Re: NCC Caregivers

[Guest guest]

Thank you for this. I so agree. Myself and 2 children have chiari .

________________________________

To: chiari

Sent: Monday, January 30, 2012 12:53 PM

Subject: NCC Caregivers

 

I gave this alot of consideration as I realize it is infringing on peoples

personal lives. HOWEVER having been a victim of abuse and working with other

abused women I feel as though I must say this. NO ONE should be expected to

take abuse to a degree from a member of their own family that they would not

take from a stranger ! Those of us with Chiari are in pain, many of us have

lost the way of life we once took very much for granted to a debilitating and

chronic illness. It is: frustrating, frightening,angering,depressing,makes us

bitter,sad,lonely,confused,in some situations embarrassed and can turn us into a

recluse, allowing mental illness to set in. We are desperately trying to make a

journey into an unknown land with a map that has been hand written by those

traveling ahead of us. I refer to those HEROS, many who post on this website,

as the and s of the Blocked Spinal Fluid !!!! NONE of these feelings

(and I am certain those of you

more eloquent than I can add 100 more) give us the right to be abusive to

someone ANYONE that is trying to HELP us. Caregivers please recognize that there

IS a DIFFERENCE in us having a " bad day " or a string of them, or being " crabby "

& " Cranky " and being abusive. Caregivers please recognize if WE adults who

have CM/SM are NOT willing to take the necessary steps to help ourselves, there

is NOTHING you as a caregiver can do to help us! So I would have to make the

same recommendation to you that is made to every other spouse in an abusive

situation, deliver an ultimatum to the abuser. The ABUSER WHO IS ALWAYS

MENTALLY UNSTABLE regardless of the circumstance that is causing it, seek help

for that or you are out the door. Remaining in an abusive environment can only

make you and your children ill ! As for the lady with the interfering Mother in

law, I strongly suggest you tell her unless she is going to be a part of the

solution, that she is a part of

the problem so she will need to butt out.