothing

makes sense all the time. We, the caregivers, have the opportunity to

ease the fear and uncertainty. I dont mean lie 24/7, but take every

moment as it comes and do what you can, because although this is hard

on us and you want to remind and correct ....it is not worth the

anguish you put yourself and your loved one through. Its a long

journey, stay strong, take care of yourself, and just love your Mom

through it all.

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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Donna,

What is the " runny nose " you refer to here, is it common? My dad has just

started doing that!

Joanne daughter of Joe 88

donna wrote:

,

I am so glad you found this site. When my sister and I did, I felt

like a ton of bricks was lifted off my shoulders. All the oddities,

and extreme fluctuations in behavior, the runny nose, everything-- was

experienced by someone else here and they all had great hints and

advice . You will find a endless well of information-- I know I have

carried the list of good and bad meds in my pocketbook for 4 years now

and now my mom (not LEWY) is going in for her 3rd operation (due to

osteo arthritis -- bones keep breaking ) and the article on anesthetia

and the elderly is coming with us!!

POST QUESTIONS, VENT, JOIN IN -- somehow finding people who share your

burden makes it more bearable...

---------------------------------

We won't tell. Get more on shows you hate to love

(and love to hate): Yahoo! TV's Guilty Pleasures list.

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