Re: Re: Suggestions needed

[Guest guest]

Where do u live & what drs have u seen?

Sent from my iPad

> I would like to see standard procedures for syringomyelia. Every doctor has a

different opinion. Small syrinx no problem, small syrinx can cause problems.

>

> The symptoms. Some say not related to syringomyelia, others say from it. The

reaserchers seem to have the most info but cant see patients unless under

protocol. Who teaches or updates the experts as to what they know? It seems as

if they are all on a different pages.

>

> If you have chiari and syrinx, they treat, but if just syrinx and no other

structural issues, you are dismissed as somatic, even from the experts?

>

> Thanks for taking the time to try and make a difference. Tom...

>

> Sent from my iPhone

>

[Guest guest]

I live n fort Lauderdale Florida. I went to Miami - Dr. Barth Green, he is

excellent