Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Dear , If you are still online you can e-mail me. It is 2AM in California and I can not sleep. I am so concerned for Jim. I am sorry you are having such a rough time right now. I don't think you really had a chance to grieve with all that you had going on at the time with a job change and all. It must be very hard at this time of year. I can only imagine. My thoughts are with you and I hope that you will find peace soon......Love, Jan wrote: Having a tough morning. Christmas came and went. My SO and my sister worked hard to make it a happy time for me. Overall they were successful since most of my weekend was happy with them. But I'm still so sad. I had a migraine almost the whole weekend. Just wouldn't go away. Thankfully it's gone now. I was so tired too. I went to bed at 9 PM last night. But at 3 AM I was awake for the day. I'm tired, but can't sleep now. My tears this AM won't stop. I fell asleep for a bit and dreamt of my mom in that damn hospital that did her in. That hospital that gave her the Risperidol. The dream was of the day we went to visit her and found her all by herself on the hallway couch. She couldn't go into her bedroom for privacy b/c of the construction that was going on during the whole time she was there. She was too scared of the other residents to go into the common room. And that was the day we found the cut on her hand -- the cut she received when assaulted by another resident -- the same cut that when she told us and we talked to the nurses, they denied it, and we didn't believe her at first. When she was talking the truth. I finished reading that Mitch Albom's book " For One More Day " . If I had one more day with my mumsie -- I would apologize (again) for sending her to that hospital. I would ask forgiveness from her that I didn't choose to listen to my gut and not leave her there. That was the one thing I'll never be able to forgive myself for. I sensed it was a bad move, but instead of listening to my gut, I chose to listen to my surroundings and the doctors. Don't waste your breath -- I know what you'll say b/c you've said it to me before -- but I can never get it through my hard head that it wasn't my fault. Maybe if I heard from my mom that she forgives me I'll stop feeling the guilt. What else would I do if I had one more day? I would give her a BIG hug and kiss. And tell her " I love you more than you love me. " (That was a little ritual we would do back & forth.) I KNOW she's in a better place now. I KNOW she's out of pain. I KNOW she's dancing again. But I miss her so much. So much that it hurts. I feel like I'm lost. I have my SO. I have my sister and her family. I sort of have my brother and his wife (only via phone since he's mostly incognito in our lives.) But my life up until the point of my mom's death was very close and connected to my parents. We were a threesome. I was an " oopsie daisy " - my folks had me when mom was 38 and dad was 42. We were a team from my very beginning. From age 12 it was just the three of us living together. Now with them both gone now, I feel like a floater. No real ties anywhere. Most days I'm OK. But the grief comes in waves. And I'm just having a hard time right now. I'm so tired I want to go to bed -- but I would feel worse if I did so, since I'm to be awake for the day in a 1/2 hour anyway. Thanks again for listening. I hope you don't mind my venting. I do have a couple of things happening next month. My parents started a tradition years ago with our old church group - having an Epiphany Celebration in their home. Once my mother had moved into a smaller place the tradition continued at the church. They're having it again on 1/7 and it will be in honor of my mom. The priest is requesting that my sister & I read from some of my mother's writings (don't know exactly what he means by this -- not sure what writings he's referring to) so we'll do this. And I decided to have a 5-7 minute mini-movie made about my mom - using all those photos I had burned, home movies (we only have a few of those), etc. I'm using this company: http://www.hindsightmedia.net/ I've already talked to the owner (he did a project for my previous job and donated to the auction) - and we'll start this project in mid- January. I want to show mom's legacy in that mini-movie. I could have people interviewed for it too -- but not sure I'll go that route. I think this mini-movie could be therapeutic for me. And in the end have it burned for mom's siblings and my siblings. Thanks again everybody... ; loving daughter of Maureen of Boston, MA; dx'd with LBD in 2/2006; fell victim to rapid decline from Risperidone; Was successful on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept. 30th, 2006. Visit the LBDCaregivers board on the web: http://groups.yahoo.com/group/LBDcaregivers/ Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Jan, Sorry to hear Jim is