STENT and syrinx

[Guest guest]

Has anyone had stent inserted to resolve the syrinx? Any good/bad

experiences? Did it work?

Y

[Guest guest]

Dear Yvona,

My daughter has had a subarachnoid shunt (several nsgs told us this is the

type with the least risks) in her syrinx since 1994. It was replace once

and revised twice, if I remember right. In 's case, it is an absolute

necessity, despite a successful decompression with good CSF flow at the back

of there skull. When it becomes clogged (by scar tissue), her syrinx

enlarges and her neurological symptoms and deficits increase. Without it, she

would be wheelchair bound. The down side is the development of tethered cord

from scar tissue caused by the surgery (resulting in more surgery), and

that because she has had so many complicated surgeries in the same area, she

now has arachnoiditis.

Let me know if you want to know more about her surgeon, etc.

Barbara

In a message dated 11/24/2010 10:16:07 A.M. Eastern Standard Time,

yvonahopkins@... writes:

Has anyone had stent inserted to resolve the syrinx? Any good/bad

experiences? Did it work?

Y

[Non-text portions of this message have been removed]