Re: So much pain.

[Guest guest]

Dear Jenifer,

Perhaps you should get some of our free brochures from Bob at

oldgoat378@... and show your doctor how important pain management can be

with this or any disease for that matter?

That is why pain management words are used so that your pain can hopefully be

managed while you are trying to function on a daily basis, not to be drugged so

much that you cannot function.

Always restricted to certain amounts, my rheumatologist has always understood

the importance of pain management in my disease course. I believe it is a very

important aspect of treatment.

If your doctor doesn't feel comfortable in helping you with this issue, perhaps

he/she would be willing to refer you to a pain center where they specialize?

I'm very sorry you are so sick right now. Please try and rest where and when you

can and let us know how you're doing when you can.

Many hugs,

So much pain.

I just cannot believe the amount of pain I am in right now. I think Ive

mentioned before, but my rheumatologist will not prescibe any narcotic pain

relievers to me because he " thinks Im too young to take them on a regular basis "

(I am 23 years old) however he also said that he does prescibe them to older

patients with rheumatoid arthritis because he knows how painful it is!

[Guest guest]

You should try to get your doc to refer you to a pain specialist...or the pain

team at your local hospital...What area are you in? Maybe someone here has some

experience with more assistance. My daughter is 22 and has had severe issues

for 7+ years. She works directly with the pain team at LPCH/Stanford Hospital.

I am sure that help is just an email away!

Take good care,

So much pain.

Hello everyone. I am having the worst month! I thought I was finally starting to

feel better, but I am no longer feeling that way. I am having the worst flare

that I think Ive ever had right now. My joints are so swollen and stiff I can

barely move. Also, my lefy eye is blurry on and off and it feel like there is a

film or something covering it, but theres nothing I can see in my eye. I have an

eye doctors appointment tomorrow to check it since Im takig plaquenil. I just

cannot believe the amount of pain I am in right now. I think Ive mentioned

before, but my rheumatologist will not prescibe any narcotic pain relievers to

me because he " thinks Im too young to take them on a regular basis " (I am 23

years old) however he also said that he does prescibe them to older patients

with rheumatoid arthritis because he knows how painful it is! It doesnt seem

fair. I dont WANT to take them on a regular basis, but I would like to be in

less pain right now so that I can function. I cant even sleep, I have slept

maybe 4 hours in the last 3 days. I dont know if I should call my rheumy and try

to get an appointment or see if he will maybe call something in for me. I dont

want him to think I just want the pain meds, but I cant deal with this amount of

pain much longer. Nothing is helping! What should I do? I am trying to deal with

it on my own, my aunt passed away on thursday so i dont want to bother my family

for help, i havent even told them how bad it is. I know my mother knows that im

not doing well, but i dont want to add more stress to her either. Sorry for the

pouting and feeling sorry for myself, but this is such a bad month so far, it

has to get better. Any advice is welcome.

Jenifer

[Guest guest]

Jenifer

 call our Ra doc and tell him just what you have us.push and if need be push

hard or find a new doc that will help you as being in pain is not good for you

as it can be almost like its feeding the flair. I know had a few docs that would

not give me any thing for pain but aspirin for a few years I can say they are no

longer my doctors and the ones I have now do not like to give pain killers out

but will if they are made to understand how bad the pain is and that I only want

them for break threw pain and after a bit of time they now see that is the only

way I use them as one DX ran out before I had it refilled even . My doc was a

bit surprised when I had to ask for a new DX and I explained why. but tell them

just like you were talking to us and if they will not help you ask to see a pain

specialist at lest

hugs and thinking of you because I have been there just not as bad as you I

believe

 

The Redneck

Marty G.

Be careful about reading health books. You may die of a misprint.

Mark Twain

________________________________

Subject: So much pain.

