Re: new to the group

[Guest guest]

-Lori, The Dr. put me on neurotin 300 mg. TID and said if it worked

I could go as high as 1200-1800 mg......... After days of severe

fatigue and widly assorted pain sites. I said bye bye to it. I

couldn't touch anything with out knocking it and anything else over.

I had an ultrasound at the hospital Tuesday and and for the first

time in a long time I couldn't drive. I have the permanant handi-cap

sticker thank God. Need some prayers on the result of the ultra

sound which I won't find out til Wed. The Dr. wants to see me about

the results and all other tests that were ok he normally just calls

and tells me. So a litttle nervous about the results. My hubby had

to have his carotid artery 'reamed' out for a 99+% pluggage. I've

had a small amount of plague in the right one but never enuf to gwt

worried about til now.

Welcome to our group. Glad you found us but regret the disease

that brought you to us. from Iowa

-- In Fibromyalgia_Support_Group , " bobnlori100 "

<jamloraus@p...> wrote:

> Just thought I'd introduce myself. I am 39 yrs old, married, 2

kids

> (one left at home, one grown, gone and with a baby of her own), 2

> potbellied pigs, one " foster " pig, a dog, 2 parakeets, an

armadillo

> lizard, a bearded dragon, one beta, and a tank with 15 tadpoles, 5

> snails and a fish that were caught in the local creek. I work

about

> 17 hrs a week, and go to college part time - so my days are full!

I

> was diagnosed a couple of weeks ago after a long 9 mos of tests,

> MRI's, Spinal tap, EMG, you name it, I got tested for it. Along

with

> the fibro I also developed (oddly enough at the same time I

started

> having the other problems) essential tremors which are

hereditary.

> Nothing has been able to control the tremors - I have difficulty

with

> side effects of the meds - so the doc put me on Neurontin. I have

> severe fatigue some days (it takes an incredable amount of effort

to

> just get out of the bed, and my arms feel like they weigh 1000

lbs)

> and a lot of pain - especially when I sit or lay for long periods -

> which is all making my work as a bookkeeper difficult. Some days

it

> just feels like I got run over by a truck or have a serious case

of

> the flu. The fibro diagnosis explained a lot of odd ball symptoms

> that the doc could not tie together - Numbness and tingling, dizzy

> spells, fatigue, etc.

> -Lori

[Guest guest]

Lori,

Welcome to the group!

#1 thing is to get a supportive doctor! Get one who doesn't believe

that the pain is all in your head.

#2 thing is to get books and everything you can lay your hands on to

get some knowledge of what you're dealing with. Knowledge is power

and you'll need it to help deal with people who don't have this

condition.

#3 thing is to ask questions. Ask your doctor, your physical

therapist - if you have one - any questions you have. I tell

patients this all of the time: you have hired the medical

professionals who take care of you. If they aren't up to your

standards, fire them! I swear it won't ruin them or hurt their

feelings.

Ask anyone on this board about anything - these people are smart and

have been where you are. Building a support system is vital to your

survival, because Fibro is misunderstood. It's kind of like a

conspiracy, actually....

#4 thing is to remember that you're not alone! We're lucky in a

way. My friend was diagnosed in the late 80's and went through

hell backwards with ignorant doctors and weel-meaning relatives who

told her to pull herself up by her bootstraps and move on with life.

At least now we're covered by things like the Americans with

Disabilities Act and the Family Medical Leave Act.

Finally, #5 thing is to keep your sense of humor. That's not just

quack theory, either. Patients who have a better sense of humor do

better. Weed out the triggers in your life - I got that advice

here. You can control some of what makes you flare and control of

our lives, like knowledge, is power.

Be Blessed!

Kathy T.

[Guest guest]

Hope all goes Ok with the test results. What were they checking with the ultrasound if you don't mind me asking?

The Neurontin made you knock things over? I have a lot of trouble with co-ordination. I am forever reaching for something in the fridge and shattering it on the tile floor. I assumed it was part of the tremors, since I had it before the Neurontin, but not what I think about it, I get really bad when I am on meds. The Inderal they tried for tremors did that, the Mysoline they tried for tremors did that, and now on the Neurontin, my tremors are worse and so is my co-ordination. The only time it was better was in Oct and Nov when I took NO meds. I am going to try this for a while and see how it goes. I have to find a new neoru this month due to insurance changes, so maybe the new one will try something else.

