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Dee, I have the exact same thing. When it comes to the neck going out I am in

massive pain and it is always out ( with massive headache) and my lower back

hurts all the time. They did a study a few years ago stating that the gene

responsible for the ACM is also responsible for Spina Bifida so I truly believe

that the spine is effected with this.

Not sure any of the meds have helped me to much degree except for hydrocodone

and flexeril and they do not do a complete job of helping. Hope this helps a

bit.  Kathy

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