Re: Growth Hormone - and other hormonal links to chiari

[Guest guest]

,

When I went to the Chiari Institute I found a video there, which is also at

his web page and it explains that with Chiari, as the CSF is not circulating

properly as it is not going down at the posterior fossa, the CSF accumulates

in our brain, and then it starts pressuring the pituitary gland downwards so

it does not work properly either. You know that the pituitary gland is the

master of all hormones of our body, it works by sending messages to the rest

ot the organs that produces hormones from the thyroid gland to the pancrdeas

and ovaries if you are a woman. It also produces some hormones like the

prolactine (hormone in charge of milk production when you are pregnant).

Because of the CSF pressure over the pituitary gland many of us has hormonal

problems, but it varies, as the amount of pressure and place of pressure in

the pituitary gland from the CSF is not the same for everybody so these

problems are different, some of us could have hypothyroidism, others lke me

have high prolactine even though I am not pregnant, I started wit it since I

was 30 years old, I once heard that there was this girl with high glucose,

like if she had diabetis, but as soon as she has surgery this improve, so it

seems that pendingo on the improvement you gain with the CSF circulation

after surgery, you could have a little improvement in the hormonal problems

too. However in some cases, like mine we are already damaged so we need to

take hormones all our lives!! Go to the TCI web pages, and look for this

video it explain it better than me. But is you are seeing Dr. B, he would

know how to do it.

I hope this serves.

De:

Responder a: < >

Fecha: viernes 8 de junio de 2012 16:27

Para: < >

Asunto: Growth Hormone - and other hormonal

links to chiari

[Guest guest]

Hi and All,

Well , I've got to agree with you whole-heartedly

as I'm convinced that our 'condition' has a Growth Hormone

Deficiency element to it, for many of us.

Let's look at some of the CLINICAL SIGNS

that suggest Severe Growth Hormone Deficiency:

Empty Sella - Do I have this sign ?

YES (MRI evidence).

Elevated Total Cholesterol & LDL - Do I have this sign ?

YES (blood tests).

Increased Inflammatory Markers - Do I have this sign ?

YES (raised C-Reactive protein levels).

Raised liver enzymes - Do I have this sign ?

Intermittently YES

(raised ESR blood tests

raised Alkaline Phosphotase blood tests

raised Alanine Transaminase blood tests).

Increased Abdominal Fat (Pendulous abdomen) -

Do I have this sign ? er, unfortunately, YES.

Reduced Extra-cellular fluid volume - Do I have this sign ?

YES (my skin doesn't 'spring back' when pressed).

Thin and Dry Skin - Do I have this sign ?

YES (very dry backs of hands and lower legs).

Increased Cardio Vascular Risk - Do I have this sign ?

YES (I've had a list of strange events, including P.E.).

What about CLINICAL HISTORY, the common

known features are below. Do I complain of:

Reduced Muscle Strength –

YES All over, got progressively worse since accident.

Reduced Energy Levels –

YES Difficulties even with small tasks

Reduced Exercise Capacity –

YES No endurance of any level

Impaired Thinking –

YES Concentration and short-term memory issues

Intolerance to Cold –

YES Thermo-regulatory problems since accident

Increased Weight –

YES Never weighed more than 10st 4lbs, now 14+st!

Thin and Dry Skin –

YES Rife by 2004

Do these Signs & Symptoms sound familiar to anyone ?

I managed to persuade my doctor to send me to the

Endocrinologist for testing and their initial 'base' test

showed:

low IGF-1 of 3.2 (normal value range 11-31)

Undetectable growth hormone

They checked my adrenals were working ok,

then gave me a Glucagon Test which didn't elicit

sufficient Growth Hormone. They said I would be being

called in, to show me how to administer the HGH drug.

The next thing I knew I was being called in for yet another

test, The Insulin Tolerance Test (ITT), which, for some

fluke of a reason, I passed!! So they said I wouldn't be

getting Human Growth Hormone (HGH) after all.

I couldn't believe it!

I researched why this might be and found that none of

the tests are 100% and ITT's not particularly suitable for

Traumatic Brain Injury (remember all this started when

I banged my head). My suspicion is, that they kept

testing me until one came back normal, as the HGH

drug is very costly!

Dr B's videos at TCI explain how raised intracranial

pressure can flatten our pituitary gland over time, which

affects the release of Growth Hormone and although

obtaining growth hormone should certainly help deal

with the symptoms, the best solution would be if we

could remove the cause (i.e. lower the intracranial

pressure). This video also explains that the pituitary

gland can recover and start to do it's job properly - yeah!

Regards

Barbara

(UK)

[Guest guest]

Barbara:

Many of the symptoms you have are from the thyroid gland. I have many of

those which are completely relieve by taking levothyroxin (I do not know how

to tell it in English), which is the hormone doctors give you when you have

hypothyroidism.

For the thyroid gland to work well there is chain of command: the

hypothalamus, a part of the brain that is located over the pituitary gland

send a message to the pitutuitary gland, then the it sends a message to the

thyroid gland which releases the thryoid hormones.

When this chain of command is not working well then you can have one of the

three kinds of hyperthyroidism: primary when the thyroid gland is not

working well, secondary when the pituitary gland is not working well and it

is not sending the messages to the thyroid gland, so it does not work

either, and terciary when the hypothalamus is not working well so it does

not send the message for the pituitary gland to work, then it does not send

the message to the thyroid gland either. In the case of Chiari we normally

have secondary or terciary hypothiroidism, the most common is the secondary

one. In the case of the secondary type your thyroid looks well in the image

studies but your blood thyroid hormones are low, in the case of the tertiary

one you have your thyroid perfect, and the blood levels are just a little,

but very little down, almost like the normal levels, so many doctors does

not give you anything at all. This is my case. But my doctor said: lets

prove with a little amount of thyroid hormones because you have the symptoms

of thyroid deficiency eventhough our blood test are almost normal, so he

gave me the lowest, lowest dosage and my life changed!! Many doctors will

not give it to you with the levels I have but in my case my doctor is wide

opend, and it really worked and my life did changed, particularly tiredness

this really improve with the thyroid hormones, my skin, getting fat easily

even on a diet, being cold, etc.

Considering your own list these are the symptoms related to thyroid

defficiency hormones that I know:

Elevated Total Cholesterol & LDL - Do I have this sign ?

YES (blood tests).

Thin and Dry Skin - Do I have this sign ?

YES (very dry backs of hands and lower legs).

