Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Like I keep saying to the group Janet ( which I don't seem to get response from) is you should check out the symptoms of sleep apnea. You have it sounds like a few, can't sleep , indigestion, and the biggie headaches. I don't know why it is so hard for people with Fibro to believe that most of have this affliction but we do. It is weird I find that we strive for help but when it is offered we get quiet. JJ I'm back - missed participating! Hi Family, I haven't posted much in weeks...My life has been nuts. It's funny, since my diagnosis of Fibro and Sjogerns....my life has been crazier than ever. As I've shared before, I have a full time job as an executive programs manager for a software company, have four kids, two still living at home (14 and 17) - a husband, a household, an aging mother we moved up to Oregon from California after my dad died a couple of years ago. So I'm a wife, a mom, an employee, a caretaker, yadda yadda yadda. So in the past thirty days - I had that major business trip in Southern California where I had to prepare for and present to execs....survived yet another layoff (which created a great deal of stress), wrote scripts for a large meeting held here in Oregon by execs, ran the technical booth....in the middle of it all.....a dear friend of mine got married...and I prepared all the flowers, including bouquets, boutonnières, room decor, etc. for her lovely little wedding (two weeks ago) and just completed a major project that was sent to exec customers worldwide yesterday. As I write this...I'm getting more and more tired. I've been Christmas shopping, had a book club holiday event, decorated our home....ok.... I'm exhausted. Anyone would be, right? But exhaustion is different for me these days. It means I can't sleep. It means I have horrible headaches....heartburn....ibs.....pain. BUT, I finally gave in and started taking Prednizone, as my doctor had been pushing for well over a month. It's helped my pain a great deal and I don't think I could have gotten through the last month without it. I don't think Prednizone generally helps with Fibro, but because Sjorgerns is autoimmune - that may be why it's helping me. I know that both that syndrome and fibro have a number of cross-over symptoms. My son and his fiancé from Canada and my daughter and grandchildren (3 and 6) from SC are arriving next week - so we'll have a houseful ! While that may sound stressful in itself...I'm so looking forward to my family being together...I can't tell you how happy I am. I'm going to slow down now - or I think I'll break. I know I have to manage my own health and this illness requires that I pace myself. It's ironic that, just at the time when I needed to being pacing myself, my responsibilities escalated to heights a healthy 25 year old would have a hard time managing...let alone a "not so healthy" 52 year old! I'm attaching a pic of me working at the meeting here (running the technical booth) - a wedding pic to show you the flowers I did and the happy couple and a couple of pics of our home at Christmas. I haven't read many of the messages that have been coming through - but I'm back now and will offer support wherever I can. Love and Strength, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 interesting - that's the first time anyone has every mentioned that. As I said, I haven't been keeping up with the messages for the past several weeks...I'll talk to my doc about it. Thanks for the info, Janet -----Original Message-----From: jjw43837 Sent: Saturday, December 20, 2003 9:33 AMTo: Fibromyalgia_Support_Group Subject: Re: I'm back - missed participating! Like I keep saying to the group Janet ( which I don't seem to get response from) is you should check out the symptoms of sleep apnea. You have it sounds like a few, can't sleep , indigestion, and the biggie headaches. I don't know why it is so hard for people with Fibro to believe that most of have this affliction but we do. It is weird I find that we strive for help but when it is offered we get quiet. JJ I'm back - missed participating! Hi Family, I haven't posted much in weeks...My life has been nuts. It's funny, since my diagnosis of Fibro and Sjogerns....my life has been crazier than ever. As I've shared before, I have a full time job as an executive programs manager for a software company, have four kids, two still living at home (14 and 17) - a husband, a household, an aging mother we moved up to Oregon from California after my dad died a couple of years ago. So I'm a wife, a mom, an employee, a caretaker, yadda yadda yadda. So in the past thirty days - I had that major business trip in Southern California where I had to prepare for and present to execs....survived yet another layoff (which created a great deal of stress), wrote scripts for a large meeting held here in Oregon by execs, ran the technical booth....in the middle of it all.....a dear friend of mine got married...and I prepared all the flowers, including bouquets, boutonnières, room decor, etc. for her lovely little wedding (two weeks ago) and just completed a major project that was sent to exec customers worldwide yesterday. As I write this...I'm getting more and more tired. I've been Christmas shopping, had a book club holiday event, decorated our home....ok.... I'm exhausted. Anyone would be, right? But exhaustion is different for me these days. It means I can't sleep. It means I have horrible headaches....heartburn....ibs.....pain. BUT, I finally gave in and started taking Prednizone, as my doctor had been pushing for well over a month. It's helped my pain a great deal and I don't think I could have gotten through the last month without it. I don't think Prednizone generally helps with Fibro, but because Sjorgerns is autoimmune - that may