Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 I have surgery last week, not feeling very well, but I do have an alternative for Diamox, you can use: * Ergotamine, this is use for migraines, but it lowers ICP too, quite effective when Diamox is not. It is usually sell with Caffeine, do not use it with caffeine as it rasies your ICP too, try to get it pure, with out caffeine. * Indomethacin, this is ise for arthritis, but it lowers ICP too. * Cabergolide (Dostinex) this is use for lowering down prolactine, this is a hormone produced by the pituitary gland during lactancy it is the " milk protein " , however in some cases, you can have a tumor in the pituitary gland which could cause your prolactine levels to go up, then this medicine controls them, as it comes from ergotamine, it lowers ICP too. In the case of Chiari as ICP pressures the pituitary gland too resulting in some damages, some people with Chiari has pituitary problems, some have hyper o hypothiroidism, others have high glucose, like if they have diabetes. So Dostinex could help prolactine levels but at the same time it diminishes ICP too. This has been the best medicine por me for years. You can feel tired with this one too. * Norprolac, not sell in the US, also reduces prolactine and ICP, it took it for 10 years. Doctors usually do not know all these, but all these information is in the medicines web pages, including the NIH pages, you can seek out for them and then give them to your doctors. I can tell you that one of the reasons I scape from surgeries during my 30's was the use of Norpolac and Dostinex, they gave them to me when doctors thought i had a tumor in my pituitary gland, they did not know I had TCS, SM and Chiari, they gave them to me because I had high prolactine levels, now I know it was the same ICP originated by Chiari, but I survived and live perfectly well with these medicines for 10 years!!! I did not know at that time they diminihed the ICP, but right now they still help. You can have the minimum dossage of the Norprolac medicine, I think this last one is not sell in the US, it is sell just in Mexico and Europe. You should also know that caffeine rise up ICP. Tell your doctors to start with the first two, if you do not have any other pituitary problems. I hope these helps. De: Debra Metz Responder a: < > Fecha: viernes 25 de mayo de 2012 07:38 Para: < > Asunto: Diamox alternatives I started Diamox a couple weeks ago because my headaches are back to being a constant daily struggle. They are accompanied by lots of pressure and fluid build up. Before the Diamox if I could get the fluid to drain I would get some relief. But the Diamox has been pretty consistent in keeping things at a very tolerable level. I'm on 1/2 of a 125mg tablet twice a day so it's a pretty low dosage. I immediately noticed about 2-3 hours after taking it that I would get very sleepy but it was manageable. Now at the end of my second week the side effects have pretty much taken over and am in bed sleeping or resting because I am so tired and then I get really bad body aches. I have a growing list of meds I can no longer take because of the side effects and am thinking this one will get added to that list also. It's a double edge sword. On one hand if I don't take it I'm spending most of my time in bed bacause of the headaches and fluid build up and all the symptoms that are aggravated by it. And on the other hand, while it is giving me about 60% relief, I am now sleeping all the time. I'm going to try just taking it in the evening and see if that can keep things under control enough during the day. My NL believes I may have a CSF leak and/blockage along with some other " structural " issues going on and is urging me to see my NS who I have been trying to get a hold of for over a month. I finally emailed his nurse and she says she hasn't gotten any of my messages and now the NS is on vacation. But she won't tell me when he will be back, only that my chart and letter from the NL is on his desk and he will review it as soon as he is back. Won't even let me schedule an appt at this point so I can get on the schedule as I know that I could have to wait a month or more for an appt since he is only at the chiari center one day a week to see patients. Does any one know of any alternatives to the Diamox? Something that will work the same way in keeping the amount of fluid down? Debbie R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 Hi Everyone, I've taken lasix as an alternative, but you really need to watch the symptoms, my potassium went low fast. If you have high pressure, which it sounds you do, keep the head of your bed lifted. You can do this by putting blocks under the feet of your bed. Alternative to that would be sleep on a foam wedge. If you have low pressure drink lots of caffeine. There are lots of high emerge drinks on the market, check for the one highest in caffeine. You could also sleep with your head in a downward position, prop up the feet at the bottom of the bed. I hope everyone has a great weekend Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 Hi Debbie, There are a few alternatives to Diamox, but probably don't work as well as Diamox does to lower ICP...That being said, you might want to switch to the Diamox Sequels...