Impaired Thinking ­

YES Concentration and short-term memory issues

Intolerance to Cold ­

YES Thermo-regulatory problems since accident

Increased Weight ­

YES Never weighed more than 10st 4lbs, now 14+st!

Thin and Dry Skin ­

YES Rife by 2004

This is the list of symptoms so you can check more:

* Fatigue

* Sluggishness

* Increased sensitivity to cold

* Constipation

* Pale, dry skin

* A puffy face

* Hoarse voice

* An elevated blood cholesterol level

* Unexplained weight gain

* Muscle aches, tenderness and stiffness

* Pain, stiffness or swelling in your joints

* Muscle weakness

* Heavier than normal menstrual periods

* Brittle fingernails and hair

* Depression

I am not saying that you do not have HGH deficiency I am saying that perhaps

you have a thyroid problem too, due to the ICP as all of us have, perhaps

you can check it and you will feel better.

I hope this serves.

De:

Responder a: < >

Fecha: sábado 9 de junio de 2012 18:35

Para: < >

Asunto: Re: Growth Hormone - and other

hormonal links to chiari

Hi and All,

Well , I've got to agree with you whole-heartedly

as I'm convinced that our 'condition' has a Growth Hormone

Deficiency element to it, for many of us.

Let's look at some of the CLINICAL SIGNS

that suggest Severe Growth Hormone Deficiency:

Elevated Total Cholesterol & LDL - Do I have this sign ?

YES (blood tests).

Thin and Dry Skin - Do I have this sign ?

YES (very dry backs of hands and lower legs).

Impaired Thinking ­

YES Concentration and short-term memory issues

Intolerance to Cold ­

YES Thermo-regulatory problems since accident

Increased Weight ­

YES Never weighed more than 10st 4lbs, now 14+st!

Thin and Dry Skin ­

YES Rife by 2004

[Guest guest]

Very interesting thread. The items you listed, I have almost all of them. I am

working with a dr. who is up to date on thyroid and bio-identical HRT. My tests

come up hypo- to normal thyroid.

My Chiari showed up early, 6 years old, but was not diagnosed until my

mid-40's. I had my first migraine at age 9, so its been a long and interesting

life of trying to live while working around problems that were seemingly

un-fixable. I was a late bloomer from height, ability to ride a bike, reading,

girl stuff. Luckily my birthaday was September so they held me back to start at

6, then turn 7 rather than 5 to turn 6. So, I was not behind in school. But my

Chiari journey is a whole 'nother story.

This really makes sense that pituitary was inhibited from the beginning.

I have taken synthetic thyroid for years for hypo-thyroid and now I take Armour

thyroid. The only improvement I get is a little (just a little) increase in

energy and my hair stopped falling out. Every Dr. tells me to lose

10-20 lbs , and I can't. As for all the rest, I have no improvement in spite of

exercise, watching what I eat, etc. And I have wild fluctuations in tolerance

to cold and heat. I radiate heat. I have for years that someone can feel it up

to 2 feet away from me. And yet I can get freezing cold while radiating heat.

Now, I have hot flashes and constantly I am too hot, but I can't stand cold air

actually blowing on me.

The list someone posted: Let's look at some of the CLINICAL SIGNS

that suggest Severe Growth Hormone Deficiency:

Elevated Total Cholesterol & LDL

Thin and Dry Skin

Impaired Thinking ­

Intolerance to Cold ­

Increased Weight ­

Thin and Dry Skin ­

After reading several links though about HGH, I am curious about the pros and

cos of trying an HGH releaser vs. HGH injections for us Chiarians. And for

someone my age, and in menopause, will it re-start my cycles? Which I would

rather that it not. But, if the rest could improve, so be it, I can deal.

Any links you can share will be appreciated, if this group function will allow

links.

Hanna

[Guest guest]

I would be very interested to hear more about hormonal issues from other Chiari

women! I've been undergoing quite a lot of testing the past couple weeks because

my hormones have drastically changed for the worse since my decompression.

Cycles are light and FAR between. The longest being a year after surgery and

then 6-10 months....It has also made me gain 55 lbs in two years. I'm getting

desperate for some answers but no one really knows what it is or what to do. Any

experience would be greatly appreciated!

Cortney

[Guest guest]

Does anyone have the exact location of the video? I want to see it but can't

find it.... Cortney

[Guest guest]

This is the link for the videos in the Chiari Institute:

http://www.chiariinstitute.com/Videos/index.html

When the web page opens the video section, there is a menu down in the right

side of the window that says: about, patient education, conferences, click

in the patients education part, then it shows a lot of videos, look out for

the one named: hormonal problems in Chiari Malformation, and then there is

Dr. B, explaining them all.

Mex

De: Cortney

Responder a: < >

Fecha: domingo 10 de junio de 2012 08:59

Para: " "

< >

Asunto: Re: Growth Hormone - and other

hormonal links to chiari

Does anyone have the exact location of the video? I want to see it but can't

find it.... Cortney

[Guest guest]

Hi (and All)

Thank you for that information (hey, I'd be willing to give it

a short trial, if I thought it could help, if my GP would only

prescribe it). However, I've looked closely at what you say

and I'm not sure that I even fit into the 'tertiary hypothyroidism'

You said:-

" In the case of Chiari we normally have secondary or tertiary

hypothyroidism, the most common is the secondary one.

* In the case of the secondary type your thyroid looks well in

the image studies but your blood thyroid hormones are low,

* In the case of the tertiary one you have your thyroid perfect,

and the blood levels are just a little, but very little down,

almost like the normal levels, so many doctors do not

give you anything at all. "

I have analysed all of my blood tests, to see if there are any

clues and this was the result of my thyroid tests, based on

UK normal testing ranges (i.e. Free T4 range is 10 to 25 pmol/L):

Test: No. of Tests Average % of the Normal Range

Free T4 15 13.9 31%

TSH 15 1.81 43%

Thyroxin 1 94.0 45%

T3 Uptake 1 108.0 65%

FTI 1 0.87

36%

So they are not 'just within' normal, they are 'well within'

the normal range, that's what made me think it was more a

growth hormone issue, than a thyroid issue.

I'm glad the thyroid treatment worked for you though as,

lets face it, we need all the help we can get but were your

results as near normal as mine ?

Regards

Barbara

(UK)

Head & Neck Injury (June 2002); Mild Concussion; Post

Concussion Syndrome; Postural Orthostatic Tachycardia

Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild

Radiculopathy & Small Fibre Neuropathy (right leg & foot

resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty

Sella (Oct 2004); Whiplash Associated Disorder (WAD);

Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI)

with Posterior Gliding (PG) & Cranial Settling (CS);

Brain Compression; Retroflexed Odontoid; Stretched/

Elongated Brainstem; Vitamin D deficiency; Ehlers Danlos

(EDS) type 111; and now Osteoarthritis!

