Guest guest Posted May 20, 2012 Report Share Posted May 20, 2012 In general, SS will take EVERY SINGLE MINUTE they have to respond. If they have 120 days, they'll send it on the 120th day. No kidding. Again, in general you will be seen by a shrink and one of their examining docs. That doc needs not be a specialist in your area of concern (mine was a dermatologist). Be prepared to wait. It took me over 2 1/2 years to get it, as I filed 11/6/09 and got it last Tuesday. All of this is standard. A word of advice--get advice as to who is the best lawyer and get him involved when there is one appeal left. It is absolutely worth it. Drown the SSA in medical evidence. Give them EVERY SINGLE ITEM you can. I gave them HUNDREDS of reports and notes from docs on my case. You need as much as you can. Trust me on this. I hope your case goes faster than mine did... Subject: Disability Claim To: Date: Sunday, May 20, 2012, 1:10 PM Hello Everyone! This is a question for those who have or are going through/have gone through the disability claim process. I filed for disability in January of this year and have been waiting for a reply. In Wisconsin they have approx 120 days to respond. And depending on which representative from disability I speak to am told either I should have a response by the 120th day or it's just approximate. Anyhow! On day 121 I finally received a letter (after many calls trying to figure out what was going on). Still no decision however. The letter informed me that they needed me to be evaluated by one of " their " doctors for additional info and listed what type of exams/tests I would need and who would be doing them. The person I am seeing is NOT an MD, he is a EDD. I am guessing this is some type of shrink? Anyone know? Secondly the place I am going is an insurance agency. Wierd, I'm thinking maybe this is a multiple office building and that's the name of the building but I guess I'll just have to wait and see. But my biggest concern is what I am going there for. One thing is Memory Testing which I completely understand as that is something that does hinder my ability to perform my job. All though I it can vary from day to day. Anyone have this done? The other thing they want done is a Mental Health Evaluation. What??!! I really don't understand why they are asking for this and am feeling a bit offended. Are they really going to try to say I am making all this up? After 2 surgeries and my own doctors seeing that I continue to decline and struggle? I still continue to try to work but it isn't going well but I would think that the fact that I am trying (and failing) rather than just not working would be proof that it is difficult for me. I am grateful to my employer for allowing me to continue to work these limited hours and put up with my continued struggles. (lateness, sick days, mistakes, not being able to perform all my job duties, etc) anywhere else I'm sure I would of been fired long ago just on my attendance! Maybe their kindness is actually hindering disability decision? Anyhow, has anyone else had to have a Mental Health Evaluation? What exactly does it entail? Did it help in getting a decision? And how so? I guess if they think I'm just crazy then I file an appeal adding mental health issues to my growing list of disorders! I am just at a point where I just want/need to know either way so we can plan for whatever the outcome. It's getting harder and harder for me to work. I've gone from 32+hours a week to 12 to 10-11 to 8-10 now. We are borrowing from to pay because all our savings were depleted last year with me having to take unpaid leave for both my surgeries. And have now taken out a loan against my life insurance policy's available cash value in hopes that it gets us a little closer to that " yes " I have tried to remain pessimistic about getting that yes because I know it is very rare to get approved on the first try but it's been hard convincing my husband of this. I feel so much guilt because of all this. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 Hi Everyone, I was fortunate and SSI took me 3 months and I was approved. I've had 2 reviews since without any problem. I didn't have to see any of their doctors. I did have to spend hours writing every single question. I made sure that any doctor that had helped me along the way had contact information. My vision has been really bad, right from the first surgery. I used my eyes quite a bit for my job and wasn't able to successfully continue. I wish all of you luck. It is much harder to be approved than it was in 2000 when I was approved. Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 I agree with .. I this Sept will be 3 years for me that I applied and I have a attorney. I seen their Dr's and I have been denied twice and now I am waiting for a hearing date which my attorney said can take 18 to 20 months to get and right now it's been a year that I have been waiting for the hearing date. I have been going down hill since I have applied but it's getting close to a hearing date (I hope). It's going to be a long road sweetie. Just keep your head up. Get a attorney and call them on every update, er visits, change and detail.   ________________________________ To: Sent: Sunday, May 20, 2012 1:10 PM Subject: Disability Claim  Hello Everyone! This is a question for those who have or are going through/have gone through the disability claim process. I filed for disability in January of this year and have been waiting for a reply. In Wisconsin they have approx 120 days to respond. And depending on which representative from disability I speak to am told either I should have a response by the 120th day or it's just approximate. Anyhow! On day 121 I finally received a letter (after many calls trying to figure out what was going on). Still no decision however. The letter informed me that they needed me to be evaluated by one of " their " doctors for additional info and listed what type of exams/tests I would need and who would be doing them. The person I am seeing is NOT an MD, he is a EDD. I am guessing this is some type of shrink? Anyone know? Secondly the place I am going is an insurance agency. Wierd, I'm thinking maybe this is a multiple office building and that's the name of the building but I guess I'll just have to wait and see. But my biggest concern is what I am going there for. One thing is Memory Testing which I completely understand as that is something that does hinder my ability to perform my job. All though I it can vary from day to day. Anyone have this done? The other thing they want done is