Res: Res: Res: Re: change in location of pain

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yes, yes it is. It is also hard for me to go below 20mg, beginning to feel joint

pain. Prednisone also did it to me, took my sleep, my face swelled, and the

morning is hard to walk away. But I really want to stop using prednisone, I am

doing physical therapy to try to accelerate it.

But until I'm able to lead a normal life, at least not had to stop with the

university.

hugss

________________________________

De: Pamela

Para: Stillsdisease

Enviadas: Domingo, 26 de Setembro de 2010 20:52:46

Assunto: Res: Res: Re: change in location of pain

I was on 60 mg for weeks. One day I went to the salon and looked in the mirror,

I noticed my face got swollen. By the next week it was much worse plus my

stomach was a mess and I had pimples, I discussed tapering with my doctor. Now I

am down to 15mg. It was really hard to go below 20mg. When my joints hurt a lot

like when I got home at 2 a. very tired on Fri I take 20mgs. Pain killers and

eating right helped me get down to 15mg on my good days I can walk around

without any taking anything for pain which is most days. I'm hoping my body will

get more accustomed to this dose and I feel more balanced. I just started taking

15mg last week so I'm still testing it out.

> >

> > Hi pamela..

> >

> > Like you, I've discovered that the disease recently, in January this year,

>only

>

> >

> > the first few days I had all those symptoms you said, then I only had joint

> > pain. This last week I was fine, just sore right shoulder and hip, but then

>in

>

>

> > two days I started feeling a pain in the leg and hip pain is gone! The

>problem

>

>

> > is that when I feel this pain in the foot I need to walk with a crutch, and

>it

>

>

> > bothers me a lot. When I'm still not feel any pain, only when I walk it. And

>do

>

> >

> > not even know how and when these pains change place, it just happens. I'm

>very

>

>

> > discouraged now post was fine 4 days ago, but I hope it ends soon.

> >

> > hugs...

> >

> >

> >

> >

> > ________________________________

> > De: Pamela <lady13ug@>

> > Para: Stillsdisease

> > Enviadas: Sábado, 25 de Setembro de 2010 15:27:51

> > Assunto: Re: change in location of pain

> >

> >

> >

> > Hi. I've been diagnosed for three months. All of my symptoms such as

>itchiness,

>

> >

> > irritated eyes and skin, cannot walk, lose of apetite, insomnia, sore

throat,

>

> > rash,...etc have gone away. However, I still feel pain in joints. And like

>you,

>

> >

> > as soon as I succeed in ridding on joint of pain, another grabs a hold of

>that

>

>

> > pain. It is min boggling and frustrating. Right now my left knee and wrist

>hurt

>

> >

> > so much I've been in bed all day. How does one feel when they are done

>flaring?

>

> >

> > How do you know when your flare is over or when its about to start? thanks

> > --- In Stillsdisease , " Thiago " <thiago_goes@:

> > >

> > > What I say may sound stupid or just a wrong impression about what I feel,

>but

>

> >

> > >already happened a few times to me, and it happened again this last week.

> > > As I said here in the group, I still feel pain in the leg and shoulder, I

> >feel

> >

> > >pain every day, they have improved but I still feel pain. The strange thing

>is

>

> >

> > >that I realize that when I improve foot pain, hip or shoulder hurt more, or

> >the

> >

> > >contrary, it is difficult to explain, it's as if I had a quota of pain I

>have

>

>

> > >that feeling, that keeps changing place . In the last 15 days, the body

part

>

> > >that I felt more pain was my foot, then he has improved and at the same

time

>I

>

> >

> > >realized that the hip and shoulder started hurting stronger, without

reason,

>

> >and

> >

> > >two days ago the hips stopped hurting , and leg and shoulder are very sore

> > >joints. I'm sure I'm not crazy, Ahahahah, but frankly that's what I feel. I

> > >always feel pain in some part of the body, like I said, as if there is an

> >amount

> >

> > >of pain, you understand? I hope to read some reply or comment ...

> > > hugs to all

> > > Thiago

> > >

> >

> >

> >

> >

> >

> >

> >

> >