having problems. I guess you are having problems. I am convinced Mom didn't have as much problem as I did.. She had a tough last month too. I didn't know it was her last month. I hope they keep him warm for you. It is little to ask. Do you work this week or is your school off for the week? At least this gives you more flexibility. I guess we are all up. Got to drop a note to . Hugs,, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Re: Having a tough morning... Dear , If you are still online you can e-mail me. It is 2AM in California and I can not sleep. I am so concerned for Jim. I am sorry you are having such a rough time right now. I don't think you really had a chance to grieve with all that you had going on at the time with a job change and all. It must be very hard at this time of year. I can only imagine. My thoughts are with you and I hope that you will find peace soon......Love, Jan wrote: Having a tough morning. Christmas came and went. My SO and my sister worked hard to make it a happy time for me. Overall they were successful since most of my weekend was happy with them. But I'm still so sad. I had a migraine almost the whole weekend. Just wouldn't go away. Thankfully it's gone now. I was so tired too. I went to bed at 9 PM last night. But at 3 AM I was awake for the day. I'm tired, but can't sleep now. My tears this AM won't stop. I fell asleep for a bit and dreamt of my mom in that damn hospital that did her in. That hospital that gave her the Risperidol. The dream was of the day we went to visit her and found her all by herself on the hallway couch. She couldn't go into her bedroom for privacy b/c of the construction that was going on during the whole time she was there. She was too scared of the other residents to go into the common room. And that was the day we found the cut on her hand -- the cut she received when assaulted by another resident -- the same cut that when she told us and we talked to the nurses, they denied it, and we didn't believe her at first. When she was talking the truth. I finished reading that Mitch Albom's book " For One More Day " . If I had one more day with my mumsie -- I would apologize (again) for sending her to that hospital. I would ask forgiveness from her that I didn't choose to listen to my gut and not leave her there. That was the one thing I'll never be able to forgive myself for. I sensed it was a bad move, but instead of listening to my gut, I chose to listen to my surroundings and the doctors. Don't waste your breath -- I know what you'll say b/c you've said it to me before -- but I can never get it through my hard head that it wasn't my fault. Maybe if I heard from my mom that she forgives me I'll stop feeling the guilt. What else would I do if I had one more day? I would give her a BIG hug and kiss. And tell her " I love you more than you love me. " (That was a little ritual we would do back & forth.) I KNOW she's in a better place now. I KNOW she's out of pain. I KNOW she's dancing again. But I miss her so much. So much that it hurts. I feel like I'm lost. I have my SO. I have my sister and her family. I sort of have my brother and his wife (only via phone since he's mostly incognito in our lives.) But my life up until the point of my mom's death was very close and connected to my parents. We were a threesome. I was an " oopsie daisy " - my folks had me when mom was 38 and dad was 42. We were a team from my very beginning. From age 12 it was just the three of us living together. Now with them both gone now, I feel like a floater. No real ties anywhere. Most days I'm OK. But the grief comes in waves. And I'm just having a hard time right now. I'm so tired I want to go to bed -- but I would feel worse if I did so, since I'm to be awake for the day in a 1/2 hour anyway. Thanks again for listening. I hope you don't mind my venting. I do have a couple of things happening next month. My parents started a tradition years ago with our old church group - having an Epiphany Celebration in their home. Once my mother had moved into a smaller place the tradition continued at the church. They're having it again on 1/7 and it will be in honor of my mom. The priest is requesting that my sister & I read from some of my mother's writings (don't know exactly what he means by this -- not sure what writings he's referring to) so we'll do this. And I decided to have a 5-7 minute mini-movie made about my mom - using all those photos I had burned, home movies (we only have a few of those), etc. I'm using this company: http://www.hindsightmedia.net/ I've already talked to the owner (he did a project for my previous job and donated to the auction) - and we'll start this project in mid- January. I want to show mom's legacy in that mini-movie. I could have people interviewed for it too -- but not sure I'll go that route. I think this mini-movie could be therapeutic for me. And in the end have it burned for mom's siblings and my siblings. Thanks again everybody... ; loving daughter of Maureen of Boston, MA; dx'd with LBD in 2/2006; fell victim to rapid decline from Risperidone; Was successful on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept. 30th, 2006. Visit the LBDCaregivers board on the web: http://groups.yahoo.com/group/LBDcaregivers/ Welcome to LBDcaregivers. 