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Re: Swelling Question

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 swelling is very normal with stills and also some thing that I know many here

including my self go threw. fact is parricides ( spelling ) is to put it in

simple words swelling of the fluid sack around the hart. I get it in the ankles

legs and also in other joints and yes my hands and fingers also. Now also at

lest for my self very cold weather will also do it that is turn fingers or toes

red and even some times my feet and its about 50 / 50 if they swell or not .

So long and short swelling is more or less normal and it can and will affect any

part of the body or our organs . it is some thing to keep an eye on but not

worry to much about unless it is organ swelling some thing I know my self and

others know a it to much about. now if my feet or I should say the balls of my

feet would stop swelling and go back to normal then may be they would stop

hurting and I could walk again as right now that is hard to do and painful also.

hugs

 

The Redneck

Marty G.

Be careful about reading health books. You may die of a misprint.

Mark Twain

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I'm not worried just never had swelling there I am not double jointed so

completely forgot ti was even a joint until swelled. jUst making sure it is

swelling cuz it looks so odd.

aka Jalee

One in a Million

________________________________

To: Stillsdisease

Sent: Sat, November 27, 2010 3:29:41 PM

Subject: Re: Swelling Question

swelling is very normal with stills and also some thing that I know many here

including my self go threw. fact is parricides ( spelling ) is to put it in

simple words swelling of the fluid sack around the hart. I get it in the ankles

legs and also in other joints and yes my hands and fingers also. Now also at

lest for my self very cold weather will also do it that is turn fingers or toes

red and even some times my feet and its about 50 / 50 if they swell or not .

So long and short swelling is more or less normal and it can and will affect any

part of the body or our organs . it is some thing to keep an eye on but not

worry to much about unless it is organ swelling some thing I know my self and

others know a it to much about. now if my feet or I should say the balls of my

feet would stop swelling and go back to normal then may be they would stop

hurting and I could walk again as right now that is hard to do and painful also.

hugs

The Redneck

Marty G.

Be careful about reading health books. You may die of a misprint.

Mark Twain

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Lee:

Please start trimming the excess message parts off of

your messages. In other words only leave maybe one or two sentences of the

message that you are responding to on the bottom of your response. Otherwise

when the Digests go out it makes a lot of excess reading for those that get

the Digest form only' If you will notice that as I respond to your message

there is no part of your message attached to the bottom of my response but

that is because that is the way I have my e-mail set up. Just delete most of

it and you will be ok? Thank You,

" WE WILL WIN "

Love Ya'll!

Bob Himes, Moderator

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all

volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave.,

Panama City, FL 32404. Thanks!

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Hi my name is and you said that you stoped taking the prednisone and what

I know of the experience of myself and the members of the group you cant stop

taking the prednisone at once you have to et of slowly.As for myself I was

feeling good and I stopped taking the prednisone and I started to have pain and

swelling as well.And as soon I started taking my prednisone again I started to

feel good.I hope this helps you.

Swelling Question

Hello All,

I've been doing pretty well. Even though somehow I managed to run out of my

Prednisone and haven't taken it since last Sunday night. Mass confusion between

the Nurse and the Pharmacy but anyways. My fevers are much bettor I'm running

within the normal range.

Anyways, Last night I was out and my finger tips were hurting and so was my

hand. I looked at my finger tips and right below the fingernail wherever I was

hurting each one was red swollen and the swelling was weird...When I looked at

it further and was checking it out. The finger tip that hurt the worst the

swelling almost looked like welt or blister except the skin was thick it wasn't

a bubble of this skin with water under it.

A person may of even thought I had burned my finger tips there but I hadn't even

cooked for the last 2 days. Plus there is a joint there that is right below the

finger nail. Anyone ever had this happen to them? I did take pictures. I'll

attach the worse one. I know I don't have the greate

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I am trying to trim as I go. Sometimes I forget I have a lot on my plate and

worrying about trimming messages when I am trying to write a quick response I

forget. I have never done a digest thing before so I do apologize. Once again

though how come the bottom of the message matters if you explain that to me

perhaps I would remember bettor. For me on my mail I cannot even see the

attached info and I cant see when I press respond I.E. which is why I forget to

trim that which i cannot see.

aka Jalee

One in a Million

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Im taking 10 as well but when I start feeling eachy face or eyes I take 15 and

then it makes me feel good.Just try to rest the most you can until Monday when

you start taking your medication again dont over do it.And we are here to post

our experience and that way help others I have learn alot here inside the group

not with my doctor so Im really thankfull with the group.Take care

Re: Swelling Question

Thanks ,

Unfortunately I will have to wait until Monday before I can begin taking my

prednisone again. It's been tough to get to my pharmacy with Thanksgiving and a

Snow Storm before that now it's the weekend...lolI was only on 10mg to begin

with. I was thinking I guess if my fevers were doing bettor that I wasn't being

adversely affected by stopping, but I think you are right. I think part of me

just wants so badly to stop taking it partly because I'm concerned for my liver

and partly because I know that I can't have it forever anyways. I am also taking

Plaquenil it's probably been a month now I was hoping cuz the fevers were done

the Plaquenil was starting to take effect.

aka Jalee

One in a Million

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Thanks ,

Unfortunately I will have to wait until Monday before I can begin taking my

prednisone again. It's been tough to get to my pharmacy with Thanksgiving and a

Snow Storm before that now it's the weekend...lolI was only on 10mg to begin

with. I was thinking I guess if my fevers were doing bettor that I wasn't being

adversely affected by stopping, but I think you are right. I think part of me

just wants so badly to stop taking it partly because I'm concerned for my liver

and partly because I know that I can't have it forever anyways. I am also taking

Plaquenil it's probably been a month now I was hoping cuz the fevers were done

the Plaquenil was starting to take effect.

aka Jalee

One in a Million

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