If I may ask.......what caused you to be considered handicapped? I still seem to move about fine, just in a lot of pain and very stiff if I sit for any length of time.

-Lori

Re: New to the group

-Lori, The Dr. put me on neurotin 300 mg. TID and said if it worked I could go as high as 1200-1800 mg......... After days of severe fatigue and widly assorted pain sites. I said bye bye to it. I couldn't touch anything with out knocking it and anything else over. I had an ultrasound at the hospital Tuesday and and for the first time in a long time I couldn't drive. I have the permanant handi-cap sticker thank God. Need some prayers on the result of the ultra sound which I won't find out til Wed. The Dr. wants to see me about the results and all other tests that were ok he normally just calls and tells me. So a litttle nervous about the results. My hubby had to have his carotid artery 'reamed' out for a 99+% pluggage. I've had a small amount of plague in the right one but never enuf to gwt worried about til now. Welcome to our group. Glad you found us but regret the disease that brought you to us. from Iowa-- In Fibromyalgia_Support_Group , "bobnlori100" <jamloraus@p...> wrote:> Just thought I'd introduce myself. I am 39 yrs old, married, 2 kids > (one left at home, one grown, gone and with a baby of her own), 2 > potbellied pigs, one "foster" pig, a dog, 2 parakeets, an armadillo > lizard, a bearded dragon, one beta, and a tank with 15 tadpoles, 5 > snails and a fish that were caught in the local creek. I work about > 17 hrs a week, and go to college part time - so my days are full! I > was diagnosed a couple of weeks ago after a long 9 mos of tests, > MRI's, Spinal tap, EMG, you name it, I got tested for it. Along with > the fibro I also developed (oddly enough at the same time I started > having the other problems) essential tremors which are hereditary. > Nothing has been able to control the tremors - I have difficulty with > side effects of the meds - so the doc put me on Neurontin. I have > severe fatigue some days (it takes an incredable amount of effort to > just get out of the bed, and my arms feel like they weigh 1000 lbs) > and a lot of pain - especially when I sit or lay for long periods -> which is all making my work as a bookkeeper difficult. Some days it > just feels like I got run over by a truck or have a serious case of > the flu. The fibro diagnosis explained a lot of odd ball symptoms > that the doc could not tie together - Numbness and tingling, dizzy > spells, fatigue, etc. > -Lori

[Guest guest]

Thanks for the welcome. You give great advice! Fortunately, my neuro doesn't think it is all in my head (even when I began to question my own sanity) and spend 9 months testing and trying to find a diagnosis. After hearing yet ANOTHER test come back "normal", I told him I had never been so darn normal in my life! He laughed and told me that he was sure it wasn't all in my head, to which I responded, "So, I'm not crazy?". He said, "Never said that..........just that the symptoms aren't just in your head!" (he has a good sense of humour!) My hubby gets a little frustrated sometimes when my energy level is really low, but, he tolerates the messy house, and understands. He's supporting me going back to college to change my career path, and is supporting me looking for another job so I am not sitting in an office all alone - I think too much when alone. For now, I seem to be at least functioning.

-Lori

Re: New to the group

Lori,Welcome to the group!#1 thing is to get a supportive doctor! Get one who doesn't believe that the pain is all in your head.#2 thing is to get books and everything you can lay your hands on to get some knowledge of what you're dealing with. Knowledge is power and you'll need it to help deal with people who don't have this condition.#3 thing is to ask questions. Ask your doctor, your physical therapist - if you have one - any questions you have. I tell patients this all of the time: you have hired the medical professionals who take care of you. If they aren't up to your standards, fire them! I swear it won't ruin them or hurt their feelings. Ask anyone on this board about anything - these people are smart and have been where you are. Building a support system is vital to your survival, because Fibro is misunderstood. It's kind of like a conspiracy, actually....#4 thing is to remember that you're not alone! We're lucky in a way. My friend was diagnosed in the late 80's and went through hell backwards with ignorant doctors and weel-meaning relatives who told her to pull herself up by her bootstraps and move on with life. At least now we're covered by things like the Americans with Disabilities Act and the Family Medical Leave Act.Finally, #5 thing is to keep your sense of humor. That's not just quack theory, either. Patients who have a better sense of humor do better. Weed out the triggers in your life - I got that advice here. You can control some of what makes you flare and control of our lives, like knowledge, is power. Be Blessed!Kathy T.