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Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 , You can vent and grieve any time you want here. I know you know that. Wish I could be there to really give you a big hug. From all you wrote about your Mom and all you did for her, I can imagine her saying, " It's ok. " You did all you could. And even if you suspect stuff, it is hard to know for sure. I know you had no bad intent to your Mom and I know she knows it too. We can all only do the best we can at the time. Can't go back and redo, none of us. Hope the head aches go away. If you are tired, may want to get some Melatonin for yourself. I take it when I need sleep and can't get it. I do know the guilt. And if any of us had a better picture and could predict the future, we might have done lots of things different. It sounds like you were so close to her and your Dad too. And that floating feeling I know. I didn't have any family after Mom died and now I am the oldest one in my family. I have always had someone " bigger " than me. Not any more. Let yourself rest as much as you can. Do good things for yourself or ask others to make you do good things for yourself if you are having a hard time do it. You deserve some peace, even while you grieve. Much as we want to do what we do, we can't control another's path. Keep well and call if you need to. Hugs, and more hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Having a tough morning... Having a tough morning. Christmas came and went. My SO and my sister worked hard to make it a happy time for me. Overall they were successful since most of my weekend was happy with them. But I'm still so sad. I had a migraine almost the whole weekend. Just wouldn't go away. Thankfully it's gone now. I was so tired too. I went to bed at 9 PM last night. But at 3 AM I was awake for the day. I'm tired, but can't sleep now. My tears this AM won't stop. I fell asleep for a bit and dreamt of my mom in that damn hospital that did her in. That hospital that gave her the Risperidol. The dream was of the day we went to visit her and found her all by herself on the hallway couch. She couldn't go into her bedroom for privacy b/c of the construction that was going on during the whole time she was there. She was too scared of the other residents to go into the common room. And that was the day we found the cut on her hand -- the cut she received when assaulted by another resident -- the same cut that when she told us and we talked to the nurses, they denied it, and we didn't believe her at first. When she was talking the truth. I finished reading that Mitch Albom's book " For One More Day " . If I had one more day with my mumsie -- I would apologize (again) for sending her to that hospital. I would ask forgiveness from her that I didn't choose to listen to my gut and not leave her there. That was the one thing I'll never be able to forgive myself for. I sensed it was a bad move, but instead of listening to my gut, I chose to listen to my surroundings and the doctors. Don't waste your breath -- I know what you'll say b/c you've said it to me before -- but I can never get it through my hard head that it wasn't my fault. Maybe if I heard from my mom that she forgives me I'll stop feeling the guilt. What else would I do if I had one more day? I would give her a BIG hug and kiss. And tell her " I love you more than you love me. " (That was a little ritual we would do back & forth.) I KNOW she's in a better place now. I KNOW she's out of pain. I KNOW she's dancing again. But I miss her so much. So much that it hurts. I feel like I'm lost. I have my SO. I have my sister and her family. I sort of have my brother and his wife (only via phone since he's mostly incognito in our lives.) But my life up until the point of my mom's death was very close and connected to my parents. We were a threesome. I was an " oopsie daisy " - my folks had me when mom was 38 and dad was 42. We were a team from my very beginning. From age 12 it was just the three of us living together. Now with them both gone now, I feel like a floater. No real ties anywhere. Most days I'm OK. But the grief comes in waves. And I'm just having a hard time right now. I'm so tired I want to go to bed -- but I would feel worse if I did so, since I'm to be awake for the day in a 1/2 hour anyway. Thanks again for listening. I hope you don't mind my venting. I do have a couple of things happening next month. My parents started a tradition years ago with our old church group - having an Epiphany Celebration in their