[Guest guest]

It could be the thyroid but I would start with blood labs to see. I just got a

whole bunch done and my thyroid was great even though I have a TON of hormone

symptoms. The only thing off is high testosterone, high cholesterol and low

vitamin D. I think they are all related to each other. Because with my diet and

lifestyle, the cholesterol and D should be fine, A natural doctor I consulted

with was not surprised about those two being off with the testosterone so high.

So, do some blood work. It could help you decide what direction to go in with

trying to figure this out!

Cortney

[Guest guest]

Barbara:

The only thing I can tell you in your case is that partially empty sella,

could really make all your hormones crazy too as it the pituitary gland is

pressured by CSF partially, so you must have not one but many hormonal

problems. I did have ALL the thyroid gland hormones normal, but in the

limit, so this is why my doctor, he is a neurologist, say lets prove with a

little, little amount, and it worked!! But he is quite open and he listens

to me, but most of all he knows that Chiari could break all the rules.

But your message has make me think too and I will check out the HGH too,

perhaps I have that wrong too!!!

De:

Responder a: < >

Fecha: lunes 11 de junio de 2012 07:44

Para: < >

Asunto: Re: Growth Hormone - and other

hormonal links to chiari

[Guest guest]

A lot of people believe, and some doctors, that the range of normal for thyroid

tests is too wide, that the normal range should be more narrow. I test on the

low end of normal, but since my doctors agree that the normal range could be

narrower, we tried meds for hypo-thyroid and several things started to improve.

Not all, but a few.Hanna

To:

From: trustingingrace@...

Date: Mon, 11 Jun 2012 08:03:25 -0700

Subject: Re: Growth Hormone - and other hormonal

links to chiari

It could be the thyroid but I would start with blood labs to see. I just

got a whole bunch done and my thyroid was great even though I have a TON of

hormone symptoms. The only thing off is high testosterone, high cholesterol and

low vitamin D. I think they are all related to each other. Because with my diet

and lifestyle, the cholesterol and D should be fine, A natural doctor I

consulted with was not surprised about those two being off with the testosterone

so high. So, do some blood work. It could help you decide what direction to go

in with trying to figure this out!

Cortney

[Guest guest]

I've been losing my hair since about a year after my decompression, so I've

been losing my hair for nearly five years now. It's gotten much worse in

the last month. Depending on where I am in my cycle, usually at the PMS

stage my hair falls out worse, I have skin problems, I blast heat like a

furnace and feel dehydrated, I have serious heartburn, and I get open mouth

sores.

I've had blood tests by several doctors, and they claim my hormones are

normal and my thyroid is being properly maintained at 75 mcg of Levothyroxine

daily. No one has any answers. Just as with my Chiari for most of my life,

I have obvious physical symptoms of problems but doctors claim that by the

standards of the tests I'm perfectly fine. It's very, very frustrating.

My roommate has seen my latest blood test results and says she thinks my

Levothyroxine should be adjusted, but she doesn't have the authority to

diagnose or give prescriptions. *g*

[Guest guest]

Hi there Cortney

I am Lurena . I have had irregular periods my whole life, I am now 43

and have never fallen pregnant despite no birth control. I am sure that my

ICP and chiari is why.. not many medical people accept this that much but I

came across a little movie from the chairi institute and it mentioned the

interruption in hormones in chiari due the pressure on the pituitary gland.

Interesting stuff. I never pursued the infertility medically because I had

decided that maybe it wasn't meant to be. I fall too often from imbalance

and find that sleep is the most important factor in good maintance for my

symptoms, both not good in parenting.

Lurena

[Guest guest]

Hi ,

Yes, you are correct. I actually have to supplement the following hormones:

HGH, T3, T4, Cortisol, DHEA, testosterone, fludrocortisone, progesterone

It sounds absolutely ridiculous - like a hormone cocktail, I guess. But legit

blood tests showed me deficient in every single one except Cortisol (that one is

really hard to nail down so my doc goes by symptoms - I am on a low dose).

I think it's obvious that many of us deal with hypopituitarism (the type derived

from high ICP or even head trauma (I've even read that the condition can be

triggered by surgery...go figure).

>

> ,

>

> When I went to the Chiari Institute I found a video there, which is also at

> his web page and it explains that with Chiari, as the CSF is not circulating

> properly as it is not going down at the posterior fossa, the CSF accumulates

> in our brain, and then it starts pressuring the pituitary gland downwards so

> it does not work properly either. You know that the pituitary gland is the

> master of all hormones of our body, it works by sending messages to the rest

> ot the organs that produces hormones from the thyroid gland to the pancrdeas

> and ovaries if you are a woman. It also produces some hormones like the

> prolactine (hormone in charge of milk production when you are pregnant).

> Because of the CSF pressure over the pituitary gland many of us has hormonal

> problems, but it varies, as the amount of pressure and place of pressure in

> the pituitary gland from the CSF is not the same for everybody so these

> problems are different, some of us could have hypothyroidism, others lke me

> have high prolactine even though I am not pregnant, I started wit it since I

> was 30 years old, I once heard that there was this girl with high glucose,

> like if she had diabetis, but as soon as she has surgery this improve, so it

> seems that pendingo on the improvement you gain with the CSF circulation

> after surgery, you could have a little improvement in the hormonal problems

> too. However in some cases, like mine we are already damaged so we need to

> take hormones all our lives!! Go to the TCI web pages, and look for this

> video it explain it better than me. But is you are seeing Dr. B, he would

> know how to do it.

>

> I hope this serves.

>

>

>

>

>

> De:

> Responder a: < >

> Fecha: viernes 8 de junio de 2012 16:27

> Para: < >

> Asunto: Growth Hormone - and other hormonal

> links to chiari

>

>

>

>

>

>

[Guest guest]

Hi Barbara,

Thanks for your response. I even see signs you listed that I have - that I

never thought about before.

I read someone else's comment that many of your symptoms could be related to low

thyroid. I want to chime in and agree. My PERSONAL opinion is that a HGH

deficiency is ONE of the root causes of our condition. I'm not sure yet but I

think thyroid deficiency in our youth may also contribute. But the bottom line

is this: We end up with an under developed PCF that puts pressure on the

pituitary - which in TURN causes other hormones processes to malfunction. It's

a vicious cycle.