 

Hello everyone. I am having the worst month! I thought I was finally starting to

feel better, but I am no longer feeling that way. I am having the worst flare

that I think Ive ever had right now. My joints are so swollen and stiff I can

barely move. Also, my lefy eye is blurry on and off and it feel like there is a

film or something covering it, but theres nothing I can see in my eye. I have an

eye doctors appointment tomorrow to check it since Im takig plaquenil. I just

cannot believe the amount of pain I am in right now. I think Ive mentioned

before, but my rheumatologist will not prescibe any narcotic pain relievers to

me because he " thinks Im too young to take them on a regular basis " (I am 23

years old) however he also said that he does prescibe them to older patients

with rheumatoid arthritis because he knows how painful it is! It doesnt seem

fair. .........Jenifer

[Guest guest]

I have an update. I called my rheumy yesterday and left a voicemail, and they

called and set up an emergency appointment for this morning. He has decided to

put me on either enbrel or humira, depending on which one is covered by my

insurance. He also did a Vextra blood test (I think that was the name of it) to

test my biomarkers and try to determine which medications would best control the

Stills. Has anyone else had this done? I had to also get a TB test done before I

can start the biologics. And, he gave me pain meds!!!!!!! I cant believe he

actually prescribed it, but Im so glad he did. I am going to go lay back in my

bed now and rest and try to wait out this crazy rainy weather we are having here

that isnt helping my joints one bit. Hope everyone is doing okay, thanks for the

advice, talking to him openly helped so much, he seemed to finally understand

what I am going through right now.

Jenifer

>

> Hello everyone. I am having the worst month! I thought I was finally starting

to feel better, but I am no longer feeling that way. I am having the worst flare

that I think Ive ever had right now. My joints are so swollen and stiff I can

barely move. Also, my lefy eye is blurry on and off and it feel like there is a

film or something covering it, but theres nothing I can see in my eye. I have an

eye doctors appointment tomorrow to check it since Im takig plaquenil. I just

cannot believe the amount of pain I am in right now. I think Ive mentioned

before, but my rheumatologist will not prescibe any narcotic pain relievers to

me because he " thinks Im too young to take them on a regular basis " (I am 23

years old) however he also said that he does prescibe them to older patients

with rheumatoid arthritis because he knows how painful it is! It doesnt seem

fair. I dont WANT to take them on a regular basis, but I would like to be in

less pain right now so that I can function. I cant even sleep, I have slept

maybe 4 hours in the last 3 days. I dont know if I should call my rheumy and try

to get an appointment or see if he will maybe call something in for me. I dont

want him to think I just want the pain meds, but I cant deal with this amount of

pain much longer. Nothing is helping! What should I do? I am trying to deal with

it on my own, my aunt passed away on thursday so i dont want to bother my family

for help, i havent even told them how bad it is. I know my mother knows that im

not doing well, but i dont want to add more stress to her either. Sorry for the

pouting and feeling sorry for myself, but this is such a bad month so far, it

has to get better. Any advice is welcome.

>

> Jenifer

>

[Guest guest]

I just wanted to correct the test name, it is VECTRA not vextra. Here is the

website about it http://www.crescendobio.com/crescendo/vectra/900-vectra-da.aspx

It tests biomarkers to see your disease activity so that your doctor can monitor

it. It also helps them decide on whether biologics would be beneficial or if

they should move on to another treatment.

Also, I went to the eye doctor, and everything looks good. He says the

blurriness is probably just tired eyes and the fact that I have a slight

astigmatism. Got some awesome new glasses though!

Jenifer

>

> Hello everyone. I am having the worst month! I thought I was finally starting

to feel better, but I am no longer feeling that way. I am having the worst flare

that I think Ive ever had right now. My joints are so swollen and stiff I can

barely move. Also, my lefy eye is blurry on and off and it feel like there is a

film or something covering it, but theres nothing I can see in my eye. I have an

eye doctors appointment tomorrow to check it since Im takig plaquenil. I just

cannot believe the amount of pain I am in right now. I think Ive mentioned

before, but my rheumatologist will not prescibe any narcotic pain relievers to

me because he " thinks Im too young to take them on a regular basis " (I am 23

years old) however he also said that he does prescibe them to older patients

with rheumatoid arthritis because he knows how painful it is! It doesnt seem

fair. I dont WANT to take them on a regular basis, but I would like to be in

less pain right now so that I can function. I cant even sleep, I have slept

maybe 4 hours in the last 3 days. I dont know if I should call my rheumy and try

to get an appointment or see if he will maybe call something in for me. I dont

want him to think I just want the pain meds, but I cant deal with this amount of

pain much longer. Nothing is helping! What should I do? I am trying to deal with

it on my own, my aunt passed away on thursday so i dont want to bother my family

for help, i havent even told them how bad it is. I know my mother knows that im

not doing well, but i dont want to add more stress to her either. Sorry for the

pouting and feeling sorry for myself, but this is such a bad month so far, it

has to get better. Any advice is welcome.

>

> Jenifer

>