Jan and Jim

[Guest guest]

Dear Jan

Please know that their are many of us out here that

are sending you good thoughts and prayers for you and

Jim.

Just a side note. I was charged for 9 diapers a day

for my mom. The administration told me that the CNA's

told him that that is how many they use a day. I let

them know that I was willing to set up a camera and

record just how many times they actually change my

mom. Needles to say I am not even being charged for

diapers now and

EVERYONE know that is just a lie. She gets changed 3

to 4 times if I am lucky. The CNA's just do not have

the time. And if someone calls off, which happens

often, then it only makes it worse. I have been to the

NH on Saturday before when the parking lot is almost

empty and it is lunch time and my mom is still in bed.

Anyway, Jan all this to say that it is a horrible

problem and I don't have an answer, but the squeaky

wheel does get the grease.

I will be praying that Jim will have a speedy recovery

and that you will get a break from the stress of it

all. I am thinking of you.

Dena

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[Guest guest]

Jan & Jim -- Please know that you are both in my thoughts & prayers.

Prayers that Jim has a speedy recovery and those underlining issues

from the NH can be resolved!

[Guest guest]

Dear Jan-

Thank you for mentioning my words in your post.

It is so true... " Where there is life, there is hope. "

I believe this allows us not to give up, not to plan

for the end before the end is here. It will come in

it's own time...not when we start planning for it

to happen. I also believe in telling a loved one that

we are ok, that we will be fine. Not necessarily

saying that ... " when you are gone... " but to let the

loved one know that we are fine. My dad was

very clear and seemed stronger 2 days before

he passed away than he had in a long time. The

night before his body gave out he was up walking

around...he hadn't walked in such a long time.

He used the bathroom...hadn't done that in months!

He held my hands, squeezed my hands, and kept

moving his head toward mine looking straight

into my eyes as if to tell me something. At first

I joked until I realized he WAS trying to tell me

something. A day and a half later he passed

away. It is so very sweet of Jim to put you in

the forefront of his thoughts and words. I also

believe that my Heavenly Father sends Angels

in all forms, to look after us, so my belief is that

Jim is speaking through the Angels to make

sure you are taken care of. Jim is acknowledging

all you have done for him and the love you have

given him so he is gaining strength from somewhere...

Jim is given strength to complete his journey and

you, too, shall find the strength too.

We have kept and shall continue to keep you

and Jim in our prayers. " Trust in the Lord with all

your heart and lean not on your own understandings;

in all your ways acknowledge him, and he will make

your paths straight. " Proverbs 3: 5, 6

Heartfelt hugs-

Sandie and

-- Jim

I'm on that emotional roller coaster again.

I went in early to visit Jim, they did have him out of bed in his

wheelchair, but he looked horrible. He has lost so much weight. The nurses

say he isn't eating and having a hard time swallowing. I bring him food

everyday and let him eat when he wakes up. He eats for me, but I do think

that he is asperating it. I usually just bring in thick soups now. He then

feels sick and wants to vomit, but doesn't.

He told me today he is dying and that he thought he was going to die

yesterday. His eyes are so red on the lids and inside and they are tearing

all the time. He does have Blepheritis, but I think this is something

different. He says his eyes hurt and his eye medication is not working for

him. He is talking more to me than in a long time.

He is apologizing for being sick, which broke my heart. I told him it's

Lewy Body and not his fault that he is so sick. I think he forgot about Lewy

Body and was somehow relieved to think that he wasn't the cause of being

sick. He smiled.

He still has all that congestion in his chest, it sounds awful. Poor guy.

I think I have to come to accept that things may not go so well for Jim

this time. I had high hopes that he would come out of this. As Sandie has

said, " Where there is life, there is hope. " I'm not giving up on him, but I

think I have to be realistic that he might not make it, since he seems to

have a sense of dying too.

I feel so sad for Jim, but he told me today how much he appreciates all

that I have done for him and the fact that he has noticed this and let me

know made my heart soar. It is like his mind has become so clear suddenly.

It is like everyone has mentioned here, that they know what is going on

with them and around them. How sad that they can feel all this happening to

them. I wish he did not have to suffer and I hope he is not scared. I don't

think he is scared, he doesn't show it if he is. He is more concerned about

me. What a sweet heart to be concerned about me at this point.

Well, guess I am venting and needing support at the same time. I am so mad

at this dreaded disease and what it is doing to Jim and me.

Thanks for being here and listening. Jan

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[Guest guest]

I have been following your latest crisis and just want you to know that I am

praying for you. You have been an inspiration to many of us. I know that

my own journey down the road you are traveling at t he moment, is probably

coming soon. God bless you and Jim and I hope you get to Houston. Arlene