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In a message dated 09/26/2000 10:34:58 AM Eastern Daylight Time,

pkovacek@... writes:

<< Knowing that PT will not provide any improvement in her function or

ability

to interact with her environment and that it would strictly be for

maintenance ROM which Medicaid will not cover I feel that we do not have to

provide these services. >>

I feel I need to respond here. Neither the mother, nor the physician, nor

the hospital are the ones I would consider here. I have had the pleasure of

working with many older CP patients who could communicate. Their

explanations on the benefits of being moved, as far as how they feel,

reduction of pain, and bodily functions all indicated to me the benefits of

working with CP patients that seem to be just maintenance. If you work at a

hospital, then your hospital must have a mission statement to serve the

people of the community. The hospital also has a indigent fund. Even if this

were not the case, there is an humanitarian issue here. I know you can not

afford to have a full case load of patients as you describe. Many clinics

rarely do. But all clinics will have a case such as yours.

My answer is to just do the right thing.

Steve Marcum PT, CSCS

Kentucky

Steve Marcum PT, CSCS

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We to have experienced situations like this and have dealt with it case by

case. If the patient has not been treated for a period of time by the rehab

department we feel obligated to evaluate that individual then devise a plan

of care in accordance with the assessment. If the plan of care indicates

that the patient does not require treatment by a licensed professional after

the documented caregiver education the patient is discharged following the

education to those involved. The education process, including

exercises/procedures to be performed, reasons for continuation or

discontinuation of services, or etc., may require both finesse or the

direct, don't back down approach. We then follow up immediately with a

discharge summary to the physician to document our reasons for discharge.

We try to offer as much support through resources as possible by giving our

phone number if there are any questions, make follow up calls, offer

periodic screens... These offers are also summarized in the discharge plan

the the M.D.. These types of patients " cost " us/them at least one visit,

maybe two or three depending on what type of education is involved.

--The way we operate, for what its worth...

B. McCusker, PT

Director of Rehab

Cole Memorial Hospital

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A touch of real life, much removed from the discussions that seem to

gravitate to the need for more research. You somehow have to balance the

needs of the patient, family, physician, reimbursement and professional

ethics while not raising the ire of administration. I'm curious how the

list will respond.

Todd Freeman, MHSA, PT

Director of Rehabilitation Services

Sumner Regional Medical Center

Gallatin, TN

> Clinical Dilemma

>

> I have been asked to post this for another member who wishes to remain

> anonymous.

>

> Clinical Dilemma

>

> Please do not respond directly to me but rather to the list with your

> comments.

>

> The problem is this:

> We are a small acute care hospital that provides inpatient and outpatient

> services primarily to adult/geriatric population.

> We have received a referral for PT " strengthening and therex 2x/week " for

> an 18 you female with a diagnosis of birth CP/CMV. This patient is well

> know to our facility as we have provided PT services for her each summer

> while school is out. She is currently w/c bound, blind, ? hearing,

> dependent in all ADLs and is contracted x 4 extremities. The mother has

> been taught ROM repeatedly and is resistant to performing home ROM stating

> that " it's your job " . Mom has now decided that she will no longer be

> sending her daughter to school as she is 18 and she expects to have PT

> services at our facility. The patient has Medicaid coverage.

> Knowing that PT will not provide any improvement in her function or

> ability to interact with her environment and that it would strictly be for

> maintenance ROM which Medicaid will not cover I feel that we do not have

> to provide these services. The referring MD is unsupportive, although he

> understands our point of view he feels that " if the mother wants it " we

> should provide the services.

> If anyone on the list serv has had a similar experience or can offer

> suggestions on how to deal with this situation it would be greatly

> appreciated.

> Visit our EStore at www.RehabBusiness.com

>

> Rehab Pro - The software solution to controlling your rehab business! Call

> to arrange a demo -.

>

> Rehab Management Solutions can can improve your bottom line - (877)

> 552-2996

>

>

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In situations where we feel the insurance guidelines are not going to be met, we

give the patient a letter of financial responsibility stating that the insurance

guidelines require.....and that the services being delivered will not meet these

guidelines. The patient will be responsible for payment for these services at

$xx/ visit.. We require the patient to sign the form before we continue with

services. We share this form with our patient financial services department and

with the physician. Of course, the patient gets a copy.

It is RARE for a patient to sign the form. It is probably RARER for a Medicaid

patient to pay an outstanding balance. Good luck.

Helene Rosen

Beaumont

>>> Kovacek 09/26/00 10:26AM >>>

I have been asked to post this for another member who wishes to remain

anonymous.

Clinical Dilemma

Please do not respond directly to me but rather to the list with your comments.

The problem is this:

We are a small acute care hospital that provides inpatient and outpatient

services primarily to adult/geriatric population.