home. Once my mother had moved into a smaller place the tradition continued at the church. They're having it again on 1/7 and it will be in honor of my mom. The priest is requesting that my sister & I read from some of my mother's writings (don't know exactly what he means by this -- not sure what writings he's referring to) so we'll do this. And I decided to have a 5-7 minute mini-movie made about my mom - using all those photos I had burned, home movies (we only have a few of those), etc. I'm using this company: http://www.hindsightmedia.net/ I've already talked to the owner (he did a project for my previous job and donated to the auction) - and we'll start this project in mid- January. I want to show mom's legacy in that mini-movie. I could have people interviewed for it too -- but not sure I'll go that route. I think this mini-movie could be therapeutic for me. And in the end have it burned for mom's siblings and my siblings. Thanks again everybody... ; loving daughter of Maureen of Boston, MA; dx'd with LBD in 2/2006; fell victim to rapid decline from Risperidone; Was successful on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept. 30th, 2006. Visit the LBDCaregivers board on the web: http://groups.yahoo.com/group/LBDcaregivers/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 We all know what you mean about guilt feelings. If only we could go back and correct our mistakes. But being human that is not possible. I am glad you have your SO to hold your hand and head (I know what migraines are) during this time. This year I missed both my parents more than last year. We were at their house to celebrate Christmas Eve and the laughter and joy of the kids made me think about them. I know they were there with us in spirit if not in person. Jan 7th would have been their 69th anniversary. Your Mom was very talented in many ways so maybe the priest has some of her writings. That might be what he is talking about. The movie sounds great and should be theraputic for you. Like you, my parents and I became a team the last 30 yrs of their lives. I moved in next door to them and we helped each other out when needed. First they helped me raise 6 kids then I helped them in old age. I was a lone caregiver when they needed it. And like you I did it out of love not duty. I think most caregivers do it out of love. As this board shows we are there because we want to be not because we have to be. If I could go back and change one thing it would be that she would not have gone to the hospice unit at the end. I would have kept her at home so she could die with her family around her. No matter how hard it would have been. How many times have you told someone on this board not to apologize for venting? WELLLL don't apologize now. I am glad you still feel free to vent here. I send you Hugs and a shoulder to cry on and maybe some tissues also, Jacqui in So Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Hi , Hope today finds you feeling better. Nothing wrong with getting emotional (migranes we could do without). I got the book for Christmas. He always makes me cry anyway...I can't imagine reading it with all of the raw emotions that you have. It's good for the soul to let them out. Please don't blame yourself...you are a very devoted daughter and are lucky to have had such a close relationship with both of your parents. I hope the sun shines on you today. Take care, Daughter of Bill, 91 > > Having a tough morning. Christmas came and went. My SO and my sister > worked hard to make it a happy time for me. Overall they were > successful since most of my weekend was happy with them. But I'm > still so sad. I had a migraine almost the whole weekend. Just > wouldn't go away. Thankfully it's gone now. I was so tired too. I > went to bed at 9 PM last night. But at 3 AM I was awake for the day. > I'm tired, but can't sleep now. My tears this AM won't stop. I fell > asleep for a bit and dreamt of my mom in that damn hospital that did > her in. That hospital that gave her the Risperidol. The dream was of > the day we went to visit her and found her all by herself on the > hallway couch. She couldn't go into her bedroom for privacy b/c of > the construction that was going on during the whole time she was > there. She was too scared of the other residents to go into the > common room. And that was the day we found the cut on her hand -- the > cut she received when assaulted by another resident -- the same cut > that when she told us and we talked to the nurses, they denied it, > and we didn't believe her at first. When she was talking the truth. I > finished reading that Mitch Albom's book " For One More Day " . > > If I had one more day with my mumsie -- I would apologize (again) for > sending her to that hospital. I would ask forgiveness from her that I > didn't choose to listen to my gut and not leave her there. That was > the one thing I'll never be able to forgive myself for. I