Re: Re: Professional golfer has chiari

[Guest guest]

I know I would too! By all means to get a public figure to bring awareness to

our condition would be so wonderful! And we might get more money for research!

Let us know what we can do to help!!!

Bea

Sent from my Verizon Wireless BlackBerry

Re: Professional golfer has chiari

Wow go for it! I would love to see him make a public statement about

it!

[Guest guest]

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We all wish upon a star so to speak! Lol

Our condition goes without spoke word to this group, needs all the help in the

world!

It's pulling together and all of us doing what we can will make a difference in

so many areas of red tape that we run across to get the treatment so desperately

need or even a little help creating groups to give our families the support and

knowledge of our condition!

Today is one of my good days and I thought I would put out a very big thank you

while I can this week!

We understand there are so many limitations and something is not going to be a

sure win all the time, but boy the try is wonderful and very much appreciated!

As my four year old son just started saying!

Let's go Chiari Power!

(Yes, he has a Chiari, too!)

Bea and Connor Yung

Sent from my Verizon Wireless BlackBerry

Re: Professional golfer has chiari

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> Wow go for it! I would love to see him make a public statement about

> it!

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