new member

[Guest guest]

Hi all. I am new to your group, but not new to MS. I was dxd in

1995 and first thing my neuro said to me was get down to Social

Securiy and file for disability. That I did and so I continued on

with my life. I went on Avonex and stayed on it for five years and I

did very well on it! Then I got married in 2001 and went off the

Avonex, two bad decisions I think I made. My condition went downhill

steadily. I went back on the Avonex in June of this year, I thought

I would notice improvement but I didn't and after three months I

started having prolonged episodes of bad side effects, nausia, muscle

aches, pain and fatigue. The only good thing I did was to stay on ldn

and increased my dosage to 4.5 that is helping. I went off the

Avonex again and I guess I will stay off and just be on the ldn. What

I have noticed is that the hair and nail growth I used to experience

on ldn is no longer obvious. I recently went on DLPA as I have seen

that others have and are experiencing improvement in mood and

health, I only started two days ago so I haven't noticed any change

yet but I will let you know. I take my ldn usualy around 9pm

sometimes later and when I do my sleep pattern is disrupted, I take

12 mg of melatonin which seems to be working just fine right now.

I am between a rock and a hard place now as I know that ldn is the

answer and that the crab drugs are not. Just wanted to say hi and

let you know I am here and reading your posts and that you are in my

thoughts and prayers. I know we can beat this thing with faith and

the Lord.