Re: Ask the Experts Dr. Bolognese answers

[Guest guest]

Dr. B got this question right. By " vibrations " I understand you to mean tremors

or something similar. Because of loose ligaments, when I turn my neck or tilt my

head I get uncoordination in the arms and legs. The fine balance of muscles

pulling this way and pushing that way is off kilter because of a disturbance in

the nervous system. Dr. B's answer confirms the spinal cord is being irritated

in some way.

--- " Jeff and Kathleen Grigg " wrote:

> 2. When a patient's body seems to vibrate inside, what is the reason?

>

> Compression or dysfunction of the posterior columns (spinal cord) can cause

that.

[Guest guest]

Hmmm.... The issue with the spinal cord could certainly be the answer...

But when I discuss " vibrations " in regards to Chiari it is different that

tremors. ( I have had these,too. <g>)

With the vibrations they are not visible to an observer, my tremors sure

were. When I get the vibration thing, there really aren't other symptoms

present...no unco-ordination...weakness, whatever. It is more just this

weird internal sorta " hum " all through my body. It's usually when I am lying

down... thus leading me to believe that the whole fluid balance has

something to do with it.

It's just something that I have always wondered about.

Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling

pretty good on NO meds in Bethlehem,Pa

Re: Ask the Experts Dr. Bolognese

answers

> Dr. B got this question right. By " vibrations " I understand you to mean

> tremors or something similar. Because of loose ligaments, when I turn my

> neck or tilt my head I get uncoordination in the arms and legs. The fine

> balance of muscles pulling this way and pushing that way is off kilter

> because of a disturbance in the nervous system. Dr. B's answer confirms

> the spinal cord is being irritated in some way.

>

> --- " Jeff and Kathleen Grigg " wrote:

>> 2. When a patient's body seems to vibrate inside, what is the reason?

>>

>> Compression or dysfunction of the posterior columns (spinal cord) can

>> cause that.

>

>

>

[Guest guest]

Thanks for answering Sally . The vibration is difficult to explain. Mine

started in just my head, then they progressed to the rest of my body. At the

time I related it to being in a car that isn't running well. Some finally

said the word I wanted to say was my entire body was vibrating. I shortly

after had surgery.

Kathleen

Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed

with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome,

surgery for everything but EDS since 1998.

http://chiariconnectioninternational.com/

Hmmm.... The issue with the spinal cord could certainly be the answer...

But when I discuss " vibrations " in regards to Chiari it is different that

tremors. ( I have had these,too. <g>)

With the vibrations they are not visible to an observer, my tremors sure

were. When I get the vibration thing, there really aren't other symptoms

present...no unco-ordination...weakness, whatever. It is more just this

weird internal sorta " hum " all through my body. It's usually when I am lying

down... thus leading me to believe that the whole fluid balance has

something to do with it.

It's just something that I have always wondered about.

Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling

pretty good on NO meds in Bethlehem,Pa

Re: Ask the Experts Dr. Bolognese

answers

> Dr. B got this question right. By " vibrations " I understand you to mean

> tremors or something similar. Because of loose ligaments, when I turn my

> neck or tilt my head I get uncoordination in the arms and legs. The fine

> balance of muscles pulling this way and pushing that way is off kilter

> because of a disturbance in the nervous system. Dr. B's answer confirms

> the spinal cord is being irritated in some way.

>

> --- " Jeff and Kathleen Grigg " wrote:

>> 2. When a patient's body seems to vibrate inside, what is the reason?

>>

>> Compression or dysfunction of the posterior columns (spinal cord) can

>> cause that.

>

>

>

[Guest guest]

I had never heard any other patient mention this until that question. I thought

I just had another weird symptom...! I have gotten these vibrations ever since

the major symptoms came on. Mine are generally in one area of the body at a time

and feel as if a cell phone on vibrate is inside. Interesting... Cortney

[Guest guest]

I thought I was the only one who had ever felt this, from the way my dr reacted,

so I never told them about it at TCI. It sounds  strange to say that I'm

actually glad to hear that more than me have felt this sensation -- like there's

a vibrator going off inside me. For me, a small dose of Tegretol (50 mg 2x day)

completely controls it.

Anne

[Guest guest]

chiari (CCI)I’ve had the “buzzies†for years. For

me it is like a faint cell phone

vibration inside. Not painful, no one can see it, at first it was scary

and unnerving, now it is just annoying.

Pam in Alabama