(long acting version of Diamox). Our thirteen year old son takes one 500mg. Sequel at bedtime, and seems to tolerate it perfectly fine... In the past he was on 250mg. bid. of the regular Diamox, and had issues with side effects. A few list members recommended the 500mg. Sequels to us because in the long acting form there seem to be fewer side effects... HTH, take good care, To: From: lil_bitdrew@... Date: Fri, 25 May 2012 12:38:56 +0000 Subject: Diamox alternatives I started Diamox a couple weeks ago because my headaches are back to being a constant daily struggle. They are accompanied by lots of pressure and fluid build up. Before the Diamox if I could get the fluid to drain I would get some relief. But the Diamox has been pretty consistent in keeping things at a very tolerable level. I'm on 1/2 of a 125mg tablet twice a day so it's a pretty low dosage. I immediately noticed about 2-3 hours after taking it that I would get very sleepy but it was manageable. Now at the end of my second week the side effects have pretty much taken over and am in bed sleeping or resting because I am so tired and then I get really bad body aches. I have a growing list of meds I can no longer take because of the side effects and am thinking this one will get added to that list also. It's a double edge sword. On one hand if I don't take it I'm spending most of my time in bed bacause of the headaches and fluid build up and all the symptoms that are aggravated by it. And on the other hand, while it is giving me about 60% relief, I am now sleeping all the time. I'm going to try just taking it in the evening and see if that can keep things under control enough during the day. My NL believes I may have a CSF leak and/blockage along with some other " structural " issues going on and is urging me to see my NS who I have been trying to get a hold of for over a month. I finally emailed his nurse and she says she hasn't gotten any of my messages and now the NS is on vacation. But she won't tell me when he will be back, only that my chart and letter from the NL is on his desk and he will review it as soon as he is back. Won't even let me schedule an appt at this point so I can get on the schedule as I know that I could have to wait a month or more for an appt since he is only at the chiari center one day a week to see patients. Does any one know of any alternatives to the Diamox? Something that will work the same way in keeping the amount of fluid down? Debbie R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 Thanks everyone for the suggestions! In reply: I can't take any long acting/delayed release medications. I ( & my pain dr) have found meds don't always work when they are suppose to. I can take something that is suppose to have immediate effect but there are days when it doesn't work for several hours. And looking at my ever growing list of allergies to meds the majority of them are either delayed release or ones that work best after you have a build up in your system like savella, lyrica, etc. Going to try taking the Diamox just at night and see if that can at least keep things to a tolerable level. At least till I can get in to see my NS and find out what's going on. The NL thinks I could have a CSF leak and/or blockage. He thought I might have low pressure because when I lay down I feel better but as soon as I'm upright my head starts to fill back up But then there is also the fact that I get the most relief when I get my head/neck stretched out to a certain position. I continue to stump the " specialists " around here. Nothing is ever as it seems. Not even when they run their tests. Things don't show that when I had decompression the doctor actually saw when he opened me up and was in disbelief. Debbie Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 Hi As I understand it, correct me if I'm wrong, Diamox actually reduces the amount of Cerebro Spinal Fluid being produced and that's why it helps us so much, as many of us have a glut of this stuff. I have also heard that you have to take a supplement of Bicarbonate with it, in order for it to work effectively for us. I just wish GP's here in the UK could prescribe it for my conditions, I'd be on it tomorrow!! Regards Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 The Bicarbonate is used if you have an acidosis as a result of the Diamox...We monitor our sons labs monthly to check his CO2 level. Last time he did need to start Bicarb. while on Daimox. To: From: ThatBarbaraLady@... Date: Sun, 27 May 2012 15:47:37 -0400 Subject: Re: Diamox alternatives Hi As I understand it, correct me if I'm wrong, Diamox actually reduces the amount of Cerebro Spinal Fluid being produced and that's why it helps us so much, as many of us have a glut of this stuff. I have also heard that you have to take a supplement of Bicarbonate with it, in order