Kayla!

[Guest guest]

Well folks...as per promise....the update on Kayla and the Doctor

(Neurologist)

First: intern wanted to shut the door to the exam room. Dad asked to

leave it open. " We don't have any secrets about this. Besides, Bob will

put it on the net tonight anyway! " <g> So with that....here goes...

First Melloril seems to be helping. We have had three great school days

(shortened at home...but that is another story) Kayla has been working and

concentrating like I haven't seen in a LONG time...if ever.

Second. The neurologist gave me the impression that the comments from

others about degeneration were not accurate. After hearing her, I dropped

my jaw and asked for clarification. She reinforced that. SO...it seems

like the concerns about degeneration that I passed on earlier may or may

not be there. If they are, the neurologist gave me the impression that the

MRI didn't or wouldn't show that...at least one. She did mention that the

cochlea were not developed...thus the profound deafness.I have not had a

chance to confer with the school nurse who came along with, but that is my

immediate impression.

Kayla was great the whole time and really enjoyed the exam...especially the

reflex hammer! She was laughing uproariously during the hammer time. She

didn't squeeze too hard or offer resistance when asked to do so...but

knowing her strength, I think she was just trying to please the Doctor!

She also did great during the drawing of the blood. The further tests are

brain wave and blood exams (metabolism...chemicals etc I think).

BTW, I have chuckled a lot as I have seen some of the shoe issues, and the

dentist issues. Kayla doesn't like her shoes on...and enjoyed them coming

off during the exam! (Doesn't wear them during home time) Her obsession,

NOW is pants. She lurched towards an intern at the office, and we had to

let the intern know that Kayla just wanted to see her pants. She used to

do shoes like that. We just tell people, " She can't see well, and she is

really fascinated with pants. She won't hurt you. " and don't get embarrassed!

The Doc today said Kayla ought to have her teeth worked on while under

general anesthesia.

Long...but today was a good day! Thanks for all your support, and as more

info comes in, I'll let you know.

Bob (Teacher to Kayla 15 y.o.)

Corpus Christi, TX

jamesgang@...

http://members.tripod.com/~bob_james/index.html

The goal in life is to die young -

as late as possible.

- Montague

ICQ # 13500081

AIM Bob3