My Current Flare & Prednisone

[Guest guest]

Hi There-

New to this group- I think I may have posted once--

Question- anyone get or feel worse on Prednisone?

I havent had a flare in 5 yrs at age 40-- until this August with an acute case

(now chronic) of Iritis/Uveaitis--

Mostly the pred drops were working initially- but I still experienced eye pain-

so the Rheumy gave me 15mg of prednisone-- which I've been on for 10 days-

bumping now to 20mg after speaking to him.--

I feel worse since taking the prednisone- stiffer/achier/- everything is

popping/snapping now (neck, back, ankles, fingers)-- up until this past year I

had very little joint involvement. My rheumy is strongly suggesting Kineret or

Enbrel- he handles a few Still's cases and believes in being proactive- that

there is a steady progression of the disease even with little serological

evidence.

I have had Still's since Age 16- in 1981. It took over a year for a definitive

diagnosis- a wonderful infectious md at Tufts (Sheldon Wolfe, rest in peace)

spotted the classic rash during one of my cyclical fever flares- I started

steroids after that until my mid-20s-- I was pretty good for almost 15 yrs.

Regards and Be Well,

-Larry

[Guest guest]

Hi Larry,

You mentioned that you have a rheumatologist who treats a few cases. Any

chance he/she might be near Providence, RI or even Boston, MA?

Phyllis

[Guest guest]

I would like to try anakinra as well. But for now doctors only give me MTX

(I hate it)…

Judite