Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 Contact Dr. at The Doctors Hospital in Bathesda land. He is the best. To: Sent: Wednesday, April 4, 2012 7:42 AM Subject: I need help urgently  Dear all: I had an MRI yesterday I did not did it after my decompression surgery I guess I was afraid, but symptoms came back again. I need urgently that an expert in Chiari sees them and recomend what to do to my doctors here in mexico. I had been at the Chiari Institute before but I have written them many times in the past and they have never answer me. So I want one Chiari expert to see my MRI. Can you recomend a Doctor from the US, I will wend my MRIs to him or she. Thank you very much. Laaura Mexico Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 I don't know if Dr. Oro is taking MRIs through the mail. But I would check.. Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling pretty good on NO meds in Bethlehem,Pa I need help urgently > Dear all: > > I had an MRI yesterday I did not did it after my decompression surgery I > guess I was afraid, but symptoms came back again. I need urgently that an > expert in Chiari sees them and recomend what to do to my doctors here in > mexico. I had been at the Chiari Institute before but I have written them > many times in the past and they have never answer me. So I want one Chiari > expert to see my MRI. Can you recomend a Doctor from the US, I will wend > my > MRIs to him or she. > > Thank you very much. > Laaura > Mexico > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 Thank you very much for the advice about Dr. , Do you have an email so I can write to him? Frade De: buemi Responder a: < > Fecha: Wed, 4 Apr 2012 08:23:22 -0700 (PDT) Para: " " < > Asunto: Re: I need help urgently Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 Sally, Thank you. Please ask Dr. Oro I really need an expert opinion. , Mexico De: Sally R Responder a: < > Fecha: Wed, 04 Apr 2012 12:05:14 -0400 Para: < > Asunto: Re: I need help urgently I don't know if Dr. Oro is taking MRIs through the mail. But I would check.. Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling pretty good on NO meds in Bethlehem,Pa I need help urgently > Dear all: > > I had an MRI yesterday I did not did it after my decompression surgery I > guess I was afraid, but symptoms came back again. I need urgently that an > expert in Chiari sees them and recomend what to do to my doctors here in > mexico. I had been at the Chiari Institute before but I have written them > many times in the past and they have never answer me. So I want one Chiari > expert to see my MRI. Can you recomend a Doctor from the US, I will wend > my > MRIs to him or she. > > Thank you very much. > Laaura > Mexico > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2012 Report Share Posted April 5, 2012 Hi : The neurosurgical team at Mayfield in Cincinnati, Ohio, reviews MRIs for free, and they report back to you within 48 hours after receiving your medical files. See the details at www.MayfieldChiariCenter.com. Good luck. Hope you feel better. Sandy in OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2012 Report Share Posted April 5, 2012 , I have no contact with Dr. Oro... He has a website that you can access him from. http://www.chiaricare.com/ Hope you get some good answers.. Sally I need help urgently > >> Dear all: >> >> I had an MRI yesterday I did not did it after my decompression surgery I >> guess I was afraid, but symptoms came back again. I need urgently that an >> expert in Chiari sees them and recomend what to do to my doctors here in >> mexico. I had been at the Chiari Institute before but I have written them >> many times in the past and they have never answer me. So I want one >> Chiari >> expert to see my MRI. Can you recomend a Doctor from the US, I will wend >> my >> MRIs to him or she. >> >> Thank you very much. >> Laaura >> Mexico >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2012 Report Share Posted April 5, 2012 I can give info on a GREAT doctor in Florida.He preformed my 2 surgeries One was decompression and the other was a repair.My dura was so thin by the time he opened my head that it basically fell apart and was much harder to patch after cutting into it. He did a second surgery and a temporary lumbar shunt(which was taken out 5 days later) to make sure I would have no further issues.I am 4 months post op and feel 1million times better than I have ever felt in my life! He is currently my children's surgeon as well as they all three were diagnosed with CM,SM and EDS.No one can tell me this isn't hereditary. It can however skip a generation which is why I think they are having a hard time pin pointing the exact cause.Anyway.Our family Neurosurgeon's name is Dr. R. Trumble at " Neurosurgeons4kids " in Orlando Florida.There phone number is 1(407)236-0006.Ask for she is wonderful and tell her that H. and Drakco sent you and told you all about them. has become like a family member and as well as .They are truly life savers and put their heart and minds into saving those with Chiari. He has been doing this for over 20yrs.He also have 7children of his own and is a wonderful friendly person.I know it doesn't cost anything to look at an MRI.He is just a sweet heart! You will love him! He treats you like family and if there are 5people waiting to see him when he sees you It feels as if the office is empty and focus is completely on you and your issues!I have never met any other doctor that does this. In you case he will look at the films and will call you for your results.If you want to visit his office there is a " Variety House "  available first come first serve for free lodging and if not there Comfort Suits across form Florida Hospital give discounts to patients. Here is their information.Oh and BTW HELLO SALLY R.! It's KELLY! I miss you girl!I am doing wonderfully!You are a true blessing to this site,and I wouldn't have made it with out your help either! http://www.ratemds.com/doctor-ratings/27302/Dr--R.-Trumble-ORLANDO-FL.html ________________________________ To: Cc: Sally R Sent: Thursday, April 5, 2012 12:34 PM Subject: Re: I need help urgently  , I have no contact with Dr. Oro... He has a website that you can access him from. http://www.chiaricare.com/ Hope you get some good answers.. Sally I need help urgently > >> Dear all: >> >> I had an MRI yesterday I did not did it after my decompression surgery I >> guess I was afraid, but symptoms came back again. I need urgently that an >> expert in Chiari sees them and recomend what to do to my doctors here in >> mexico. I had been at the Chiari Institute before but I have written them >> many times in the past and they have never answer me. So I want one >> Chiari >> expert to see my MRI. Can you recomend a Doctor from the US, I will wend >> my >> MRIs to him or she. >> >> Thank you very much. >> Laaura >> Mexico >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 : Do you have your Doctors email? It will be much easier to contact him this way. De: kelly herring Responder a: < > Fecha: Thu, 5 Apr 2012 10:14:19 -0700 (PDT) Para: " " < > Asunto: Re: I need help urgently Quote Link to comment Share on other sites More sharing options...
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