sensed it > was a bad move, but instead of listening to my gut, I chose to listen > to my surroundings and the doctors. Don't waste your breath -- I know > what you'll say b/c you've said it to me before -- but I can never > get it through my hard head that it wasn't my fault. Maybe if I heard > from my mom that she forgives me I'll stop feeling the guilt. > > What else would I do if I had one more day? I would give her a BIG > hug and kiss. And tell her " I love you more than you love me. " (That > was a little ritual we would do back & forth.) I KNOW she's in a > better place now. I KNOW she's out of pain. I KNOW she's dancing > again. But I miss her so much. So much that it hurts. I feel like I'm > lost. I have my SO. I have my sister and her family. I sort of have > my brother and his wife (only via phone since he's mostly incognito > in our lives.) But my life up until the point of my mom's death was > very close and connected to my parents. We were a threesome. I was > an " oopsie daisy " - my folks had me when mom was 38 and dad was 42. > We were a team from my very beginning. From age 12 it was just the > three of us living together. Now with them both gone now, I feel like > a floater. No real ties anywhere. > > Most days I'm OK. But the grief comes in waves. And I'm just having a > hard time right now. I'm so tired I want to go to bed -- but I would > feel worse if I did so, since I'm to be awake for the day in a 1/2 > hour anyway. Thanks again for listening. I hope you don't mind my > venting. > > I do have a couple of things happening next month. My parents started > a tradition years ago with our old church group - having an Epiphany > Celebration in their home. Once my mother had moved into a smaller > place the tradition continued at the church. They're having it again > on 1/7 and it will be in honor of my mom. The priest is requesting > that my sister & I read from some of my mother's writings (don't know > exactly what he means by this -- not sure what writings he's > referring to) so we'll do this. And I decided to have a 5-7 minute > mini-movie made about my mom - using all those photos I had burned, > home movies (we only have a few of those), etc. I'm using this > company: http://www.hindsightmedia.net/ > I've already talked to the owner (he did a project for my previous > job and donated to the auction) - and we'll start this project in mid- > January. I want to show mom's legacy in that mini-movie. I could have > people interviewed for it too -- but not sure I'll go that route. I > think this mini-movie could be therapeutic for me. And in the end > have it burned for mom's siblings and my siblings. > > Thanks again everybody... > > ; loving daughter of Maureen of Boston, MA; dx'd with LBD in > 2/2006; fell victim to rapid decline from Risperidone; Was successful > on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept. > 30th, 2006. > > Visit the LBDCaregivers board on the web: > http://groups.yahoo.com/group/LBDcaregivers/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Dear , I feel your grief. It was a difficult holiday in our home as well, having lost Mom in the summer, FIL in the spring and Mom's boyfriend of 15 years last winter, the closest I had to a dad since 1960. For my children, it was like they lost 3 grandparents since last Christmas. MIL was very sad but tried to hold herself together for us all. Yes, the grief, acknowledgement of loss hits unexpectantly and in waves. Having family near helps, but the nights with their dreams and memories are the worst. They had faded, but have returned with the season. The woulda coulda shoulda accompanies the memories, but none of us can go into the caregiving role with the hindsight that would help. As long as we know we did the best we could at the time, I am sure our los would not want us beating ourselves up over the very difficult decisions we must make for someone we love. Your love for and dedication to your mother was and remains obvious to us all. Your tribute in January should be very meaningful. , Oakville Ont. Mother, age 92, died Aug. 12/06 after 13 year decline from PDD > > Having a tough morning. Christmas came and went. My SO and my sister > worked hard to make it a happy time for me. Overall they were > successful since most of my weekend was happy with them. But I'm > still so sad. I had a migraine almost the whole weekend. Just > wouldn't go away. Thankfully it's gone now. I was so tired too. I > went to bed at 9 PM last night. But at 3 AM I was awake for the day. > I'm tired, but can't sleep now. My tears this AM won't stop. I fell > asleep for a bit and dreamt of my mom in that damn hospital that did > her in. That hospital that gave her the Risperidol. The dream was of > the day we went to visit her and found her all by herself on the > hallway couch. She couldn't go into her bedroom for privacy b/c of > the construction that was going on during