I wish I could provide a " real " link to this fact but I've had trouble finding

anything reputable online. But I will tell you that Dr. B at TCI told me the

skull stops developing at age 9. I do believe I read that somewhere once as

well. If you administer HGH before the age of 9, MAYBE you can have some

positive impact. But once development is complete, you're stuck with what you

have. So, of course, I'm looking at my 6 year old son and thinking, " I've got 3

years left.... " . And there's no doctor in the world who would prescribe it for

him.

So back to my point (sorry, I digress!)... The hormonal deficiency we're born

with leads to an under developed PCF. The underdeveloped PCF causes elevated

pressure...which MAY cause disruption in other hormonal processes. What I'm

saying is, by the time you're an adult, you probably have a lot more than just

an HGH deficiency.

One thing I've learned is that hormonal deficiencies are HARD to figure out.

Probably more so than neurological problems. Aren't we a lucky group?!?

Getting stuck with both! I'm no expert but, I've learned a lot. I'll try to

post separately with some links and book titles that may be helpful for those

interested.

>

> Hi and All,

> Well , I've got to agree with you whole-heartedly

> as I'm convinced that our 'condition' has a Growth Hormone

> Deficiency element to it, for many of us.

>

>

> Let's look at some of the CLINICAL SIGNS

> that suggest Severe Growth Hormone Deficiency:

> Empty Sella - Do I have this sign ?

> YES (MRI evidence).

> Elevated Total Cholesterol & LDL - Do I have this sign ?

> YES (blood tests).

> Increased Inflammatory Markers - Do I have this sign ?

> YES (raised C-Reactive protein levels).

> Raised liver enzymes - Do I have this sign ?

> Intermittently YES

> (raised ESR blood tests

> raised Alkaline Phosphotase blood tests

> raised Alanine Transaminase blood tests).

> Increased Abdominal Fat (Pendulous abdomen) -

> Do I have this sign ? er, unfortunately, YES.

> Reduced Extra-cellular fluid volume - Do I have this sign ?

> YES (my skin doesn't 'spring back' when pressed).

> Thin and Dry Skin - Do I have this sign ?

> YES (very dry backs of hands and lower legs).

> Increased Cardio Vascular Risk - Do I have this sign ?

> YES (I've had a list of strange events, including P.E.).

> What about CLINICAL HISTORY, the common

> known features are below. Do I complain of:

> Reduced Muscle Strength †"

> YES All over, got progressively worse since accident.

> Reduced Energy Levels †"

> YES Difficulties even with small tasks

> Reduced Exercise Capacity †"

> YES No endurance of any level

> Impaired Thinking †"

> YES Concentration and short-term memory issues

> Intolerance to Cold †"

> YES Thermo-regulatory problems since accident

> Increased Weight †"

> YES Never weighed more than 10st 4lbs, now 14+st!

> Thin and Dry Skin †"

> YES Rife by 2004

> Do these Signs & Symptoms sound familiar to anyone ?

>

> I managed to persuade my doctor to send me to the

> Endocrinologist for testing and their initial 'base' test

> showed:

> low IGF-1 of 3.2 (normal value range 11-31)

> Undetectable growth hormone

>

> They checked my adrenals were working ok,

> then gave me a Glucagon Test which didn't elicit

> sufficient Growth Hormone. They said I would be being

> called in, to show me how to administer the HGH drug.

>

> The next thing I knew I was being called in for yet another

> test, The Insulin Tolerance Test (ITT), which, for some

> fluke of a reason, I passed!! So they said I wouldn't be

> getting Human Growth Hormone (HGH) after all.

> I couldn't believe it!

>

> I researched why this might be and found that none of

> the tests are 100% and ITT's not particularly suitable for

> Traumatic Brain Injury (remember all this started when

> I banged my head). My suspicion is, that they kept

> testing me until one came back normal, as the HGH

> drug is very costly!

>

>

> Dr B's videos at TCI explain how raised intracranial

> pressure can flatten our pituitary gland over time, which

> affects the release of Growth Hormone and although

> obtaining growth hormone should certainly help deal

> with the symptoms, the best solution would be if we

> could remove the cause (i.e. lower the intracranial

> pressure). This video also explains that the pituitary

> gland can recover and start to do it's job properly - yeah!

> Regards

> Barbara

> (UK)

>

>

>

>

[Guest guest]

Wow, I think your case is worst than mine I just have two wrong, prolactine

and the thyroid ones!!

I guess the problem that really makes me angry is being fat because of this,

as I carry out a diet and nothing happens, and the worst part everybody

judging me as if I was eating a lot, and I do not!! Even endocrinologists,

this is why I do not go with the anymore I work everything with my NL is the

only one who understand me!!!

De:

Responder a: < >

Fecha: miércoles 20 de junio de 2012 13:31

Para: < >

Asunto: Re: Growth Hormone - and other

hormonal links to chiari

Hi ,

Yes, you are correct. I actually have to supplement the following hormones:

HGH, T3, T4, Cortisol, DHEA, testosterone, fludrocortisone, progesterone

It sounds absolutely ridiculous - like a hormone cocktail, I guess. But

legit blood tests showed me deficient in every single one except Cortisol

(that one is really hard to nail down so my doc goes by symptoms - I am on a

low dose).

I think it's obvious that many of us deal with hypopituitarism (the type

derived from high ICP or even head trauma (I've even read that the condition

can be triggered by surgery...go figure).

>

> ,

>

> When I went to the Chiari Institute I found a video there, which is also at

> his web page and it explains that with Chiari, as the CSF is not circulating

> properly as it is not going down at the posterior fossa, the CSF accumulates

> in our brain, and then it starts pressuring the pituitary gland downwards so

> it does not work properly either. You know that the pituitary gland is the

> master of all hormones of our body, it works by sending messages to the rest

> ot the organs that produces hormones from the thyroid gland to the pancrdeas

> and ovaries if you are a woman. It also produces some hormones like the

> prolactine (hormone in charge of milk production when you are pregnant).

> Because of the CSF pressure over the pituitary gland many of us has hormonal

> problems, but it varies, as the amount of pressure and place of pressure in

> the pituitary gland from the CSF is not the same for everybody so these

> problems are different, some of us could have hypothyroidism, others lke me

> have high prolactine even though I am not pregnant, I started wit it since I

> was 30 years old, I once heard that there was this girl with high glucose,

> like if she had diabetis, but as soon as she has surgery this improve, so it

> seems that pendingo on the improvement you gain with the CSF circulation

> after surgery, you could have a little improvement in the hormonal problems

> too. However in some cases, like mine we are already damaged so we need to

> take hormones all our lives!! Go to the TCI web pages, and look for this

> video it explain it better than me. But is you are seeing Dr. B, he would

> know how to do it.

