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Like Sally, I've been around the Chiari block a few times and she is right.

I have first-hand experience regarding neurosurgeons and neurologists who

are not qualified in the nuances of Chiari to treat you or even tell you how

severe it is.

My suggestion is to look at the doctors involved in some of the national

organizations, such as ASAP and others. They have a special interest in this

area and treat patients with it frequently.

I cannot recall right now what the other organizations are with a medical

board. . . . perhaps someone else can help me out here.

Be willing to travel.

Suzanne Hill

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