We have received a referral for PT " strengthening and therex 2x/week " for

an 18 you female with a diagnosis of birth CP/CMV. This patient is well

know to our facility as we have provided PT services for her each summer

while school is out. She is currently w/c bound, blind, ? hearing,

dependent in all ADLs and is contracted x 4 extremities. The mother has

been taught ROM repeatedly and is resistant to performing home ROM stating

that " it's your job " . Mom has now decided that she will no longer be

sending her daughter to school as she is 18 and she expects to have PT

services at our facility. The patient has Medicaid coverage.

Knowing that PT will not provide any improvement in her function or ability

to interact with her environment and that it would strictly be for

maintenance ROM which Medicaid will not cover I feel that we do not have to

provide these services. The referring MD is unsupportive, although he

understands our point of view he feels that " if the mother wants it " we

should provide the services.

If anyone on the list serv has had a similar experience or can offer

suggestions on how to deal with this situation it would be greatly appreciated.

!

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In my opinion, you have two separate issues here. The first being whether or

not you are ethically required to provide services upon request, and the

second being a billing issue. The first question will need to be addressed

within your own guidelines, but the second will default to Medicaid's

guidelines, in that they will not cover maintenance therapy. These two

considerations need to be kept separate. One cannot base recommendations for

therapy on third-party reimbursement.

Clinical Dilemma

I have been asked to post this for another member who wishes to

remain anonymous.

Clinical Dilemma

Please do not respond directly to me but rather to the list with

your comments.

The problem is this:

We are a small acute care hospital that provides inpatient and

outpatient services primarily to adult/geriatric population.

We have received a referral for PT " strengthening and therex

2x/week " for an 18 you female with a diagnosis of birth CP/CMV. This patient

is well know to our facility as we have provided PT services for her each

summer while school is out. She is currently w/c bound, blind, ? hearing,

dependent in all ADLs and is contracted x 4 extremities. The mother has been

taught ROM repeatedly and is resistant to performing home ROM stating that

" it's your job " . Mom has now decided that she will no longer be sending her

daughter to school as she is 18 and she expects to have PT services at our

facility. The patient has Medicaid coverage.

Knowing that PT will not provide any improvement in her function or

ability to interact with her environment and that it would strictly be for

maintenance ROM which Medicaid will not cover I feel that we do not have to

provide these services. The referring MD is unsupportive, although he

understands our point of view he feels that " if the mother wants it " we

should provide the services.

If anyone on the list serv has had a similar experience or can offer

suggestions on how to deal with this situation it would be greatly

appreciated.

Visit our EStore at www.RehabBusiness.com

Rehab Pro - The software solution to controlling your rehab

business! Call to arrange a demo -.

Rehab Management Solutions can can improve your bottom line - (877)

552-2996

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Share on other sites

I have been there/done that in similar situations. There are many things to

consider here. Here a just a few to chew on:

If the client is contracted x 4, are these contractures impeding her caregiver's

ability to provide personal care? If so, she should be referred for an

orthopedic consult regarding releases to assist with caregiving. Post

surgically, PT would then be appropriate for short term to train caregiver(s) in

positioning, seating, ROM, and adaptive or orthotic needs.

Has anyone ever referred this family to a Cerebral Palsy Center for resources?

Having worked with CP clients for years, I have always dealt with these issues

as a professional ethics issue. Ethically, would I be OK with providing a

service that I know will not affect any positive functional outcomes and at

best, in the long run, slow the inevitable continued loss of motion and billing

ANYBODY for that service? (Let's face it, ROM a few times a week will not win

the battle of 24/7 spastic muscle activity.) Have you put that question to

yourself or any other therapist that may be asked to work with this individual?

Most third party reimbursers have made it abundantly clear that ROM is

considered a non-skilled service by a PT unless there is a mitigating factor

such as an healing fracture or other situation that would necessitate skill and

judgement to perform.

If the Mother is refusing to perform ROM even after being trained, is it because

she is otherwise overwhelmed emotionally and/or physically in caring for this

child. Has she been counseled to seek assistance from and training for other

family members and friends who could also perform this service?

These are just a few things to consider when making your final decision. Good

Luck. I hope this was helpful.

Tammy PT

Director of Rehab

Friendship Rehabilitation

tkelly1@...

Clinical Dilemma

I have been asked to post this for another member who wishes to remain

anonymous.

Clinical Dilemma

Please do not respond directly to me but rather to the list with your comments.

The problem is this:

We are a small acute care hospital that provides inpatient and outpatient

services primarily to adult/geriatric population.