be why it's helping me. I know that both that syndrome and fibro have a number of cross-over symptoms. My son and his fiancé from Canada and my daughter and grandchildren (3 and 6) from SC are arriving next week - so we'll have a houseful ! While that may sound stressful in itself...I'm so looking forward to my family being together...I can't tell you how happy I am. I'm going to slow down now - or I think I'll break. I know I have to manage my own health and this illness requires that I pace myself. It's ironic that, just at the time when I needed to being pacing myself, my responsibilities escalated to heights a healthy 25 year old would have a hard time managing...let alone a "not so healthy" 52 year old! I'm attaching a pic of me working at the meeting here (running the technical booth) - a wedding pic to show you the flowers I did and the happy couple and a couple of pics of our home at Christmas. I haven't read many of the messages that have been coming through - but I'm back now and will offer support wherever I can. Love and Strength, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Your welcome it has saved my life. Just be very picky on the Doctors you choose it is NOT a well chosen answer for alot of doctors. My belief is if we all felt better they would be broke. My GP REFUSED to believe or help me find a certified Doctor. I had to go find it myself. The first hospital that tested us said we were fine. Bull my partners lips turned blue at night. I pursued on to find a accredited doctor. I will include links below to help you. Please take charge of your own medical problems ! They will hurt you if you have total belief in them. http://www.aasmnet.org/listing.asp http://www.regin-inc.com/links/clinics.html JJ I'm back - missed participating! Hi Family, I haven't posted much in weeks...My life has been nuts. It's funny, since my diagnosis of Fibro and Sjogerns....my life has been crazier than ever. As I've shared before, I have a full time job as an executive programs manager for a software company, have four kids, two still living at home (14 and 17) - a husband, a household, an aging mother we moved up to Oregon from California after my dad died a couple of years ago. So I'm a wife, a mom, an employee, a caretaker, yadda yadda yadda. So in the past thirty days - I had that major business trip in Southern California where I had to prepare for and present to execs....survived yet another layoff (which created a great deal of stress), wrote scripts for a large meeting held here in Oregon by execs, ran the technical booth....in the middle of it all.....a dear friend of mine got married...and I prepared all the flowers, including bouquets, boutonnières, room decor, etc. for her lovely little wedding (two weeks ago) and just completed a major project that was sent to exec customers worldwide yesterday. As I write this...I'm getting more and more tired. I've been Christmas shopping, had a book club holiday event, decorated our home....ok.... I'm exhausted. Anyone would be, right? But exhaustion is different for me these days. It means I can't sleep. It means I have horrible headaches....heartburn....ibs.....pain. BUT, I finally gave in and started taking Prednizone, as my doctor had been pushing for well over a month. It's helped my pain a great deal and I don't think I could have gotten through the last month without it. I don't think Prednizone generally helps with Fibro, but because Sjorgerns is autoimmune - that may be why it's helping me. I know that both that syndrome and fibro have a number of cross-over symptoms. My son and his fiancé from Canada and my daughter and grandchildren (3 and 6) from SC are arriving next week - so we'll have a houseful ! While that may sound stressful in itself...I'm so looking forward to my family being together...I can't tell you how happy I am. I'm going to slow down now - or I think I'll break. I know I have to manage my own health and this illness requires that I pace myself. It's ironic that, just at the time when I needed to being pacing myself, my responsibilities escalated to heights a healthy 25 year old would have a hard time managing...let alone a "not so healthy" 52 year old! I'm attaching a pic of me working at the meeting here (running the technical booth) - a wedding pic to show you the flowers I did and the happy couple and a couple of pics of our home at Christmas. I haven't read many of the messages that have been coming through - but I'm back now and will offer support wherever I can. Love and Strength, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Janet - I've been taking prednisone for 9 years, long before I was diagnosed with fibro, and I know when I don't take it, the pain is worse, so I do think it does help with the fibro. It's an anti-inflammatory also, helps reduce swelling in joints, and also helps respiratory problems, so it really does help with the fibro too. Watch out for the weight gain monster thought, prednisone is awful for that. (It has other nasty side effects too, you might want to talk to your doctor about that.) Mindi I'm back - missed participating! Hi Family, I haven't posted much in weeks...My life has been nuts. It's funny, since my diagnosis of Fibro and Sjogerns....my life has been crazier than ever. As I've shared before, I have a full time job as an executive programs manager for a software company, have four kids, two still living at home (14 and 17) - a husband, a household, an aging mother we moved up to Oregon from California after my dad died a couple of years ago. So I'm a wife, a mom, an employee, a caretaker, yadda yadda yadda. So in the past thirty days - I had that major business trip in Southern California where I had to prepare for and present to execs....survived yet another layoff (which created a great deal