a Mental Health Evaluation. What??!! I really don't understand why they are asking for this and am feeling a bit offended. Are they really going to try to say I am making all this up? After 2 surgeries and my own doctors seeing that I continue to decline and struggle? I still continue to try to work but it isn't going well but I would think that the fact that I am trying (and failing) rather than just not working would be proof that it is difficult for me. I am grateful to my employer for allowing me to continue to work these limited hours and put up with my continued struggles. (lateness, sick days, mistakes, not being able to perform all my job duties, etc) anywhere else I'm sure I would of been fired long ago just on my attendance! Maybe their kindness is actually hindering disability decision? Anyhow, has anyone else had to have a Mental Health Evaluation? What exactly does it entail? Did it help in getting a decision? And how so? I guess if they think I'm just crazy then I file an appeal adding mental health issues to my growing list of disorders! I am just at a point where I just want/need to know either way so we can plan for whatever the outcome. It's getting harder and harder for me to work. I've gone from 32+hours a week to 12 to 10-11 to 8-10 now. We are borrowing from to pay because all our savings were depleted last year with me having to take unpaid leave for both my surgeries. And have now taken out a loan against my life insurance policy's available cash value in hopes that it gets us a little closer to that " yes " I have tried to remain pessimistic about getting that yes because I know it is very rare to get approved on the first try but it's been hard convincing my husband of this. I feel so much guilt because of all this. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 One thing I did and believe it or not, it works. I wrote my congressman and pleaded my case. I got my hearing in about 12 months vs the 18-20 they originally said. Just a thought. Subject: Re: Disability Claim To: " " < > Date: Sunday, May 20, 2012, 9:26 PM  I agree with .. I this Sept will be 3 years for me that I applied and I have a attorney. I seen their Dr's and I have been denied twice and now I am waiting for a hearing date which my attorney said can take 18 to 20 months to get and right now it's been a year that I have been waiting for the hearing date. I have been going down hill since I have applied but it's getting close to a hearing date (I hope). It's going to be a long road sweetie. Just keep your head up. Get a attorney and call them on every update, er visits, change and detail.   ________________________________ To: Sent: Sunday, May 20, 2012 1:10 PM Subject: Disability Claim  Hello Everyone! This is a question for those who have or are going through/have gone through the disability claim process. I filed for disability in January of this year and have been waiting for a reply. In Wisconsin they have approx 120 days to respond. And depending on which representative from disability I speak to am told either I should have a response by the 120th day or it's just approximate. Anyhow! On day 121 I finally received a letter (after many calls trying to figure out what was going on). Still no decision however. The letter informed me that they needed me to be evaluated by one of " their " doctors for additional info and listed what type of exams/tests I would need and who would be doing them. The person I am seeing is NOT an MD, he is a EDD. I am guessing this is some type of shrink? Anyone know? Secondly the place I am going is an insurance agency. Wierd, I'm thinking maybe this is a multiple office building and that's the name of the building but I guess I'll just have to wait and see. But my biggest concern is what I am going there for. One thing is Memory Testing which I completely understand as that is something that does hinder my ability to perform my job. All though I it can vary from day to day. Anyone have this done? The other thing they want done is a Mental Health Evaluation. What??!! I really don't understand why they are asking for this and am feeling a bit offended. Are they really going to try to say I am making all this up? After 2 surgeries and my own doctors seeing that I continue to decline and struggle? I still continue to try to work but it isn't going well but I would think that the fact that I am trying (and failing) rather than just not working would be proof that it is difficult for me. I am grateful to my employer for allowing me to continue to work these limited hours and put up with my continued struggles. (lateness, sick days, mistakes, not being able to perform all my job duties, etc) anywhere else I'm sure I would of been fired long ago just on my attendance! Maybe their kindness is actually hindering disability decision? Anyhow, has anyone else had to have a Mental Health Evaluation? What exactly does it entail? Did it help in getting a decision? And how so? I guess if they think I'm just crazy then I file an appeal adding mental health issues to my growing list of disorders! I am just at a point where I just want/need to know either way so we can plan for whatever the outcome. It's getting harder and harder for me to work. I've gone from 32+hours a week to 12 to 10-11 to 8-10 now. We are borrowing from to pay because all our savings were depleted last year with me having to take unpaid leave for both my surgeries. And have now taken out a loan against my life insurance policy's available cash value in hopes that it gets us a little closer to that " yes " I have tried to remain pessimistic about getting that yes because I know it is very rare to get approved on the first try but it's been hard convincing my husband of this. I feel so much guilt because of all this. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2012 Report Share Posted May 22, 2012 I had a lawyer, and was approved at my first hearing. The meeting with the doctor at the insurance building is normal. All the doctor does is evaluate your ability to function at a job. I remember walking a heel to toe line (and failing), attempting to get down into a squat position and up again without assistance, standing on one foot, etc. Then I was quizzed about how long can I sit, stand, walk, and how much weight can I lift and how often. It might be a good idea for you to review your original claim form before this appointment to be consistent in your responses, and to be prepared what they may ask you to do. The psychologist appointment is also a normal part of the process, too. They are not trying to say you're crazy, but determining if you DO have any psychological issues that relate to your claim. I can't remember much about what I was asked, but the bottom line at the hearing was that I was depressed over the loss of my health, career, and savings. The doctor also thought I may have a pain disorder. I don't know about that, but whatever! I'm pretty sure my pain is real and measurable, but then, who can say? The reason this process takes so long, is the state is trying to wait you out. They're hoping you will give up and go back to work if you're faking or exaggerating your symptoms, and they're seriously backlogged. Keep working if you can, it won't hurt your case any, and proves that you're trying to keep employment. If something physical (or mental) is bothering you, see your doctor about it, because it's important that you can show that your condition is an ongoing thing, not a blip on the radar screen of life that you will someday recover from. Hang in there, seek out government and charity assistance to make ends meet if you must. It's a long and arduous battle, but with perseverance you will prevail! Best of luck, hope this helps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2012 Report Share Posted May 22, 2012 Debbie, I went through this process in 2008. Do not get upset about any of it. They are going to give you a bunch of tests to see if you are depressed and sounds like the memory tests. The Memory test was hardest for me. I actually was awarded my SSDI on my memory problems and not my pain or Chiari or hydrocepahlus and the other problems that I have. It was a real eye opener to see how bad my short term memory is. The doctor that I saw was a retired shrink. He was very nice and would stop the testing when I need to change position or stand for a minute. It was exhausting but nothing to get really concerned about. Email me if you have any questions. At least your case is moving through the system. It took me a year to get to the point that you are at! Good luck, Debi > > Hello Everyone! > > This is a question for those who have or are going through/have gone through the disability claim process. I filed for disability in January of this year and have been waiting for a reply. In Wisconsin they have approx 120 days to respond. And depending on which representative from disability I speak to am told either I should have a response by the 120th day or it's just approximate. Anyhow! On day 121 I finally received a letter (after many calls trying to figure out what was going on). Still no decision however. The letter informed me that they needed me to be evaluated by one of " their " doctors for additional info and listed what type of exams/tests I would need and who would be doing them. The person I am seeing is NOT an MD, he is a EDD. I am guessing this is some type of shrink? Anyone know? Secondly the place I am going is an insurance agency. Wierd, I'm thinking maybe this is a multiple office building and that's the name of the building but I guess I'll just have to wait and see. But my biggest concern is what I am going there for. One thing is Memory Testing which I completely understand as that is something that does hinder my ability to perform my job. All though I it can vary from day to day. Anyone have this done? > The other thing they want done is a Mental Health Evaluation. What??!! I really don't understand why they are asking for this and am feeling a bit offended. Are they really going to try to say I am making all this up? After 2 surgeries and my own doctors seeing that I continue to decline and struggle? I still continue to try to work but it isn't going well but I would think that the fact that I am trying (and failing) rather than just not working would be proof that it is difficult for me. I am grateful to my employer for allowing me to continue to work these limited hours and put up with my continued struggles. (lateness, sick days, mistakes, not being able to perform all my job duties, etc) anywhere else I'm sure I would of been fired long ago just on my attendance! Maybe their kindness is actually hindering disability decision? > Anyhow, has anyone else had to have a Mental Health Evaluation? What exactly does it entail? Did it help in getting a decision? And how so? I guess if they think I'm just crazy then I file an appeal adding mental health issues to my growing list of disorders! > I am just at a point where I just want/need to know either way so we can plan for whatever the outcome. It's getting harder and harder for me to work. I've gone from 32+hours a week to 12 to 10-11 to 8-10 now. We are borrowing from to pay because all our savings were depleted last year with me having to take unpaid leave for both my surgeries. And have now taken out a loan against my life insurance policy's available cash value in hopes that it gets us a little closer to that " yes " I have tried to remain pessimistic about getting that yes because I know it is very rare to get approved on the first try but it's been hard convincing my husband of this. I feel so much guilt because of all this. > Debbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2012 Report Share Posted May 23, 2012 They are not doing any function testing. That's what I don't understand. A big part of my claim is how limited my function is. I don't know, maybe my doctors have already proved that part. I am still working at this point. Very little, but I do continue to try. And when I went back after the last surgery I tried different combinations of days and hours to see what I was going to be able to handle without completely knocking myself down. So now I work Monday, Wednesday, and Friday mornings. Suppose to be 8am to 12 but depending on my pain level each day and my continued decline I am going in later and later and sometimes leaving early. I'm a receptionist at a vet clinic and work mornings rather than afternoons because with the morning schedule I am able to get up and move around when I need to. Where as the afternoon I am stuck behind the desk for at least 3 hours and then end up stiff, in pain & severe headache. All which brings on the worst of the memory and confusion. Well today is the day so I'll let you all know how it goes. Actually glad that this is prolonging things because maybe then I'll have my new imaging and confirmation why I'm having new symptoms. That is if the surgeon ever calls me or my NL back. But that's a whole nother story! Debbie Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
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