Re: Still's Patient New to the Group

[Guest guest]

Michele

 welcome as I and many say sorry you had to look for us but glad you found us as

now your a part of this family.

time wise you have had this about as long as my self being I was DX in 2000 also

and I also have more organ problems then joint but nothing close to what you

have dealt with as so far I still have all my OEM parts. LOL. I am not one to

ask to much about medical things but there are others here that can and do deal

there I am more a jokester of sorts and like to have a bit of fun and believe

that a laugh is also good for us and our mental spirits or maybe I am just

mental who knows but any way welcome and best thing to do around her is jump in

and ask if you have a question and or comment and become one of us crazy people

who make up this stills family

hugs

 

The Redneck

Marty G.

Be careful about reading health books. You may die of a misprint.

Mark Twain

To learn about Stills Disease http://www.stillsdisease.org/stills_info

[Guest guest]

Hey Michele,

My name is also, I put the initial of my last name so people do not get

confused.

Glad you found us, this is a great group, they will listen when you need to vent

, or just be there when you are down. Everyone has different degrees of Still's,

they say no 2 Still's patients are a like.

I am an ER physician, but had to stop practicing almost 2 years now. Still's

started in my organs first also, so I am minus a stomach, some intestines,

spleen, gallbladder, and appendix. Not much more they can take out, I am also

fixing to start my second round of chemotherapy as soon as my medicines get

approved.

I have a medicine induced Lymphoma. Still's has made its way into my joints and

muscles now, it is always something,lol

How well does your new liver handle your Still's flares?

Again welcome to the group, take care

R.

________________________________

To: Stillsdisease

Sent: Thu, September 9, 2010 12:39:30 PM

Subject: Still's Patient New to the Group

 

Hello,

My name is Michele and after 10 years of health issues I was diagnosed with

Still’s. My first attack was in 2000 and it inflamed my internal organs 3

times their normal size. I recovered in 2 years and was then surprised with

acute liver failure in 2005. I am one of the lucky few to have received a liver

transplant, and was thriving up until my recent flare up of Still’s in

June. I

am very happy to have found this group and look forward to learning all I can

about how everyone copes with the challenges that this disease brings with it.

Sincerely,

Michele from NJ

[Guest guest]

Hi Marty,

Thanks for the warm welcome. I am a big believer in the healing power of

laughter and love a good joke. My daily goal is to do at least one fun thing

that makes me smile or laugh.

All the best,

Michele

>

> Michele

> �welcome as I and many say sorry you had to look for us but glad you found

us as

> now your a part of this family.

> time wise you have had this about as long as my self being I was DX in 2000

also

> and I also have more organ problems then joint but nothing close to what you

> have dealt with as so far I still have all my OEM parts. LOL. I am not one to

> ask to much about medical things but there are others here that can and do

deal

> there I am more a jokester of sorts and like to have a bit of fun and believe

> that a laugh is also good for us and our mental spirits or maybe I am just

> mental who knows but any way welcome and best thing to do around her is jump

in

> and ask if you have a question and or comment and become one of us crazy

people

> who make up this stills family

> hugs

> �

> The Redneck

> Marty G.

> Be careful about reading health books. You may die of a misprint.

> Mark Twain

>

>

> To learn about Stills Disease http://www.stillsdisease.org/stills_info

>

>

>

>

>

[Guest guest]

Hi ,

I had no idea that Still's could impact other organs besides the liver. I guess

all parts are unfortunately fair game with this crazy illness.

My new liver did well the first 2 months of my current flare, but recent blood

work shows elevated enzymes. I have an appointment tomorrow with the

Hepatologist and am hoping all this means is a little medication teak of my

immuno-suppressant meds. If I'm lucky the meds will put everything back in

check.

Time for me to get some light exercise in. Hope you have a good day.

Sincerely,

Michele

>

> Hey Michele,

>

> My name is also, I put the initial of my last name so people do not

get

> confused.

> Glad you found us, this is a great group, they will listen when you need to

vent

> , or just be there when you are down. Everyone has different degrees of

Still's,

> they say no 2 Still's patients are a like.

>

> I am an ER physician, but had to stop practicing almost 2 years now. Still's

> started in my organs first also, so I am minus a stomach, some intestines,

> spleen, gallbladder, and appendix. Not much more they can take out, I am also

> fixing to start my second round of chemotherapy as soon as my medicines get

> approved.

> I have a medicine induced Lymphoma. Still's has made its way into my joints

and

> muscles now, it is always something,lol

>

> How well does your new liver handle your Still's flares?

>

> Again welcome to the group, take care

> R.

>

>

>

>

> ________________________________

>

> To: Stillsdisease

> Sent: Thu, September 9, 2010 12:39:30 PM

> Subject: Still's Patient New to the Group

>

>  

> Hello,

>

> My name is Michele and after 10 years of health issues I was diagnosed with

> Still’s. My first attack was in 2000 and it inflamed my internal organs

3

> times their normal size. I recovered in 2 years and was then surprised with

> acute liver failure in 2005. I am one of the lucky few to have received a

liver

> transplant, and was thriving up until my recent flare up of Still’s in

June. I

> am very happy to have found this group and look forward to learning all I can

> about how everyone copes with the challenges that this disease brings with it.

>

> Sincerely,

> Michele from NJ

>

>

>

>

>

>

>

>