We have received a referral for PT " strengthening and therex 2x/week " for

an 18 you female with a diagnosis of birth CP/CMV. This patient is well

know to our facility as we have provided PT services for her each summer

while school is out. She is currently w/c bound, blind, ? hearing,

dependent in all ADLs and is contracted x 4 extremities. The mother has

been taught ROM repeatedly and is resistant to performing home ROM stating

that " it's your job " . Mom has now decided that she will no longer be

sending her daughter to school as she is 18 and she expects to have PT

services at our facility. The patient has Medicaid coverage.

Knowing that PT will not provide any improvement in her function or ability

to interact with her environment and that it would strictly be for

maintenance ROM which Medicaid will not cover I feel that we do not have to

provide these services. The referring MD is unsupportive, although he

understands our point of view he feels that " if the mother wants it " we

should provide the services.

If anyone on the list serv has had a similar experience or can offer

suggestions on how to deal with this situation it would be greatly appreciated.

<< File: ATT00007.htm >>

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>

I do not see much mention of the patient - only her mother. As annoying

as the mother may be, it appears she is not a viable option for

providing care, so some other means must be sought. Another family

member, a student looking for community service, local support groups

and volunteers, a hospital auxiliary group for funding, pro bono work by

the PT facility or local PT students....I do not think an ethical choice

would be to leave the patient in care of someone you know will not

provide the needed care. Perhaps the PTs could educate someone else to

provide the maintenance ROM if the mother will not do it.

What would this patient's care options be if/when her mother dies or

becomes unable to care for her? This will eventually happen and future

planning needs to be considered.

While one could not fill a whole case load with patients like this,

surely it would not be too time consuming if the staff shared these

exercises? As you point out, it need not be provided by the PT if a less

expensive employee could be made available.

Sandy Curwin

Bangor, Maine

>

>

> Clinical Dilemma

>

> Please do not respond directly to me but rather to the list with your

> comments.

>

> The problem is this:

> We are a small acute care hospital that provides inpatient and

> outpatient services primarily to adult/geriatric population.

> We have received a referral for PT " strengthening and therex 2x/week "

> for an 18 you female with a diagnosis of birth CP/CMV. This patient is

> well know to our facility as we have provided PT services for her each

> summer while school is out. She is currently w/c bound, blind, ?

> hearing, dependent in all ADLs and is contracted x 4 extremities. The

> mother has been taught ROM repeatedly and is resistant to performing

> home ROM stating that " it's your job " . Mom has now decided that she

> will no longer be sending her daughter to school as she is 18 and she

> expects to have PT services at our facility. The patient has Medicaid

> coverage.

> Knowing that PT will not provide any improvement in her function or

> ability to interact with her environment and that it would strictly be

> for maintenance ROM which Medicaid will not cover I feel that we do

> not have to provide these services. The referring MD is unsupportive,

> although he understands our point of view he feels that " if the mother

> wants it " we should provide the services.

> If anyone on the list serv has had a similar experience or can offer

> suggestions on how to deal with this situation it would be greatly

> appreciated.

> Visit our EStore at www.RehabBusiness.com

>

> Rehab Pro - The software solution to controlling your rehab business!

> Call to arrange a demo -.

>

> Rehab Management Solutions can can improve your bottom line - (877)

> 552-2996

>

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In addition to working in home care part-time, I also work at a school for

multi-handicapped children and have been exposed to your situation/dilemma.

My advice would be 1) contact the child's casemanager for MEDICAID (if waiver

program and/or straight Medicaid), 2) involve a social worker who is familiar

with community resources for respite care workers/equipment funding/rehab

aides, 3) contact any other casemanager the child may have (i.e where I live

in addition to being " waiver " they can be part of the County (or State) Board

of Mental Retardation/Developmental Disabilities), 4) Find out if there are

any Parent Support Groups for the mother to get in touch with, 5) contact CP

Society for any leads/funding, and 6) contact the Easter Seal's Society (i.e

where I live the students/adults can use the pool for a few bucks to perform

supervised home/maintainence rehab programs -- but only after HEP instruct

has been provided for say 6 visits.

I do not consider myself to be insensitive to the mother's plight, nor more

importantly, insensitive to the child's needs, but the mother must assume

some responsibility for care: dare I say child/adult protective services if

she is withholding essential PROM (provided she is physically capable)?. As

holistic? altruistic? as I would like to think hospitals are with regard to

providing pro bono visits (which could be an option parlayed into any of the

above recommendations), the mother does have to realize there are certain

laws of the land regarding progress vs maintenance.

Trust me on this...there are some services available out there, but it just

takes some aggravated investigating. Hope this is of some help.

Babich, MS, MS-PT, CSCS

Ohio State University Medical Center: Home Care Services, and

lin County Board of MR/DD

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Great ideas! Thanks for sharing.

>>> 09/26/00 09:29PM >>>

In addition to working in home care part-time, I also work at a school for

multi-handicapped children and have been exposed to your situation/dilemma.