for it to work effectively for us. I just wish GP's here in the UK could prescribe it for my conditions, I'd be on it tomorrow!! Regards Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 Hi Debbie, Well the doctors surprise makes sense, if you had your MRI laying down (where you seem to be ok), you probably had your decompression a little bit on the upright side, to some degree or another (and that's when your problems start), so the surgeon would be seeing it 'as it really was' when it was affecting you. Gravity has a lot to do with it, it can fight with us, or against us. Head/neck position is also an important factor as, it can allow, or restrict, CSF flow depending on the level and/or most affected side of your 'cerebellar tonsilar ectopia' (the brain tissue that's partially blocking the hole at the bottom of your skull). I am best with my head straight forwards, slightly rotated to the left. When I was still at work, I had to have all of my computer equipment moved from the right hand side of my desk, to the left, to ease my discomfort. I can also understand how stretching could work, just a theory mind, could it make any 'pliable' components (maybe the brainstem/spinal cord marginally thinner, allowing better passage of fluids Don't know, any other ideas on this one? I know some of us are recommended to have traction, or inversion therapy (being upside down for periods) Has anyone tried this ? Was it successful at all ? Regards Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2012 Report Share Posted May 29, 2012 I use decaffeinated green tea extract. Diamox and shunts are not an option for me. I found out about it during some research on IH. Any questions ask, I'm not shy. Take care of you, you're important to me. Big gentle huggles, Di (Dimntd) in Feasterville-Trevose, PA, USA ) I'm the only dimntd on Facebook, look for the 2 dogs in the grass. Be the person your pets think you are. Hi Debbie, Well the doctors surprise makes sense, if you had your MRI laying down (where you seem to be ok), you probably had your decompression a little bit on the upright side, to some degree or another (and that's when your problems start), so the surgeon would be seeing it 'as it really was' when it was affecting you. Gravity has a lot to do with it, it can fight with us, or against us. Head/neck position is also an important factor as, it can allow, or restrict, CSF flow depending on the level and/or most affected side of your 'cerebellar tonsilar ectopia' (the brain tissue that's partially blocking the hole at the bottom of your skull). I am best with my head straight forwards, slightly rotated to the left. When I was still at work, I had to have all of my computer equipment moved from the right hand side of my desk, to the left, to ease my discomfort. I can also understand how stretching could work, just a theory mind, could it make any 'pliable' components (maybe the brainstem/spinal cord marginally thinner, allowing better passage of fluids Don't know, any other ideas on this one? I know some of us are recommended to have traction, or inversion therapy (being upside down for periods) Has anyone tried this ? Was it successful at all ? Regards Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2012 Report Share Posted May 29, 2012 Dimntd, Please tell me more about decafeinated green tea and IH, I did not know about this. De: " Di (dimntd) ) " Responder a: < > Fecha: martes 29 de mayo de 2012 02:02 Para: < > Asunto: Re: Diamox alternatives I use decaffeinated green tea extract. Diamox and shunts are not an option for me. I found out about it during some research on IH. Any questions ask, I'm not shy. Take care of you, you're important to me. Big gentle huggles, Di (Dimntd) in Feasterville-Trevose, PA, USA ) I'm the only dimntd on Facebook, look for the 2 dogs in the grass. Be the person your pets think you are. On 5/28/2012 8:53 AM, ThatBarbaraLady@... <mailto:ThatBarbaraLady%40aol.com> wrote: Hi Debbie, Well the doctors surprise makes sense, if you had your MRI laying down (where you seem to be ok), you probably had your decompression a little bit on the upright side, to some degree or another (and that's when your problems start), so the surgeon would be seeing it 'as it really was' when it was affecting you. Gravity has a lot to do with it, it can fight with us, or against us. Head/neck position is also an important factor as, it can allow, or restrict, CSF flow depending on the level and/or most affected side of your 'cerebellar tonsilar ectopia' (the brain tissue that's partially blocking the hole at the bottom of your skull). I am best with my head straight forwards, slightly rotated to the left. When I was still at work, I had to have all of my computer equipment moved from the right hand side of my desk, to the left, to ease my discomfort. I can also understand how stretching could work, just a theory mind, could it make any 'pliable' components (maybe the brainstem/spinal cord marginally thinner, allowing better passage of fluids Don't know, any other ideas on this one? I know