>

> I hope this serves.

>

>

>

>

>

> De:

> Responder a: <

<mailto:%40yahoogroups.com> >

> Fecha: viernes 8 de junio de 2012 16:27

> Para: <

<mailto:%40yahoogroups.com> >

> Asunto: Growth Hormone - and other hormonal

> links to chiari

>

>

>

>

>

>

[Guest guest]

Those labs are NOT gospel! I'm really glad someone brought up this topic.

I am 5'3 " and weighed around 130 lbs after having 2 kids. So my doc really

rolled his eyes when I walked in and said " I think I might have hypothyroidism " .

My doctor had said, " , you're a healthy, vibrant young woman. Don't go

looking for problems. "

All of my bloodwork was VERY normal. But they didn't test everything they

should have. And in the end, it was a test for thyroid antibodies that

convinced them (both TpAb and TgoAb were off the charts for me).

If you want your thyroid tested, you have to ask them to include:

TSH

T4

Free T4

T3

Free T3

Reverse T3

TgAb

TpoAb

AND, fyi, the antibodies are known to " flare " in cycles. They are high when

your immune system is attacking your thyroid. After enough thyroid is destroyed

(and hormone spilled into the blood stream), the attack stops and the antibody

levels go down. After a while, the cycle starts over. The problem with blood

tests is, you don't know when your antibodies are up. Mine did show up on the

first try. But I've read that you might have to test 2, 3 or 4 times before it

shows up.

Lastly, I'd like to add that you can order your own blood tests and take it to

labcorp (or any participating lab). So this is an option if your doc isn't

receptive. One website that does it is www.healthcheckusa.com. But they do

charge you and I don't think insurance will pay for it. But insurance will

cover the labs (if your plan does).

>

>

> A lot of people believe, and some doctors, that the range of normal for

thyroid tests is too wide, that the normal range should be more narrow. I test

on the low end of normal, but since my doctors agree that the normal range could

be narrower, we tried meds for hypo-thyroid and several things started to

improve. Not all, but a few.Hanna

>

> To:

> From: trustingingrace@...

> Date: Mon, 11 Jun 2012 08:03:25 -0700

> Subject: Re: Growth Hormone - and other

hormonal links to chiari

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> It could be the thyroid but I would start with blood labs to see. I just

got a whole bunch done and my thyroid was great even though I have a TON of

hormone symptoms. The only thing off is high testosterone, high cholesterol and

low vitamin D. I think they are all related to each other. Because with my diet

and lifestyle, the cholesterol and D should be fine, A natural doctor I

consulted with was not surprised about those two being off with the testosterone

so high. So, do some blood work. It could help you decide what direction to go

in with trying to figure this out!

>

> Cortney

>

>

>

>

[Guest guest]

Interesting tidbit. My first migraine was at age 9. Back then the docs were

incredibly useless, saying things like children don't get headaches. I only

know now they were migraines because I would lay down in my bed, ears and eyes

covered, and be miserable until some point the next day when I was ok again.

Hanna

Sent from my phone. Please excse typos and short messages.

Re: Growth Hormone - and other

hormonal links to chiari

 

Hi Barbara,

Thanks for your response. I even see signs you listed that I have - that I

never thought about before.

I read someone else's comment that many of your symptoms could be related to

low thyroid. I want to chime in and agree. My PERSONAL opinion is that a HGH

deficiency is ONE of the root causes of our condition. I'm not sure yet but I

think thyroid deficiency in our youth may also contribute. But the bottom line

is this: We end up with an under developed PCF that puts pressure on the

pituitary - which in TURN causes other hormones processes to malfunction. It's a

vicious cycle.

I wish I could provide a " real " link to this fact but I've had trouble finding

anything reputable online. But I will tell you that Dr. B at TCI told me the

skull stops developing at age 9. I do believe I read that somewhere once as

well. If you administer HGH before the age of 9, MAYBE you can have some

positive impact. But once development is complete, you're stuck with what you

have. So, of course, I'm looking at my 6 year old son and thinking, " I've got 3

years left.... " . And there's no doctor in the world who would prescribe it for

him.

So back to my point (sorry, I digress!)... The hormonal deficiency we're born

with leads to an under developed PCF. The underdeveloped PCF causes elevated

pressure...which MAY cause disruption in other hormonal processes. What I'm

saying is, by the time you're an adult, you probably have a lot more than just

an HGH deficiency.

One thing I've learned is that hormonal deficiencies are HARD to figure out.

Probably more so than neurological problems. Aren't we a lucky group?!? Getting

stuck with both! I'm no expert but, I've learned a lot. I'll try to post

separately with some links and book titles that may be helpful for those

interested.

>

> Hi and All,

> Well , I've got to agree with you whole-heartedly

> as I'm convinced that our 'condition' has a Growth Hormone

> Deficiency element to it, for many of us.

>

>

> Let's look at some of the CLINICAL SIGNS

> that suggest Severe Growth Hormone Deficiency:

> Empty Sella - Do I have this sign ?

> YES (MRI evidence).

> Elevated Total Cholesterol & LDL - Do I have this sign ?

> YES (blood tests).

> Increased Inflammatory Markers - Do I have this sign ?

> YES (raised C-Reactive protein levels).

> Raised liver enzymes - Do I have this sign ?

> Intermittently YES

> (raised ESR blood tests

> raised Alkaline Phosphotase blood tests

> raised Alanine Transaminase blood tests).

> Increased Abdominal Fat (Pendulous abdomen) -

> Do I have this sign ? er, unfortunately, YES.

> Reduced Extra-cellular fluid volume - Do I have this sign ?

> YES (my skin doesn't 'spring back' when pressed).

> Thin and Dry Skin - Do I have this sign ?

> YES (very dry backs of hands and lower legs).

> Increased Cardio Vascular Risk - Do I have this sign ?

> YES (I've had a list of strange events, including P.E.).

> What about CLINICAL HISTORY, the common

> known features are below. Do I complain of:

> Reduced Muscle Strength †"

> YES All over, got progressively worse since accident.

> Reduced Energy Levels †"

> YES Difficulties even with small tasks

> Reduced Exercise Capacity †"

> YES No endurance of any level

> Impaired Thinking †"

> YES Concentration and short-term memory issues

> Intolerance to Cold †"

> YES Thermo-regulatory problems since accident

> Increased Weight †"

> YES Never weighed more than 10st 4lbs, now 14+st!

