Geneticist in Atlanta who knows Chiari

[Guest guest]

I saw a geneticist who knows Chiari near Atlanta, GA this week. She sees both

children and ADULTS for genetics appointments, the wait is around three months

to get in and the visit and the extensive testing is covered by most insurance

companies.

She says there are a lot of Chiari patients who also have Mitochondrial

Disorders. She can run extensive genetic testing to see if you have " mito " as

well as Chiari.

If you have temperature problems or other dysautonomia symptoms along with

chiari you might have an underlying genetic condition. She can test for

metabolic, mitochondrial, and even a gene tied to connective tissue disorders.

Hope this helps someone else. How AMAZING to meet with a doctor who listens to

your symptoms and nods and says the words " I believe you! "

The clinic is called Pediatrics and Genetics Alpharetta GA

[Guest guest]

What is her name? I live in alpharetta

Sharon Lang

> I saw a geneticist who knows Chiari near Atlanta, GA this week. She sees both

children and ADULTS for genetics appointments, the wait is around three months

to get in and the visit and the extensive testing is covered by most insurance

companies.

>

> She says there are a lot of Chiari patients who also have Mitochondrial

Disorders. She can run extensive genetic testing to see if you have " mito " as

well as Chiari.

>

> If you have temperature problems or other dysautonomia symptoms along with

chiari you might have an underlying genetic condition. She can test for

metabolic, mitochondrial, and even a gene tied to connective tissue disorders.

>

> Hope this helps someone else. How AMAZING to meet with a doctor who listens to

your symptoms and nods and says the words " I believe you! "

>

> The clinic is called Pediatrics and Genetics Alpharetta GA

>

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