Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Jennie Unknown wrote: > Ok Bill you got me thinking... YEA!! Good. > Here's my wanderings though not set in stone > thoughts....(i.e. I'm not yet opinionated on the subject! <g>) > > Aren't the labels also for autistic people? Yes. They're for *everybody*, as long as *anyone* finds them useful. But utility varies in proportion to the understanding gained by even having labels. The Name is not the Thing. > Many of us went out and got > diagnosed so as to label ourselves. Maybe I'm alone on this but my > motivation was to find a 'group' that I actually belonged in and/or to find > out why I don't fit in with the people as a whole group. Seems like that's > pretty basic to humans, always wanting to group together with similar people > and giving it a name. I did the same, " went out and got " , but not because I wanted or needed to " group together with similar people " . I wanted, *needed*, validation; in the sense that what I'd come to believe about myself was real. That I *wasn't* Commander Data - the only one of my kind. It was enough to know there was an extant body of knowledge about my kind. That it was incomplete, still growing and changing, didn't bother me. It provided me a new focus for self-study, self-realization. > > Aren't also the labels necessary for clear communication between people as > to what they are talking about? I mean you wouldn't want professional A to > send an autistic person to professional B only to have the second > professional treating the person for mental illness when what they are is > autistic? (Which come to think of it happens even with labels!) Seems like > you kind of have to have labels for things or there would be complete chaos > in communication between professionals, between patients, between parents, > and all three together? Maybe the point would be that while all agree to > call it something they should understand its just a name for lack of knowing > more? All of what you just said (though in different words) was subsumed in what I wrote. So of course I agree. Re-phrasing is good though. It helps gain " ownership " of an idea, which then is more personally understandable. > > Also I'm wondering about varying levels of autism. Clearly it would seem > some people have a more severe version of autism... that's not an artificial > boundary? It is. To the extent that " autism " is insufficiently-well defined. People keep *adding* to extant agreements (about autism) in a very ad-hoc manner. Co-morbidities are confused with core characteristics. Even, co-morbidities are " treated " (with some success), and " cures " of autism are trumpeted through the land. The *co-morbidity* is helped, maybe; ...*autism remains*. What then have we *learned*, apart from lessons about human gullibility? By confusing Names with Things, viewing red-herrings as " real " autism, have we advanced knowledge and understanding? No. > > Jennie - just wondering if I'm missing your point altogether or if I'm > expanding on it... would love to read some more of your thoughts on this > topic You're both missing something, *and* expanding. Try a paradigm shift: Think speciation in birds (as a model). Birders hereon, recalling the " lumper-splitter " wars over Orioles and Towhees and..., etc. etc. may understand. Shelve autism-as-abnormal. Try thinking Autism-as-Race (like a geneticist might). Think of the various autism labels as sub-races. This is " population " thinking, not the long outmoded " typological " thinking. In that paradigm there are no hard boundaries, no well-defined ranges. There is nothing but continuous change, continuous intergrading. ALL, at some level, have some characteristics of All Else. The mathematics isn't Arithmetic, hard-edged and final; but Statistics, fluid and ever-changing. Firm labels, ...aren't. Nor are their meanings. *Now* " a little bit autistic " and " almost normal " *can* make sense and begin to mean something. The ideas they represent can spring from realistic and quantifiable bases. AS and NT then are merely sub-sets of each other. All our capabilities are plastic and *do intergrade*. They're *not dependent* on arbitrary labels. Labels themselves can begin to mean something: they can be defined by observable, quantifiable, facts; not arbitrary groupings and subjective labels. Objective facts drive our understanding. Our Truths are modifiable and extensible via new *facts*. Another way of seeing the paradigm differences: In typological thinking " a little bit pregnant " is a joke. You either *are*, or you *are not*. In population thinking it's an omnipresent reality for all women at *any* stage of pregnancy. The underlying biology of that matter can and does change throughout pregnancy. There is no " are; are not " dichotomy. It's *always* " a little bit " , then more, and more, and more, and... In a nutshell: The one (typological) is convenient but inaccurate. The other (population) is accurate and more difficult. " Population thinking " isn't what we learned in school, much less at our mother's knee. But it much better represents underlying realities in our world; it's the paradigm of choice in modern science. And in medicine and mental-health fields, to the extent either may be science. AND it's the bleeding-edge of the " autism " field. We *all* are a " little bit autistic " AND " a little bit 'normal' " . AS and NT are artificial notions. Any " Asperger " and " HFA " difference is even more artificial, and largely meaningless. NB: *none of that* denies reality to AS and NT as distinguishably different *population* aggregates, ...*types* of people. - Bill, dx AS; ...windy geneticist > > Re: Zoo -- was--Why a firm wants staff with > autism > >> Newland wrote: >>> " Boundaries " between the labels are artificial; ...for the convenience >>> of non-autistic people trying to understand what autism is. >>> >>> - Bill, dx AS;; ...opinionated >>> >>> Bill: What are these labels in your opinion? >> When you've got a critter before you which *mostly* looks like all the >> other critters around, but which *has* a few interesting differences, >> you begin to assemble all of them into groups. [ snip ] -- WD " Bill " Loughman - Berkeley, California USA http://home.earthlink.net/~wdloughman/wdl.htm Quote Link to comment Share on other sites More sharing options...
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