> Thin and Dry Skin †"

> YES Rife by 2004

> Do these Signs & Symptoms sound familiar to anyone ?

>

> I managed to persuade my doctor to send me to the

> Endocrinologist for testing and their initial 'base' test

> showed:

> low IGF-1 of 3.2 (normal value range 11-31)

> Undetectable growth hormone

>

> They checked my adrenals were working ok,

> then gave me a Glucagon Test which didn't elicit

> sufficient Growth Hormone. They said I would be being

> called in, to show me how to administer the HGH drug.

>

> The next thing I knew I was being called in for yet another

> test, The Insulin Tolerance Test (ITT), which, for some

> fluke of a reason, I passed!! So they said I wouldn't be

> getting Human Growth Hormone (HGH) after all.

> I couldn't believe it!

>

> I researched why this might be and found that none of

> the tests are 100% and ITT's not particularly suitable for

> Traumatic Brain Injury (remember all this started when

> I banged my head). My suspicion is, that they kept

> testing me until one came back normal, as the HGH

> drug is very costly!

>

>

> Dr B's videos at TCI explain how raised intracranial

> pressure can flatten our pituitary gland over time, which

> affects the release of Growth Hormone and although

> obtaining growth hormone should certainly help deal

> with the symptoms, the best solution would be if we

> could remove the cause (i.e. lower the intracranial

> pressure). This video also explains that the pituitary

> gland can recover and start to do it's job properly - yeah!

> Regards

> Barbara

> (UK)

>

>

>

>

[Guest guest]

In my personal opinion, experience and also after reading a lot of medical

articles, I think that the origin of all the hormone problems that we

people with Chiari have is the one Dr. B explains in his video, CSF does

not circulate properly due to posterior fosa compression, then CSF

pressures the pituitary gland, then it does not work properly, then we

start to have many hormonal problems, some have thyroid problems, others

prolactine problems, others HGH problems, others testosterone, cortisol,

or what ever.

I really do not think HGB is the cause of all these deficiencies, I really

think the pressure that the CSF is causing to the pituitary gland, causes

pituitary malfunction which could be expressed in many hormonal

deficiencies, including HGB deficiency.

Chiari has many causes, in my case I have TCS, then the filum terminale

pull down the tonsils and cerebellum, then the CSF do not circulate

properly.

I have read they are others who have a posterior fosa compression with out

TCS, they have a bone malformation, but I have not found any articles in

the journals which relates posterior rosa bone underdevelopment with a

pituitary gland problem.

In Milhorat`s papers, particularly does related to Chiari he speaks about

some genetics involved particularly with Eherles Danlos Syndrome, and also

with bone malformation in other cases.

In my case, I am such a rare, rare case in Mexico that I have think that

my TCS, which cause my SM and Chiari was developed because my mother did

not have a proper consumption of folic acid, because she was living in

Brasil when she had me, so she stop eating tortillas, which are full of

folic acid, so her natural folic acid income stop, This is the only

explanation I have found because I am the one and only with this disease

in a big, big family!! And the only thing that I do not have in common

with the rest is that I was born in Brazil and my mother was out from

Mexico for 3 years. It could be a dumb reason, but there is information

about folic acid deficiency and neural tube malformations.

So Chiari has many causes which are not yet defined in all cases.

El 20/06/12 17:22, " Hanna T " escribió:

>Interesting tidbit. My first migraine was at age 9. Back then the docs

>were incredibly useless, saying things like children don't get headaches.

> I only know now they were migraines because I would lay down in my bed,

>ears and eyes covered, and be miserable until some point the next day

>when I was ok again.

>Hanna

>

>

>

>Sent from my phone. Please excse typos and short messages.

>

> Re: Growth Hormone - and other

> hormonal links to chiari

>

>

>

>

>

>Hi Barbara,

>

> Thanks for your response. I even see signs you listed that I have - that

>I never thought about before.

>

> I read someone else's comment that many of your symptoms could be

>related to low thyroid. I want to chime in and agree. My PERSONAL opinion

>is that a HGH deficiency is ONE of the root causes of our condition. I'm

>not sure yet but I think thyroid deficiency in our youth may also

>contribute. But the bottom line is this: We end up with an under

>developed PCF that puts pressure on the pituitary - which in TURN causes

>other hormones processes to malfunction. It's a vicious cycle.

>

> I wish I could provide a " real " link to this fact but I've had trouble

>finding anything reputable online. But I will tell you that Dr. B at TCI

>told me the skull stops developing at age 9. I do believe I read that

>somewhere once as well. If you administer HGH before the age of 9, MAYBE

>you can have some positive impact. But once development is complete,

>you're stuck with what you have. So, of course, I'm looking at my 6 year

>old son and thinking, " I've got 3 years left.... " . And there's no doctor

>in the world who would prescribe it for him.

>

> So back to my point (sorry, I digress!)... The hormonal deficiency we're

>born with leads to an under developed PCF. The underdeveloped PCF causes

>elevated pressure...which MAY cause disruption in other hormonal

>processes. What I'm saying is, by the time you're an adult, you probably

>have a lot more than just an HGH deficiency.

>

> One thing I've learned is that hormonal deficiencies are HARD to figure

>out. Probably more so than neurological problems. Aren't we a lucky

>group?!? Getting stuck with both! I'm no expert but, I've learned a lot.

>I'll try to post separately with some links and book titles that may be

>helpful for those interested.

>

>

>

>

> >

> > Hi and All,

> > Well , I've got to agree with you whole-heartedly

> > as I'm convinced that our 'condition' has a Growth Hormone

> > Deficiency element to it, for many of us.

> >

> >

> > Let's look at some of the CLINICAL SIGNS

> > that suggest Severe Growth Hormone Deficiency:

> > Empty Sella - Do I have this sign ?

> > YES (MRI evidence).

> > Elevated Total Cholesterol & LDL - Do I have this sign ?

> > YES (blood tests).

> > Increased Inflammatory Markers - Do I have this sign ?

> > YES (raised C-Reactive protein levels).

> > Raised liver enzymes - Do I have this sign ?

> > Intermittently YES

> > (raised ESR blood tests

> > raised Alkaline Phosphotase blood tests

> > raised Alanine Transaminase blood tests).

> > Increased Abdominal Fat (Pendulous abdomen) -

> > Do I have this sign ? er, unfortunately, YES.

> > Reduced Extra-cellular fluid volume - Do I have this sign ?

> > YES (my skin doesn't 'spring back' when pressed).

> > Thin and Dry Skin - Do I have this sign ?

> > YES (very dry backs of hands and lower legs).