My advice would be 1) contact the child's casemanager for MEDICAID (if waiver

program and/or straight Medicaid), 2) involve a social worker who is familiar

with community resources for respite care workers/equipment funding/rehab

aides, 3) contact any other casemanager the child may have (i.e where I live

in addition to being " waiver " they can be part of the County (or State) Board

of Mental Retardation/Developmental Disabilities), 4) Find out if there are

any Parent Support Groups for the mother to get in touch with, 5) contact CP

Society for any leads/funding, and 6) contact the Easter Seal's Society (i.e

where I live the students/adults can use the pool for a few bucks to perform

supervised home/maintainence rehab programs -- but only after HEP instruct

has been provided for say 6 visits.

I do not consider myself to be insensitive to the mother's plight, nor more

importantly, insensitive to the child's needs, but the mother must assume

some responsibility for care: dare I say child/adult protective services if

she is withholding essential PROM (provided she is physically capable)?. As

holistic? altruistic? as I would like to think hospitals are with regard to

providing pro bono visits (which could be an option parlayed into any of the

above recommendations), the mother does have to realize there are certain

laws of the land regarding progress vs maintenance.

Trust me on this...there are some services available out there, but it just

takes some aggravated investigating. Hope this is of some help.

Babich, MS, MS-PT, CSCS

Ohio State University Medical Center: Home Care Services, and

lin County Board of MR/DD

Visit our EStore at www.RehabBusiness.com

Rehab Pro - The software solution to controlling your rehab business! Call to

arrange a demo -.

Rehab Management Solutions can can improve your bottom line -

!

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I'd like to add my concensus to your recent recommendations regarding the

utilization of a competent case manager. This individual should in my opinion

receive the benefits she's entitled to before her benefits are drastically

pared down at the age of 21. I feel she should be evaluated at an inpatient

rehab center with a pediatrics dept. if possible for a coordinated

transdisciplinary rehab program which would preferably be lead by medical

management by a physiatrist & /or pediatric neurologist to medically address

the spasticity effectively as possible, SLP and OT to address basic

communication of needs and compensatory equipment needs for blindness,

appropriate seating, positioning, progressive splinting, etc.. Perhaps PT

could try some tone inhibiting exercises to be included in a home program,

and use soft tissue/myofascial release techniques in addition to ROM, NDT,

PNF or whatever may suit her neurorehab needs.

I fully suppory the premise of our ethical responsibilities to serve our

communities' needs, which includes the appropriate referral of complex cases

with medical, rehab, and social / family issues to providers which are best

suited to provide the resources necessary to stand a chance at impacting this

individual's situation and quality of life.

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When some one no longer qualifies for skilled service, but requires a maintenance

program, we offer training for a home program, OR access to our equipment/pool

for a therapist designed (and time limited) "transitional program" OR

a "routine" program , that is maintenance in nature, designed by the therapist,

but carried out by the trained rehab aide.(skilled therapy

discharges). For this third type of program, we charge privately- 2 rates

based on level of assist necessary, and charge by the unit. The amount

is small compared to skilled service, the ROM is done competently, and

perhaps over time mom could be engaged in the process. Some times

a community organization may donate $ to a family to pay for these types

of services....It has worked for us ...also enables the therapist to catch

any declines, new problems quickly--through the eyes of the rehab aide...

Caren morell OTR/L

Dir rehab

Broad Reach Health

I have been asked to post this for another

member who wishes to remain anonymous.

Clinical Dilemma

Please do not respond directly to me but rather to the list with your

comments.

The problem is this:

We are a small acute care hospital that provides inpatient

and outpatient services primarily to adult/geriatric population.

We have received a referral for PT "strengthening and

therex 2x/week" for an 18 you female with a diagnosis of birth CP/CMV.

This patient is well know to our facility as we have provided PT services

for her each summer while school is out. She is currently w/c bound, blind,

? hearing, dependent in all ADLs and is contracted x 4 extremities. The

mother has been taught ROM repeatedly and is resistant to performing home

ROM stating that "it's your job". Mom has now decided that she will no

longer be sending her daughter to school as she is 18 and she expects to

have PT services at our facility. The patient has Medicaid coverage.

Knowing that PT will not provide any improvement in her

function or ability to interact with her environment and that it would

strictly be for maintenance ROM which Medicaid will not cover I feel that

we do not have to provide these services. The referring MD is unsupportive,

although he understands our point of view he feels that "if the mother

wants it" we should provide the services.

If anyone on the list serv has had a similar experience

or can offer suggestions on how to deal with this situation it would be

greatly appreciated.

Visit our EStore at www.RehabBusiness.com

Rehab Pro - The software solution to controlling your rehab business!

Call to arrange a demo -.

Rehab Management Solutions can can improve your bottom line - (877)

552-2996

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