Re: Jim

[Guest guest]

Jan

I am sorry Jim is suffering so. You both are in my prayers.

I wish I could put my arms around you and give you a hug.

Jacqui in So Florida

[Guest guest]

Jan,

You have put forth every effort you can. It is also was important for me to

understand there was just so much I could do. I could fight Mom, the nh, LBD,

and everything, but I couldn't fight death. I had to understand that and it was

hard. It is good his mind is clear and he does appreciate you and can tell you.

My hugs, and prayers are that you and Jim will have an easy time over the next

week, whatever it may bring.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Jim

I'm on that emotional roller coaster again.

I went in early to visit Jim, they did have him out of bed in his wheelchair,

but he looked horrible. He has lost so much weight. The nurses say he isn't

eating and having a hard time swallowing. I bring him food everyday and let him

eat when he wakes up. He eats for me, but I do think that he is asperating it. I

usually just bring in thick soups now. He then feels sick and wants to vomit,

but doesn't.

He told me today he is dying and that he thought he was going to die

yesterday. His eyes are so red on the lids and inside and they are tearing all

the time. He does have Blepheritis, but I think this is something different. He

says his eyes hurt and his eye medication is not working for him. He is talking

more to me than in a long time.

He is apologizing for being sick, which broke my heart. I told him it's Lewy

Body and not his fault that he is so sick. I think he forgot about Lewy Body and

was somehow relieved to think that he wasn't the cause of being sick. He smiled.

He still has all that congestion in his chest, it sounds awful. Poor guy.

I think I have to come to accept that things may not go so well for Jim this

time. I had high hopes that he would come out of this. As Sandie has said,

" Where there is life, there is hope. " I'm not giving up on him, but I think I

have to be realistic that he might not make it, since he seems to have a sense

of dying too.

I feel so sad for Jim, but he told me today how much he appreciates all that I

have done for him and the fact that he has noticed this and let me know made my

heart soar. It is like his mind has become so clear suddenly.

It is like everyone has mentioned here, that they know what is going on with

them and around them. How sad that they can feel all this happening to them. I

wish he did not have to suffer and I hope he is not scared. I don't think he is

scared, he doesn't show it if he is. He is more concerned about me. What a sweet

heart to be concerned about me at this point.

Well, guess I am venting and needing support at the same time. I am so mad at

this dreaded disease and what it is doing to Jim and me.

Thanks for being here and listening. Jan

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