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We are home from the hospital. We have been home a few days. We have to go back

on thursday for mri and adjustment and go from there. Her headache has not

improved since revision but has gotten worse. mri (from tuesday)shows her

ventricles are normal sized. nsg said on thursday before we left that he wasnt

sure how much longer this setting would keep her ventricles open. She either

sleeps alot or is lying down all the time. i am wondering if she is

overdraining? Great news is Maddy has not complained much  of chiari symptoms so

that surgery was a huge success.

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