the whole time she was > there. She was too scared of the other residents to go into the > common room. And that was the day we found the cut on her hand -- the > cut she received when assaulted by another resident -- the same cut > that when she told us and we talked to the nurses, they denied it, > and we didn't believe her at first. When she was talking the truth. I > finished reading that Mitch Albom's book " For One More Day " . > > If I had one more day with my mumsie -- I would apologize (again) for > sending her to that hospital. I would ask forgiveness from her that I > didn't choose to listen to my gut and not leave her there. That was > the one thing I'll never be able to forgive myself for. I sensed it > was a bad move, but instead of listening to my gut, I chose to listen > to my surroundings and the doctors. Don't waste your breath -- I know > what you'll say b/c you've said it to me before -- but I can never > get it through my hard head that it wasn't my fault. Maybe if I heard > from my mom that she forgives me I'll stop feeling the guilt. > > What else would I do if I had one more day? I would give her a BIG > hug and kiss. And tell her " I love you more than you love me. " (That > was a little ritual we would do back & forth.) I KNOW she's in a > better place now. I KNOW she's out of pain. I KNOW she's dancing > again. But I miss her so much. So much that it hurts. I feel like I'm > lost. I have my SO. I have my sister and her family. I sort of have > my brother and his wife (only via phone since he's mostly incognito > in our lives.) But my life up until the point of my mom's death was > very close and connected to my parents. We were a threesome. I was > an " oopsie daisy " - my folks had me when mom was 38 and dad was 42. > We were a team from my very beginning. From age 12 it was just the > three of us living together. Now with them both gone now, I feel like > a floater. No real ties anywhere. > > Most days I'm OK. But the grief comes in waves. And I'm just having a > hard time right now. I'm so tired I want to go to bed -- but I would > feel worse if I did so, since I'm to be awake for the day in a 1/2 > hour anyway. Thanks again for listening. I hope you don't mind my > venting. > > I do have a couple of things happening next month. My parents started > a tradition years ago with our old church group - having an Epiphany > Celebration in their home. Once my mother had moved into a smaller > place the tradition continued at the church. They're having it again > on 1/7 and it will be in honor of my mom. The priest is requesting > that my sister & I read from some of my mother's writings (don't know > exactly what he means by this -- not sure what writings he's > referring to) so we'll do this. And I decided to have a 5-7 minute > mini-movie made about my mom - using all those photos I had burned, > home movies (we only have a few of those), etc. I'm using this > company: http://www.hindsightmedia.net/ > I've already talked to the owner (he did a project for my previous > job and donated to the auction) - and we'll start this project in mid- > January. I want to show mom's legacy in that mini-movie. I could have > people interviewed for it too -- but not sure I'll go that route. I > think this mini-movie could be therapeutic for me. And in the end > have it burned for mom's siblings and my siblings. > > Thanks again everybody... > > ; loving daughter of Maureen of Boston, MA; dx'd with LBD in > 2/2006; fell victim to rapid decline from Risperidone; Was successful > on Celexa, Exelon, ALA & B1; Mom became my Guardian Angel on Sept. > 30th, 2006. > > Visit the LBDCaregivers board on the web: > http://groups.yahoo.com/group/LBDcaregivers/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 HI , Your email really touched my heart. You have had to go through a lot and I really do believe that once x-mas is over we can be overwhelmed with feelings of sadness - I think its the big build up and then nothing. Also, its understandable that you feel like an orphan now and reading that book, I'm sure it was good, didn't help either. Sending you a comforting hug and strength for better days ahead. Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 As always, thank you! Needed to vent and you all were there again. Thanks! And it probably has to do with the 'end of holiday blues' -- I've always been a big fan of Christmas -- and you're so right... all the excitement and build up... then poof it's gone for another year. And having it be the first year w/out Mumsie during the holidays was tough, I won't lie. Even shopping this year... I kept finding 'that perfect gift' for her. I think I'm gonna go out this coming weekend and find some 'perfect gifts' for ME. LOL... Anyway -- thanks again. And we all need to hang in there... Quote Link to comment Share on other sites More sharing options...
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