of stress), wrote scripts for a large meeting held here in Oregon by execs, ran the technical booth....in the middle of it all.....a dear friend of mine got married...and I prepared all the flowers, including bouquets, boutonnières, room decor, etc. for her lovely little wedding (two weeks ago) and just completed a major project that was sent to exec customers worldwide yesterday. As I write this...I'm getting more and more tired. I've been Christmas shopping, had a book club holiday event, decorated our home....ok.... I'm exhausted. Anyone would be, right? But exhaustion is different for me these days. It means I can't sleep. It means I have horrible headaches....heartburn....ibs.....pain. BUT, I finally gave in and started taking Prednizone, as my doctor had been pushing for well over a month. It's helped my pain a great deal and I don't think I could have gotten through the last month without it. I don't think Prednizone generally helps with Fibro, but because Sjorgerns is autoimmune - that may be why it's helping me. I know that both that syndrome and fibro have a number of cross-over symptoms. My son and his fiancé from Canada and my daughter and grandchildren (3 and 6) from SC are arriving next week - so we'll have a houseful ! While that may sound stressful in itself...I'm so looking forward to my family being together...I can't tell you how happy I am. I'm going to slow down now - or I think I'll break. I know I have to manage my own health and this illness requires that I pace myself. It's ironic that, just at the time when I needed to being pacing myself, my responsibilities escalated to heights a healthy 25 year old would have a hard time managing...let alone a "not so healthy" 52 year old! I'm attaching a pic of me working at the meeting here (running the technical booth) - a wedding pic to show you the flowers I did and the happy couple and a couple of pics of our home at Christmas. I haven't read many of the messages that have been coming through - but I'm back now and will offer support wherever I can. Love and Strength, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 I have definitely been reading, with interest, all the sleep apnea suggestions, articles, and information. I still don't believe that I have sleep apnea but I could be wrong. I was SURE I did not have fibromyalgia for three years but this fourth year I am finally coming to terms with that, so ya just never know, LOL. I went down the symptom list and only had a few of the, what fifteen or so, can't remember. The thing I suffer from is falling asleep really late, then sleeping really late. Like today I slept til noon. I certainly feel well rested like I slept deep and well, but if I try to go to bed at 10pm tonight I can count on tossing and turning til 1am. Last night we went to bed at midnight and I watched some TV til after 1am, then fell right to sleep and stayed there. I had the most amazing adjustment friday at my chiropractor, my neck popped like it hasn't in ages! I was feeling really sick that day, very nauseous. As soon as my neck was popped, I instantly stopped feeling that queasy feeling and instantly felt a hunger pang. It was cool. But my chiro is not there this Friday, so I have to wait until Monday to go back. Today my neck is stiff, usually it's the left side, today it's my right side. Most days the stiffness goes away after a hot bath. Plus I've started using the Salonpas, those do help but it hurts a LOT to rip them off. Anyway that's my lil ol update. Melody > Like I keep saying to the group Janet ( which I don't seem to get response from) is you should check out the symptoms of sleep apnea. You have it sounds like a few, can't sleep , indigestion, and the biggie headaches. > I don't know why it is so hard for people with Fibro to believe that most of have this affliction but we do. It is weird I find that we strive for help but when it is offered we get quiet. > > JJ > ----- Original Message ----- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2003 Report Share Posted December 24, 2003 Hey Janet Welcome back. Wow you've been a busy lady! You've certainly earned a rest. Take care & Happy Holidays Nikki Hi Family, I haven't posted much in weeks...My life has been nuts. It's funny, since my diagnosis of Fibro and Sjogerns....my life has been crazier than ever. As I've shared before, I have a full time job as an executive programs manager for a software company, have four kids, two still living at home (14 and 17) - a husband, a household, an aging mother we moved up to Oregon from California after my dad died a couple of years ago. So I'm a wife, a mom, an employee, a caretaker, yadda yadda yadda. So in the past thirty days - I had that major business trip in Southern California where I had to prepare for and present to execs....survived yet another layoff (which created a great deal of stress), wrote scripts for a large meeting held here in Oregon by execs, ran the technical booth....in the middle of it all.....a dear friend of mine got married...and I prepared all the flowers, including bouquets, boutonnières, room decor, etc. for her lovely little wedding (two weeks ago) and just completed a major project that was sent to exec customers worldwide yesterday. As I write this...I'm getting more and more tired. I've been Christmas shopping, had a book club holiday event, decorated our home....ok.... ========I went to a bookstore and asked the saleswoman, "Where's the self-help section?" She said if she told me, it would defeat the purpose- Carlin________________________________"Early to bed and early to rise, makes me cranky and puffy 'round the eyes."-Savannah Reid, "Killer Calories" by G.A. McKevett Quote Link to comment Share on other sites More sharing options...
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