Guest guest Posted March 7, 2012 Report Share Posted March 7, 2012 Here is another note from CSF: In case you are interested, here is some information about the unite@night walk CSF will be holding. unite@night will be a one mile casual evening walk, in various locations around the country, during the month of June in 2012. This walk will bring together people who are suffering with the devastating effects of Chiari malformation, syringomyelia, Ehlers-Danlos, hydrocephalus, intracranial hypertension, dysautonomia, autism, and related disorders. unite@night will support CSF Chapters to provide education and increase awareness while funding research projects that can potentially find answers to help those who are fighting these disorders. Here is the link: http://www.csfinfo.org/node/287 Thanks so much. Poznik Quote Link to comment Share on other sites More sharing options...
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