> > Increased Cardio Vascular Risk - Do I have this sign ?

> > YES (I've had a list of strange events, including P.E.).

> > What about CLINICAL HISTORY, the common

> > known features are below. Do I complain of:

> > Reduced Muscle Strength †"

> > YES All over, got progressively worse since accident.

> > Reduced Energy Levels †"

> > YES Difficulties even with small tasks

> > Reduced Exercise Capacity †"

> > YES No endurance of any level

> > Impaired Thinking †"

> > YES Concentration and short-term memory issues

> > Intolerance to Cold †"

> > YES Thermo-regulatory problems since accident

> > Increased Weight †"

> > YES Never weighed more than 10st 4lbs, now 14+st!

> > Thin and Dry Skin †"

> > YES Rife by 2004

> > Do these Signs & Symptoms sound familiar to anyone ?

> >

> > I managed to persuade my doctor to send me to the

> > Endocrinologist for testing and their initial 'base' test

> > showed:

> > low IGF-1 of 3.2 (normal value range 11-31)

> > Undetectable growth hormone

> >

> > They checked my adrenals were working ok,

> > then gave me a Glucagon Test which didn't elicit

> > sufficient Growth Hormone. They said I would be being

> > called in, to show me how to administer the HGH drug.

> >

> > The next thing I knew I was being called in for yet another

> > test, The Insulin Tolerance Test (ITT), which, for some

> > fluke of a reason, I passed!! So they said I wouldn't be

> > getting Human Growth Hormone (HGH) after all.

> > I couldn't believe it!

> >

> > I researched why this might be and found that none of

> > the tests are 100% and ITT's not particularly suitable for

> > Traumatic Brain Injury (remember all this started when

> > I banged my head). My suspicion is, that they kept

> > testing me until one came back normal, as the HGH

> > drug is very costly!

> >

> >

> > Dr B's videos at TCI explain how raised intracranial

> > pressure can flatten our pituitary gland over time, which

> > affects the release of Growth Hormone and although

> > obtaining growth hormone should certainly help deal

> > with the symptoms, the best solution would be if we

> > could remove the cause (i.e. lower the intracranial

> > pressure). This video also explains that the pituitary

> > gland can recover and start to do it's job properly - yeah!

> > Regards

> > Barbara

> > (UK)

> >

> >

> >

> >

[Guest guest]

I have thyroid and progesterone issues , but nothing else has been tested

Thanks for the info.

Happy new year.

> Hi Barbara,

>

> Thanks for your response. I even see signs you listed that I have - that I

never thought about before.

>

> I read someone else's comment that many of your symptoms could be related to

low thyroid. I want to chime in and agree. My PERSONAL opinion is that a HGH

deficiency is ONE of the root causes of our condition. I'm not sure yet but I

think thyroid deficiency in our youth may also contribute. But the bottom line

is this: We end up with an under developed PCF that puts pressure on the

pituitary - which in TURN causes other hormones processes to malfunction. It's a

vicious cycle.

>

> I wish I could provide a " real " link to this fact but I've had trouble finding

anything reputable online. But I will tell you that Dr. B at TCI told me the

skull stops developing at age 9. I do believe I read that somewhere once as

well. If you administer HGH before the age of 9, MAYBE you can have some

positive impact. But once development is complete, you're stuck with what you

have. So, of course, I'm looking at my 6 year old son and thinking, " I've got 3

years left.... " . And there's no doctor in the world who would prescribe it for

him.

>

> So back to my point (sorry, I digress!)... The hormonal deficiency we're born

with leads to an under developed PCF. The underdeveloped PCF causes elevated

pressure...which MAY cause disruption in other hormonal processes. What I'm

saying is, by the time you're an adult, you probably have a lot more than just

an HGH deficiency.

>

> One thing I've learned is that hormonal deficiencies are HARD to figure out.

Probably more so than neurological problems. Aren't we a lucky group?!? Getting

stuck with both! I'm no expert but, I've learned a lot. I'll try to post

separately with some links and book titles that may be helpful for those

interested.

>

>

>

>

> >

> > Hi and All,

> > Well , I've got to agree with you whole-heartedly

> > as I'm convinced that our 'condition' has a Growth Hormone

> > Deficiency element to it, for many of us.

> >

> >

> > Let's look at some of the CLINICAL SIGNS

> > that suggest Severe Growth Hormone Deficiency:

> > Empty Sella - Do I have this sign ?

> > YES (MRI evidence).

> > Elevated Total Cholesterol & LDL - Do I have this sign ?

> > YES (blood tests).

> > Increased Inflammatory Markers - Do I have this sign ?

> > YES (raised C-Reactive protein levels).

> > Raised liver enzymes - Do I have this sign ?

> > Intermittently YES

> > (raised ESR blood tests

> > raised Alkaline Phosphotase blood tests

> > raised Alanine Transaminase blood tests).

> > Increased Abdominal Fat (Pendulous abdomen) -

> > Do I have this sign ? er, unfortunately, YES.

> > Reduced Extra-cellular fluid volume - Do I have this sign ?

> > YES (my skin doesn't 'spring back' when pressed).

> > Thin and Dry Skin - Do I have this sign ?

> > YES (very dry backs of hands and lower legs).

> > Increased Cardio Vascular Risk - Do I have this sign ?

> > YES (I've had a list of strange events, including P.E.).

> > What about CLINICAL HISTORY, the common

> > known features are below. Do I complain of:

> > Reduced Muscle Strength †"

> > YES All over, got progressively worse since accident.

> > Reduced Energy Levels †"

> > YES Difficulties even with small tasks

> > Reduced Exercise Capacity †"

> > YES No endurance of any level

> > Impaired Thinking †"

> > YES Concentration and short-term memory issues

> > Intolerance to Cold †"

> > YES Thermo-regulatory problems since accident

> > Increased Weight †"

> > YES Never weighed more than 10st 4lbs, now 14+st!

> > Thin and Dry Skin †"

> > YES Rife by 2004

> > Do these Signs & Symptoms sound familiar to anyone ?

> >

> > I managed to persuade my doctor to send me to the

> > Endocrinologist for testing and their initial 'base' test

> > showed:

> > low IGF-1 of 3.2 (normal value range 11-31)

> > Undetectable growth hormone

> >

> > They checked my adrenals were working ok,

> > then gave me a Glucagon Test which didn't elicit

> > sufficient Growth Hormone. They said I would be being

> > called in, to show me how to administer the HGH drug.

