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Hi all,

Today I received the DVD that LBDA has revised and is mailing out.

For anyone who wants to get one you must send your home address with DVD request

in the subject line to:

lbda@...

It seems they are in and being sent out.

This is from the symposium that Carol did last Feb. '06 and has a lot of good

infor on it. This one also has the Q's and A's from the panel they had.

There will be another symposium this coming Feb in Florida. The information is

on the Calendar? I think or has it in the links. And there should be

another DVD at that time.

Hugs and Happy Holidays!

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Hi all, My heart is breaking

Hi, I am writing this with tears that I can bearly see through. Jim is in

his end stage now.

I can't believe how this happened so fast. Last Monday, I took him out to

dinner and he ate everything. He looked good and by Tuesday, he was acting

not well and by Wednesday, he was refusing all food and on Thursday, they

transfered Jim out of the nh to a hospital, because he turned blue from lack

of oxygen and they ran tests and saw he has Sepsis, UTI. The hospital the

nursingh ome transfered Jim to is not with our provider and so, that

hospital transfered Jim an hour away from where I live, because the hospital

that is our provider in our area was booked. I rushed over Thrusday after

work and I spent two nights in Jim's room. I had to come home, because I

slept in the same clothes for two nights. Jim didn't even know that I left,

he was so unresponsive. The nurse said, because she gave him Seroquel and

that could be. He felt so secure with me there. Whenever the nurses came in

to move Jim's position on the bed in the wee hours of the morning. Jim would

call for me to

make sure that I was there and that I knew what was going on. He will be so

lost tonight without me and I feel so horrible for leaving him there. The

hospital was giving Jim food, but not me. I was also running out of money to

buy food for me, because I left my purse in a grocery cart when I went to

buy Jim some Vitamin Water with electrolytes and bananas for potassium when

he was sitll at the nh, since they said he was not eating. I was in such a

hurry to get to the nh, I forgot my purse and found when I got to the nh,

there was no purse and I had to race back to the grocery store. I found my

cart with no purse in it and went into the grocery store and no purse was

turned in, so I raced home and canceled all my cards that I carry, so noone

could have a very Merry Christmas compliments of me. So, since I canceled my

cards, I had no ATM card to get money while at the hospital visiting Jim,

nor did I have my gasoline card for gas, but fortunately, I had enough cash

on me

from the week before to buy some meals to eat and get gas, but I had to come

home, because I was running out. Fortunately, a very trustful person found

my purse and turned it into the Dry Cleaners in the same shopping center and

the Cleaners called me to say they had my purse and I found everything still

in it, but I had already canceled all the cards, so I could not use them. I

kept the cards canceled just incase they copied my card numbers and could

use them on the internet. I defeated myself too, becaus e there was a

wonderful shopping mall across from the hospital that I could have done some

Christmas Shopping in while killing time, but since I had no means of any

cards or money, I sat in Jim's room for two days. I don't even feel like

finishing my shopping now. I don't know how many of you remain so strong. I

hope I can be strong, because right now I feel so weak. It is so sad to see

Jim in the hospital so helpless. His voice and responsiveness yesterday was

far more

better than today. One of the nurses said out loud, that he was going to be

transfered back to the nursing home, possibly tomorrow if he seems well

enough and said, " You know, he is not going to be where he was, it only gets

worse. And even though Jim seemed like he was sleeping he probably heard

that and now has no hope and probably just wants to will himself to die. I

know, if he heard he was going straight back to the nh, he would want to die

too. I am so heart broken for him. He has lost so much w eight since last

week too. It's all so unbelievable. I knew this time was coming, I thought I

could be prepared for it, but I didn't think he would look and seem ok at

the beginning of the week and be at the end stage by the end of the week. It

s come so fast within a week. The weather outside is gloomy, just like I

feel.

I just need strength to get through all this. Your prayers and thoughts that

you have been sending are so helpful. Sharon told me that she is keeping you

informed.

Nothing seems to matter to me right now, I just want my husband back to

where he was.

Thanks everyone for all your help and for being here.....Hugs, Jan

---------------------------------

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