Re: [Stills disease] Question **(ADULT)** OT Religous

[Guest guest]

Hi Kirk,

I also have the daily sore throats and often tested negative for strep but could

not believe how bad my throat hurt. I also get fevers daily and am so fatigued

I often take several days to get even a small project done. It is very

frustrating to me also since I was so active and working also up to 80 hours a

week and loving my job before I got sick with what is now called stills. I also

feel that I have had this illness for many years without a diagnosis I could

never do anything physical (i.e. working out or doing physical activity like

sports) due to muscle and joint pain and fatigue and would have sore throats

every couple of days with low grade fevers. Now I could not even keep a job due

to sleep, pain, and fatigue issues also. I was diagnosed with celiac disease

about 6 mo. before I was diagnosed with the stills I also have sleep apnea

myofacial pain syndrome arthritis and diabetes. I am taking a pill called

Januvia for my diabetes and have no side effects and feel great. Before the pill

I felt so bad every day and also got headaches when my sugar was high but not

anymore and I only check my blood sugar when I am not feeling good or once a

week and my sugars were in the 200-300 range and now are in the low 100’s . I

am on a fetanyl patch the lowest dose 12mcg/hr and it helps a lot I take

naproxen for breakthrough pain and it helps. I cannot get my prednisone down

below 5mg without a flare up though. Have you ever been to see a psychologist?

They will listen and do not prescribe medications so they are aimed at helping

you work through your issues without medication. Maybe your wife and kids can go

so they can understand your illness better. I hope you will keep in contact

with your stills family we understand and hopefully can help you in some way. I

will keep you in my thoughts and prayers.

Heidi

From: Kirk Bonanny

Sent: Tuesday, December 14, 2010 12:20 AM

To: Stillsdisease

Subject: Re: Question **(ADULT)**

I was diagnosed in of April '04...but most likely have had this for

much,much longer than that as I've had many of the symptoms since I was 18