Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 Ditto the thanks for a heads up on the MC thing. I have been off list a long time and am frustrated by the list of seemingly unrelated problems I am having. Not sure my current docs will be up to speed on MC, but I will ask. Hanna Sent via BlackBerry by AT & T Mast Cell connection to POTS, EDS, Chiari, possibly MS and others Dear All, First of all, thank you for introducing the group today, to the possibility of Mast Cell involvement in our problems, how right I think you are!! It's a topic I've been SOOooo busy investigating myself. Having spent the last 2 weeks trying to get my head around it, I feel very encouraged (and excited) by what I've learnt. The latest research I think, will connect many, if not all of our symptoms to a set of unfortunate bodily circumstances, previously undiscovered (that we are probably all suffering from, to one degree or another). It's not 'just' Mast Cell Activation problems - that's only part of the picture. This is GREAT NEWS, as it gives us hope for the future (particularly to those of us that can't get surgery). The new treatment protocol that's being developed, will hopefully lead to much better management of our symptoms, so that we can gain control of our bodies once again. The best information I have found on this subject, is included in an extensive study carried out by a member of the medical profession, a Dr Driscoll, who suffers from the condition herself (and her children) - what better motivation can you have, to find the answers!!! It's called The Driscoll Theory, take a look at her web-site www.prettyill.com. You can download a copy of part 1 for free from this site. If you want the more detailed version, part 2, you'll have to download it via Amazon - but it's a very low price, so don't worry - and worth every penny. There are lots of informative videos on Dr 's web-site. I'm sure you'll find some answers there. Regards Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2012 Report Share Posted April 29, 2012 I HIGHLY doubt they will be. I suggest doing your own research. It is a lot like acm--not well or widely understood. From my HTC Sensation 4G on T-Mobile. The first nationwide 4G network ----- Reply message ----- To: " thatbarbaralady " , " " < > Subject: Mast Cell connection to POTS, EDS, Chiari, possibly MS and others Date: Sat, Apr 28, 2012 9:34 am Ditto the thanks for a heads up on the MC thing. I have been off list a long time and am frustrated by the list of seemingly unrelated problems I am having. Not sure my current docs will be up to speed on MC, but I will ask. Hanna Sent via BlackBerry by AT & T Mast Cell connection to POTS, EDS, Chiari, possibly MS and others  Dear All, First of all, thank you for introducing the group today, to the possibility of Mast Cell involvement in our problems, how right I think you are!! It's a topic I've been SOOooo busy investigating myself. Having spent the last 2 weeks trying to get my head around it, I feel very encouraged (and excited) by what I've learnt. The latest research I think, will connect many, if not all of our symptoms to a set of unfortunate bodily circumstances, previously undiscovered (that we are probably all suffering from, to one degree or another). It's not 'just' Mast Cell Activation problems - that's only part of the picture. This is GREAT NEWS, as it gives us hope for the future (particularly to those of us that can't get surgery). The new treatment protocol that's being developed, will hopefully lead to much better management of our symptoms, so that we can gain control of our bodies once again. The best information I have found on this subject, is included in an extensive study carried out by a member of the medical profession, a Dr Driscoll, who suffers from the condition herself (and her children) - what better motivation can you have, to find the answers!!! It's called The Driscoll Theory, take a look at her web-site www.prettyill.com. You can download a copy of part 1 for free from this site. If you want the more detailed version, part 2, you'll have to download it via Amazon - but it's a very low price, so don't worry - and worth every penny. There are lots of informative videos on Dr 's web-site. I'm sure you'll find some answers there. Regards Barbara (UK) ------------------------------------ Please Visit Our Website at: http://www.chiariconnectioninternational.com/ Lots Of Information That May Be Helpful Quote Link to comment Share on other sites More sharing options...
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