> >

> > The next thing I knew I was being called in for yet another

> > test, The Insulin Tolerance Test (ITT), which, for some

> > fluke of a reason, I passed!! So they said I wouldn't be

> > getting Human Growth Hormone (HGH) after all.

> > I couldn't believe it!

> >

> > I researched why this might be and found that none of

> > the tests are 100% and ITT's not particularly suitable for

> > Traumatic Brain Injury (remember all this started when

> > I banged my head). My suspicion is, that they kept

> > testing me until one came back normal, as the HGH

> > drug is very costly!

> >

> >

> > Dr B's videos at TCI explain how raised intracranial

> > pressure can flatten our pituitary gland over time, which

> > affects the release of Growth Hormone and although

> > obtaining growth hormone should certainly help deal

> > with the symptoms, the best solution would be if we

> > could remove the cause (i.e. lower the intracranial

> > pressure). This video also explains that the pituitary

> > gland can recover and start to do it's job properly - yeah!

> > Regards

> > Barbara

> > (UK)

> >

> >

> >

> >

[Guest guest]

My first migraine was at age 5, kindergarten .

Happy new year.

> Interesting tidbit. My first migraine was at age 9. Back then the docs were

incredibly useless, saying things like children don't get headaches. I only

know now they were migraines because I would lay down in my bed, ears and eyes

covered, and be miserable until some point the next day when I was ok again.

> Hanna

>

>

>

> Sent from my phone. Please excse typos and short messages.

>

> Re: Growth Hormone - and other

> hormonal links to chiari

>

>

>

>

>

> Hi Barbara,

>

> Thanks for your response. I even see signs you listed that I have - that I

never thought about before.

>

> I read someone else's comment that many of your symptoms could be related to

low thyroid. I want to chime in and agree. My PERSONAL opinion is that a HGH

deficiency is ONE of the root causes of our condition. I'm not sure yet but I

think thyroid deficiency in our youth may also contribute. But the bottom line

is this: We end up with an under developed PCF that puts pressure on the

pituitary - which in TURN causes other hormones processes to malfunction. It's a

vicious cycle.

>

> I wish I could provide a " real " link to this fact but I've had trouble finding

anything reputable online. But I will tell you that Dr. B at TCI told me the

skull stops developing at age 9. I do believe I read that somewhere once as

well. If you administer HGH before the age of 9, MAYBE you can have some

positive impact. But once development is complete, you're stuck with what you

have. So, of course, I'm looking at my 6 year old son and thinking, " I've got 3

years left.... " . And there's no doctor in the world who would prescribe it for

him.

>

> So back to my point (sorry, I digress!)... The hormonal deficiency we're born

with leads to an under developed PCF. The underdeveloped PCF causes elevated

pressure...which MAY cause disruption in other hormonal processes. What I'm

saying is, by the time you're an adult, you probably have a lot more than just

an HGH deficiency.

>

> One thing I've learned is that hormonal deficiencies are HARD to figure out.

Probably more so than neurological problems. Aren't we a lucky group?!? Getting

stuck with both! I'm no expert but, I've learned a lot. I'll try to post

separately with some links and book titles that may be helpful for those

interested.

>

>

>

>

>>

>> Hi and All,

>> Well , I've got to agree with you whole-heartedly

>> as I'm convinced that our 'condition' has a Growth Hormone

>> Deficiency element to it, for many of us.

>>

>>

>> Let's look at some of the CLINICAL SIGNS

>> that suggest Severe Growth Hormone Deficiency:

>> Empty Sella - Do I have this sign ?

>> YES (MRI evidence).

>> Elevated Total Cholesterol & LDL - Do I have this sign ?

>> YES (blood tests).

>> Increased Inflammatory Markers - Do I have this sign ?

>> YES (raised C-Reactive protein levels).

>> Raised liver enzymes - Do I have this sign ?

>> Intermittently YES

>> (raised ESR blood tests

>> raised Alkaline Phosphotase blood tests

>> raised Alanine Transaminase blood tests).

>> Increased Abdominal Fat (Pendulous abdomen) -

>> Do I have this sign ? er, unfortunately, YES.

>> Reduced Extra-cellular fluid volume - Do I have this sign ?

>> YES (my skin doesn't 'spring back' when pressed).

>> Thin and Dry Skin - Do I have this sign ?

>> YES (very dry backs of hands and lower legs).

>> Increased Cardio Vascular Risk - Do I have this sign ?

>> YES (I've had a list of strange events, including P.E.).

>> What about CLINICAL HISTORY, the common

>> known features are below. Do I complain of:

>> Reduced Muscle Strength †"

>> YES All over, got progressively worse since accident.

>> Reduced Energy Levels †"

>> YES Difficulties even with small tasks

>> Reduced Exercise Capacity †"

>> YES No endurance of any level

>> Impaired Thinking †"

>> YES Concentration and short-term memory issues

>> Intolerance to Cold †"

>> YES Thermo-regulatory problems since accident

>> Increased Weight †"

>> YES Never weighed more than 10st 4lbs, now 14+st!

>> Thin and Dry Skin †"

>> YES Rife by 2004

>> Do these Signs & Symptoms sound familiar to anyone ?

>>

>> I managed to persuade my doctor to send me to the

>> Endocrinologist for testing and their initial 'base' test

>> showed:

>> low IGF-1 of 3.2 (normal value range 11-31)

>> Undetectable growth hormone

>>

>> They checked my adrenals were working ok,

>> then gave me a Glucagon Test which didn't elicit

>> sufficient Growth Hormone. They said I would be being

>> called in, to show me how to administer the HGH drug.

>>

>> The next thing I knew I was being called in for yet another

>> test, The Insulin Tolerance Test (ITT), which, for some

>> fluke of a reason, I passed!! So they said I wouldn't be

>> getting Human Growth Hormone (HGH) after all.

>> I couldn't believe it!

>>

>> I researched why this might be and found that none of

>> the tests are 100% and ITT's not particularly suitable for

>> Traumatic Brain Injury (remember all this started when

>> I banged my head). My suspicion is, that they kept

>> testing me until one came back normal, as the HGH

>> drug is very costly!

>>

>>

>> Dr B's videos at TCI explain how raised intracranial

>> pressure can flatten our pituitary gland over time, which

>> affects the release of Growth Hormone and although

>> obtaining growth hormone should certainly help deal

>> with the symptoms, the best solution would be if we

>> could remove the cause (i.e. lower the intracranial

>> pressure). This video also explains that the pituitary

>> gland can recover and start to do it's job properly - yeah!

>> Regards

>> Barbara

>> (UK)

>>

>>

>>

>>