Re: Re: Does Hospice stay at the house?/Eileen

December 11, 2006

Thank you Eileen for your enlightenment. This is the darndest disease! I go into

spin mode everytime something happens to Jim. I can't seem to focus on anything.

This group is so good to get me back on track. Thank you for your

encouragement.......Jan

eileen wrote:

Dear Jan, I wanted to tell you about my husband now

I see Jim is getting better , 2 years ago this month

my husband was rushed into the hospital he was

turning blue they called me at 2am in the morning to tell

he was dying and wanted to put him on machines

but he was always against machines so he didnt have

them , he was in the hospital 3 weeks and they

took him to a NH and he's doing well now so you see

its the way LBD works , hope Jim does as well . God Bless.. Eileen B

Canada

-- Re: Re: Does Hospice stay at the house?

Thanks , I was aware of FMLA and used it when I worked full time. I

only work part time as a teacher, but if I have the time I substitute also.

So, at times I work a full week. FMLA is not a paid leave, but since I

really only work part time, I do get a lot of time off, unless I opt to

substitute. I don't want to lose my part time job though and sometimes do

need the extra money and substitute for a week. I really need to be free to

work when needed. I quit my full time job in 2003 to be Jim's full time

caregiver and did not have a job until recently. I lost social security

doing it and I have to make up for all lost time now, since I am nearing

retirement age. Not that I have made social security my only retirement

income, but the more I have at retirement will be helpful.

wrote: Jan -- I don't know the answer to

that question regarding Hospice

staying 24/7 in the house... Maybe someone else can help you with that

question...

Also keep in mind that you can use FMLA (Family Medical Leave Act) in

order to not go into work... Don't know if at your job it's paid leave

or not... But at least you know that your job will be secure if you

choose to use it...

Welcome to LBDcaregivers.

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