A post to thank everyone/ my stepmom is at peace now

[Guest guest]

Sara

My condolences to you and your family. You know your stepmom is at peace and

out of pain now.

Sending prayers and hugs

Jacqui in So Florida

[Guest guest]

This fall when I found this forum I was so happy... finally some

answers and good sense!! So many of you helped me in my struggle to

make sense of Lewy Body Disease. I only wish my father could have

known these things when he cared for my stepmom. Thank you to Carol in

Florida for giving me some of your precious time as well. She emailed

me and encouraged me to do some heavy thinking and healing.

My " Babe " passed last Thursday the 21st. It was peaceful but so sad

that her body just broke down. She would not let us nourish her other

than regular table food. I feel like she and my father starved to

death in a way but it was what they wanted. They both refused to put

special orders in place to prolong their lives. As hard as it was...I

will do the same for my children.

My heart is here for all of you wonderful caregivers. My one bit of

insight is this...when your loved one gets to the point that the meds

aren't really helping...stop them. I got my stepmom back for a few

months after I stopped her Nameda and Aricept. She was able to relax

and her mind cleared some...it got a little worse while the drugs

cleared out of her system but she finally woke up some. It was like

hitting the refresh key on the PC. I think sometimes those meds don't

work well in the later stages.

Love to all, Sara in NC

[Guest guest]

Dear Sara,

I am sorry to hear of your loss. So many have left us over this holiday season.

You sound

at peace. I hope that continues for you.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> This fall when I found this forum I was so happy... finally some

> answers and good sense!! So many of you helped me in my struggle to

> make sense of Lewy Body Disease. I only wish my father could have

> known these things when he cared for my stepmom. Thank you to Carol in

> Florida for giving me some of your precious time as well. She emailed

> me and encouraged me to do some heavy thinking and healing.

>

> My " Babe " passed last Thursday the 21st. It was peaceful but so sad

> that her body just broke down. She would not let us nourish her other

> than regular table food. I feel like she and my father starved to

> death in a way but it was what they wanted. They both refused to put

> special orders in place to prolong their lives. As hard as it was...I

> will do the same for my children.

>

> My heart is here for all of you wonderful caregivers. My one bit of

> insight is this...when your loved one gets to the point that the meds

> aren't really helping...stop them. I got my stepmom back for a few

> months after I stopped her Nameda and Aricept. She was able to relax

> and her mind cleared some...it got a little worse while the drugs

> cleared out of her system but she finally woke up some. It was like

> hitting the refresh key on the PC. I think sometimes those meds don't

> work well in the later stages.

>

>

> Love to all, Sara in NC

>

[Guest guest]

Sara.

My condolences to you and yours. I agree with you on the stopping of the meds

once you hit the point of no return. I have often thought long and hard about

why it is that our LO's stop wanting to eat and perhaps this is the last

decision they can make and want to make it for themselves - gotta respect that

even thought it causes us so much pain and second guessing. Sending you

strength.

Courage

[Guest guest]

Sara - Please accept my deepest condolences on the passing of your

stepmom. Too many of our LOs left us in such a short period of time.

But what is it that we say? -- they've WON their battle. And although I

had a rough AM, I know that is true. They're free from Lewy. As is your

stepmom -- free to be with her husband again.

[Guest guest]

Sara,

i am sorry to hear of your step mom, but i khow you are glad she is at peace

now, it is hard for us when they leave us, i still cry bout my daddy but it is

so much better for them, i truly belive those we love become our guardian

angels when they leave us. always remember that you were such a great caregiver

and helpedher have a quality of life that she may not have otherwise had. take

care and hugs, sharon m

---- stimtimminss wrote:

Dear Sara,

I am sorry to hear of your loss. So many have left us over this holiday season.

You sound

at peace. I hope that continues for you.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> This fall when I found this forum I was so happy... finally some

> answers and good sense!! So many of you helped me in my struggle to

> make sense of Lewy Body Disease. I only wish my father could have

> known these things when he cared for my stepmom. Thank you to Carol in

> Florida for giving me some of your precious time as well. She emailed

> me and encouraged me to do some heavy thinking and healing.

>

> My " Babe " passed last Thursday the 21st. It was peaceful but so sad

> that her body just broke down. She would not let us nourish her other

> than regular table food. I feel like she and my father starved to

> death in a way but it was what they wanted. They both refused to put

> special orders in place to prolong their lives. As hard as it was...I

> will do the same for my children.

>

> My heart is here for all of you wonderful caregivers. My one bit of

> insight is this...when your loved one gets to the point that the meds

> aren't really helping...stop them. I got my stepmom back for a few

> months after I stopped her Nameda and Aricept. She was able to relax

> and her mind cleared some...it got a little worse while the drugs

> cleared out of her system but she finally woke up some. It was like

> hitting the refresh key on the PC. I think sometimes those meds don't

> work well in the later stages.

>

>

> Love to all, Sara in NC

>

--

I am daugher of Leonard, diagnosed May 2004, probably had lbd since 1993,.Dad

had a serious fall in 7/05 causing him to hav hip surgery .After that he

developed aspiration pneumonia 7/05 with pulmonary embolyis, which he almost

died from. He had a 2nd bout of aspiration pneumonia and uti 8/05. He died when

his blood pressure fluctuations started dropping without coming back up on

9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

[Guest guest]

Dear Sara,

I am so sorry to read of the passing of your Stepmom...this is so

sad. I pray that you and your Dad are doing well.

My best,

Carol Incognito

>

> This fall when I found this forum I was so happy... finally some

> answers and good sense!! So many of you helped me in my struggle to

> make sense of Lewy Body Disease. I only wish my father could have

> known these things when he cared for my stepmom. Thank you to Carol

in

> Florida for giving me some of your precious time as well. She

emailed

> me and encouraged me to do some heavy thinking and healing.

>

> My " Babe " passed last Thursday the 21st. It was peaceful but so sad

> that her body just broke down. She would not let us nourish her

other

> than regular table food. I feel like she and my father starved to

> death in a way but it was what they wanted. They both refused to put

> special orders in place to prolong their lives. As hard as it

was...I

> will do the same for my children.

>

> My heart is here for all of you wonderful caregivers. My one bit of

> insight is this...when your loved one gets to the point that the

meds

> aren't really helping...stop them. I got my stepmom back for a few

> months after I stopped her Nameda and Aricept. She was able to relax

> and her mind cleared some...it got a little worse while the drugs

> cleared out of her system but she finally woke up some. It was like

> hitting the refresh key on the PC. I think sometimes those meds

don't

> work well in the later stages.

>

>

> Love to all, Sara in NC

>