some of us are recommended to have traction, or inversion therapy (being upside down for periods) Has anyone tried this ? Was it successful at all ? Regards Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2012 Report Share Posted May 29, 2012 I have been told by every neurologist I have seen in the past 6 years to avoid green tea and soy at all costs. From: [mailto: ] On Behalf Of Frade Rubio Sent: Tuesday, May 29, 2012 10:58 AM To: Subject: Re: Re: Diamox alternatives Dimntd, Please tell me more about decafeinated green tea and IH, I did not know about this. De: " Di (dimntd) ) " <dimntd@... <mailto:dimntd%40verizon.net> > Responder a: < <mailto:%40yahoogroups.com> > Fecha: martes 29 de mayo de 2012 02:02 Para: < <mailto:%40yahoogroups.com> > Asunto: Re: Diamox alternatives I use decaffeinated green tea extract. Diamox and shunts are not an option for me. I found out about it during some research on IH. Any questions ask, I'm not shy. Take care of you, you're important to me. Big gentle huggles, Di (Dimntd) in Feasterville-Trevose, PA, USA ) I'm the only dimntd on Facebook, look for the 2 dogs in the grass. Be the person your pets think you are. On 5/28/2012 8:53 AM, ThatBarbaraLady@... <mailto:ThatBarbaraLady%40aol.com> <mailto:ThatBarbaraLady%40aol.com> wrote: Hi Debbie, Well the doctors surprise makes sense, if you had your MRI laying down (where you seem to be ok), you probably had your decompression a little bit on the upright side, to some degree or another (and that's when your problems start), so the surgeon would be seeing it 'as it really was' when it was affecting you. Gravity has a lot to do with it, it can fight with us, or against us. Head/neck position is also an important factor as, it can allow, or restrict, CSF flow depending on the level and/or most affected side of your 'cerebellar tonsilar ectopia' (the brain tissue that's partially blocking the hole at the bottom of your skull). I am best with my head straight forwards, slightly rotated to the left. When I was still at work, I had to have all of my computer equipment moved from the right hand side of my desk, to the left, to ease my discomfort. I can also understand how stretching could work, just a theory mind, could it make any 'pliable' components (maybe the brainstem/spinal cord marginally thinner, allowing better passage of fluids Don't know, any other ideas on this one? I know some of us are recommended to have traction, or inversion therapy (being upside down for periods) Has anyone tried this ? Was it successful at all ? Regards Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2012 Report Share Posted May 30, 2012 I slept upside down quite often as it was one of the only ways to get comfortable for me! Prior to my diagnoses I saw a chiropractor who, in her testing, used her hands to " lift " my head straight up. It felt really weird but suddenly most of my pain was gone! I'd been in so much pain for so long that I wished she could hold it there all day to give me a break. As soon as she let go though the pain was back full force. As part of my physical therapy now, I do some traction and it does seem to help. Cortney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2012 Report Share Posted May 30, 2012 I have a lot of allergies which is why I cannot take Diamox or have a shunt implanted. After doing some research and discovering green tea was a diuretic I decided to try it out. I'd had green tea before and knew I was not allergic. It does help control the pressure in my head. I'm currently taking 1-2 725mg capsules 2 times a day depending on the weather and how I am feeling. It will suppress appetite so make sure to eat before taking it. It is also important to drink plenty of fluids s it does not cause dehydration. I buy it from Vitacost, their prices are good and I trust their supplements. Any questions ask, I'm not shy. Take care of you, you're important to me. Big gentle huggles, Di (Dimntd) in Feasterville-Trevose, PA, USA ) I'm the only dimntd on Facebook, look for the 2 dogs in the grass. Be the person your pets think you are. Dimntd, Please tell me more about decafeinated green tea and IH, I did not know about this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 Why? Sharon Lang > I have been told by every neurologist I have seen in the past 6 years to > avoid green tea and soy at all costs. > > From: > [mailto: ] On Behalf Of > Frade Rubio > Sent: Tuesday, May 29, 2012 10:58 AM > To: > Subject: Re: Re: Diamox alternatives > > Dimntd, > Please tell me more about decafeinated green tea and IH, I did not know > about this. > > De: " Di (dimntd) ) " <dimntd@... <mailto:dimntd%40verizon.net> > > Responder a: < > <mailto:%40yahoogroups.com> > > Fecha: martes 29 de mayo de 2012 02:02 > Para: < > <mailto:%40yahoogroups.com> > > Asunto: Re: Diamox alternatives > > I use decaffeinated green tea extract. Diamox and shunts are not an > option for me. I found out about it during some research on IH. > > Any questions ask, I'm not shy. Take care of you, you're important to me. > > Big gentle