's Hopkins Webinar Presentation

[Guest guest]

For those that weren't able to make it to the webinar, it is now on line. If

you have any problems watching it, let me know.

Kathleen

<http://bit.ly/ChiariVideo> http://bit.ly/ChiariVideo or

<http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/pedia

tric_neurosurgery/conditions/chiari-malformation>

http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/pediat

ric_neurosurgery/conditions/chiari-malformation

[Guest guest]

I would like to say that while I appreciate the Webinar, I reallllllllly

have a problem with how much he stresses " 5mm or greater. " I am a

zero-chiari and I couldn't read a cereal box, I was falling and throwing

up everyday, and was in the most horrific pain before my

decompression....I obviously needed the surgery.

DO NOT let anyone tell you that less than 5mm is not significant and not

surgical!

Much love,

in Pittsburgh

[Guest guest]

And still other NSGs continue to write " asymptomatic Chiari " in the records of

my 12 year old daughter with a 22mm herniation, completely blocked flow, and

retroflexed odontoid. They say all of her sometimes debilitating symptoms are

due to school and family stress or even side effects of her ADHD medication!

Yes, let's attribute them to everything OTHER than the fact that her brain has

fallen out of her head, her spinal fluid can't circulate, her brain stem is

compressed, and a bone is constantly poking the other side of her brain stem!

But hey, she doesn't have a syrinx yet, so she's fine. So frustrating.

Beth, in Bay area CA

Sent from my iPhone

On Feb 24, 2011, at 9:19, " Jeff and Kathleen Grigg "

wrote:

> I agree . There are still too many surgeons that believe CM has to be

> 5 mm or longer. Some don't believe 10 mm and below even causes symptoms, it

> is sad.

>

> Kathleen

>

>

> I would like to say that while I appreciate the Webinar, I really have a

> problem with how much he stresses " 5mm or greater. " I am a zero-chiari

> and I couldn't read a cereal box, I was falling and throwing up

> everyday, and was in the most horrific pain before my decompression....I

> obviously needed the surgery.

>

> DO NOT let anyone tell you that less than 5mm is not significant and not

> surgical!

>

> Much love,

> in Pittsburgh

>

>