Re: still feeling weak

[Guest guest]

Amy

 I feel for you and yes I did feel like that when my blood pressure went

crazy along with my bad reaction to remacaid. in the end the crazy blood

pressure then was believed to be a part of the Remacaid problem also but it

takes a bit of time for it to all work out of the system so I got to fight it

for a long time as I was done with the short term infusions by then and they

were now at 4 week intervals. what was crazy is every two infusions I would be

fine and the next one crazy things would happen but the blood pressure one was

the worst one and it is also the one that almost killed me to boot.

Now I can not say what yours is from any more then the man on the moon but maybe

I have given you some food for thought. any way hand in there as some were some

how it should get a bit better and any thing better then now would be good news

or at lest that is how I felt.

 

The Redneck

Marty G.

Be careful about reading health books. You may die of a misprint.

Mark Twain

[Guest guest]

Amy I am so sad for you. I know Avery's bp was crazy during his flair. It

would be 108/32 to 170/86. His hr did the same thing. It took him quite a

while after that to get his energy back. He could do a little more every day

but would still need to rest a lot. It's actually been about a month for him to

get back to almost full speed.

Amy - Avery 17 systemic

[Guest guest]

Hi Amy

I have felt this way since I was hospitalized for 14 days a year ago April. It

has never resolved. I have pain mostly in my muscles in my legs and it is a

deep pain with a constant ache weather sitting still or moving. My joints

mostly hurt when I move and they are very stiff. The fatigue is awful and I

just cant shake it. It feels like the flu constantly since I get fevers and

sore throats almost daily.

Heidi

From: Amy Feather

Sent: Monday, November 08, 2010 4:22 PM

To: stillsdisease

Subject: still feeling weak

Hi Everyone

been out of the hospital for a week now still can't get any energy back my Dr

has no idea why my blood pressure went so wackie if I do something to this day I

get very tired I took my little one to family dollar we walked around for about

10 min I had to tell my daughter we had to go I got very tired and my muscle

ache all over. My Dr upped my steroids and put me on potassium pills there are

times I can feel my heart beat in my throat even if I stretched my legs I'm

exhausted and muscles ache I'm so tired of feeling like this I have been sick

since the beginning of Oct. has this happen to anyone else my joints hurt I cant

move very good anymore I hate this disease I don't know how much more I can take

Amy