huggles, > Di (Dimntd) in Feasterville-Trevose, PA, USA ) > I'm the only dimntd on Facebook, look for the 2 dogs in the grass. > > Be the person your pets think you are. > > On 5/28/2012 8:53 AM, ThatBarbaraLady@... > <mailto:ThatBarbaraLady%40aol.com> > <mailto:ThatBarbaraLady%40aol.com> wrote: > Hi Debbie, > Well the doctors surprise makes sense, if you had your > MRI laying down (where you seem to be ok), you probably > had your decompression a little bit on the upright side, to > some degree or another (and that's when your problems > start), so the surgeon would be seeing it 'as it really was' > when it was affecting you. Gravity has a lot to do with it, > it can fight with us, or against us. > > Head/neck position is also an important factor as, it can > allow, or restrict, CSF flow depending on the level and/or > most affected side of your 'cerebellar tonsilar ectopia' > (the brain tissue that's partially blocking the hole at the > bottom of your skull). I am best with my head straight > forwards, slightly rotated to the left. > > When I was still at work, I had to have all of my > computer equipment moved from the right hand side > of my desk, to the left, to ease my discomfort. > > I can also understand how stretching could work, > just a theory mind, could it make any 'pliable' > components (maybe the brainstem/spinal cord > marginally thinner, allowing better passage of fluids > Don't know, any other ideas on this one? I know > some of us are recommended to have traction, or > inversion therapy (being upside down for periods) > Has anyone tried this ? Was it successful at all ? > Regards > Barbara > (UK) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 What was the reason for this? Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling pretty good on NO meds in Bethlehem,Pa Re: Re: Diamox alternatives > > > > > > Dimntd, > Please tell me more about decafeinated green tea and IH, I did not know > about this. > > De: " Di (dimntd) ) " <dimntd@... <mailto:dimntd%40verizon.net> > > Responder a: < > <mailto:%40yahoogroups.com> > > Fecha: martes 29 de mayo de 2012 02:02 > Para: < > <mailto:%40yahoogroups.com> > > Asunto: Re: Diamox alternatives > > I use decaffeinated green tea extract. Diamox and shunts are not an > option for me. I found out about it during some research on IH. > > Any questions ask, I'm not shy. Take care of you, you're important to me. > > Big gentle huggles, > Di (Dimntd) in Feasterville-Trevose, PA, USA ) > I'm the only dimntd on Facebook, look for the 2 dogs in the grass. > > Be the person your pets think you are. > > On 5/28/2012 8:53 AM, ThatBarbaraLady@... > <mailto:ThatBarbaraLady%40aol.com> > <mailto:ThatBarbaraLady%40aol.com> wrote: > Hi Debbie, > Well the doctors surprise makes sense, if you had your > MRI laying down (where you seem to be ok), you probably > had your decompression a little bit on the upright side, to > some degree or another (and that's when your problems > start), so the surgeon would be seeing it 'as it really was' > when it was affecting you. Gravity has a lot to do with it, > it can fight with us, or against us. > > Head/neck position is also an important factor as, it can > allow, or restrict, CSF flow depending on the level and/or > most affected side of your 'cerebellar tonsilar ectopia' > (the brain tissue that's partially blocking the hole at the > bottom of your skull). I am best with my head straight > forwards, slightly rotated to the left. > > When I was still at work, I had to have all of my > computer equipment moved from the right hand side > of my desk, to the left, to ease my discomfort. > > I can also understand how stretching could work, > just a theory mind, could it make any 'pliable' > components (maybe the brainstem/spinal cord > marginally thinner, allowing better passage of fluids > Don't know, any other ideas on this one? I know > some of us are recommended to have traction, or > inversion therapy (being upside down for periods) > Has anyone tried this ? Was it successful at all ? > Regards > Barbara > (UK) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 Green Tea is a headache trigger and Soy disrupts the body's normal production of CSF fluid, messes up hormones, blocks nutrient absorption, is where MSG comes from, etc. and that's only a few of the many many reasons why Soy should be listed under the category of Poison. From: [mailto: ] On Behalf Of Sally R Sent: Wednesday, May 30, 2012 9:33 PM To: Subject: Re: Re: Diamox alternatives What was the reason for this? Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling pretty good on NO meds in Bethlehem,Pa Re: Re: Diamox alternatives > > > > > > Dimntd, > Please tell me more about decafeinated green tea and IH, I did not know > about this. > > De: " Di (dimntd) ) " <dimntd@... <mailto:dimntd%40verizon.net> <mailto:dimntd%40verizon.net> > > Responder a: < <mailto:%40yahoogroups.com> > <mailto:%40yahoogroups.com> > > Fecha: martes 29 de mayo de 2012 02:02 > Para: < <mailto:%40yahoogroups.com> > <mailto:%40yahoogroups.com> > > Asunto: Re: Diamox alternatives > > I use decaffeinated green tea extract. Diamox and shunts are not an > option for me. I found out about it during some research on IH. > > Any questions ask, I'm not shy. Take care of you, you're important to me. > > Big gentle huggles, > Di (Dimntd) in Feasterville-Trevose, PA, USA ) > I'm the only dimntd on Facebook, look for the 2 dogs in the grass. > > Be the person your pets think you are. > > On 5/28/2012 8:53 AM, ThatBarbaraLady@... <mailto:ThatBarbaraLady%40aol.com> > <mailto:ThatBarbaraLady%40aol.com> > <mailto:ThatBarbaraLady%40aol.com> wrote: > Hi Debbie, > Well the doctors surprise makes sense, if you had your > MRI laying down (where you seem to be ok), you probably > had your decompression a little bit on the upright side, to > some degree or another (and that's when your problems > start), so the surgeon would be seeing it 'as it really was' > when it was affecting you. Gravity has a lot to do with it, > it can fight with us, or against us. > > Head/neck position is also an important factor as, it can > allow, or restrict, CSF flow depending on the level and/or > most affected side of your 'cerebellar tonsilar ectopia' > (the brain tissue that's partially blocking the hole at the > bottom of your skull). I am best with my head straight > forwards, slightly rotated to the left. > > When I was still at work, I had to have all of my > computer equipment moved from the right hand side > of my desk, to the left, to ease my discomfort. > > I can also understand how stretching could work, > just a theory mind, could it make any 'pliable' > components (maybe the brainstem/spinal cord > marginally thinner, allowing better passage of fluids > Don't know, any other ideas on this one? I know > some of us are recommended to have traction, or > inversion therapy (being upside down for periods) > Has anyone tried this ? Was it successful at all ? > Regards > Barbara > (UK) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 I understand the soy but not the green tea...? Cortney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2012 Report Share Posted June 7, 2012 Green tea is not a headache trigger for everyone. No one treatment works for everyone. Neither Diamox or a shunt are an option for me because of allergies, I am glad I have something. Any questions ask, I'm not shy. Take care of you, you're important to me. Big gentle huggles, Di (Dimntd) in Feasterville-Trevose, PA, USA ) I'm the only dimntd on Facebook, look for the 2 dogs in the grass. Be the person your pets think you are. Green Tea is a headache trigger and Soy disrupts the body's normal production of CSF fluid, messes up hormones, blocks nutrient absorption, is where MSG comes from, etc. and that's only a few of the many many reasons why Soy should be listed under the category of Poison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2012 Report Share Posted June 7, 2012 How do you know about the soy and the CSF fluid, do you have the source exactly? De: " Di (dimntd) ) " Responder a: < > Fecha: jueves 7 de junio de 2012 09:57 Para: < > Asunto: Re: Diamox alternatives Green tea is not a headache trigger for everyone. No one treatment works for everyone. Neither Diamox or a shunt are an option for me because of allergies, I am glad I have something. Any questions ask, I'm not shy. Take care of you, you're important to me. Big gentle huggles, Di (Dimntd) in Feasterville-Trevose, PA, USA ) I'm the only dimntd on Facebook, look for the 2 dogs in the grass. Be the person your pets think you are. Green Tea is a headache trigger and Soy disrupts the body's normal production of CSF fluid, messes up hormones, blocks nutrient absorption, is where MSG comes from, etc. and that's only a few of the many many reasons why Soy should be listed under the category of Poison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2012 Report Share Posted June 7, 2012 Good question, I was about to ask the same thing <g> Sally R Re: Re: Diamox alternatives > How do you know about the soy and the CSF fluid, do you have the source > exactly? > > De: " Di (dimntd) ) " > Responder a: < > > Fecha: jueves 7 de junio de 2012 09:57 > Para: < > > Asunto: Re: Diamox alternatives > > > > > > > Green tea is not a headache trigger for everyone. No one treatment > works for everyone. Neither Diamox or a shunt are an option for me > because of allergies, I am glad I have something. > > Any questions ask, I'm not shy. Take care of you, you're important to me. > > Big gentle huggles, > Di (Dimntd) in Feasterville-Trevose, PA, USA ) > I'm the only dimntd on Facebook, look for the 2 dogs in the grass. > > Be the person your pets think you are. > > > Green Tea is a headache trigger and > > Soy disrupts the body's normal production of CSF fluid, messes up > hormones, > blocks nutrient absorption, is where MSG comes from, etc. and that's > only a > few of the many many reasons why Soy should be listed under the > category of > Poison > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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