[Guest guest]

Hi ,

I am really interested in the use of enemas. I am nervous to try as I am not sure how to explain it to my son. Did you find the formula somewhere or was it by a bit of experimentation?

If this note is not for you please delete it without reading, sending it on, or copying it.

To: BorreliaMultipleInfectionsAndAutism Sent: Thursday, September 3, 2009 5:19:49 PMSubject: Re: new to the group

I believe enemas to be very important to assist cleansing. Many say their child is moving fine/daily so why would they need to do these? I've experienced many times with my kids a full bowel movement followed by an enema and then still more mucus etc....being released. Without this enema the mucus would not have been released. Back when my child was very affected I did a series of enemas each night for 3 straight months. I used an enema bag so maybe 2 liters of water with 1-2 tsp of raw apple cidar vinegar. I followed this with 6 colonics. It all started with my son having a seizure. My husband in Germany and I was home with my infant and son. I had heard Donna Gates say that when you enter water in the colon this signals the liver/body to dump. I had heard that seizures were the brain being toxic. SO I put 2 and 2 together and decided to do an enema while his eyes were rolling around in his head. He then sat on the potty and

released yellow fluid from his rectum for many minutes. His eyes stopped rolling and he said his first pronoun. This is when I knew this would be important for him. The color in his face even changed in front of my eyes.I've found apple cidar vinegar to release mucoid ropes, mucus, and other scary things. Afterwards I'd implant vit C capsules, young coconut kefir, and minerals in about a cup of water. I do not suggest giving enemas to children until the parents have peace around the subject. It really should be as helpful as brushing your teeth. I say "we need to clean our body so we can be healthy." When my son was affected I used more simple language as I didn't know what he understood. "help with poo poo."We're still on our journey, but my son asks for enemas now. He knows what helps him and at some point he took over and really understood what he needed. > >> > Hi, I'm to a 6 yr old in recovery from Autism. We believe we prevented with our 4 yr old daughter. We started our

journey using body ecology diet and learned a lot along with reducing many of his symptoms. The last two years we've added more biomedical treatments from supplementation, to Hbot. All have shown steady, small, yet consistent gains. Many can't see our son's autism anymore. I consider him in recovery still. > > > > I was thrilled to find this group after speaking with Heidi. We just finished several rounds of lo dose oral dmsa followed each time by IVs of glutathione, vit C, and minerals. Yesterday we had a hard time getting his blood to flow. After talking a bit with Heidi I'm understanding that this may be due to pathogens in the blood, maybe as we're chelating the pathogens being released. > > > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along with acv enemas over the next few weeks. > > > > I appreciate any insight and look forward to reading posts to learn

more!> > > >>

[Guest guest]

I think best for you to do this for yourself a few times first.

Understand the process so you will be really relaxed. I was very discreet but

had my kids see me do this before I did with them. My child had little

awareness and I wasn't sure what cognition he had. I believe our kids

understand quite a bit.

I would just say this will help to clean your body. They'll follow your lead.

They don't have all the nerves and hang ups on these things that we do.

Just break it into steps and reward/celebrate if you have too. I used to

celebrate the kids filling the bucket for me! Then over.....no more demands.

Next time have them lie down! YAY over...no more demands. Slowly I got to

insert the insertion. Use coconut oil to make it all go smoother.

Most important is have a great attitude. I was excited to have a way to help

my babies. Our kids will pick up on our energy.

> > >

> > > Hi, I'm to a 6 yr old in recovery from Autism. We believe we

prevented with our 4 yr old daughter. We started our journey using body ecology

diet and learned a lot along with reducing many of his symptoms. The last two

years we've added more biomedical treatments from supplementation, to Hbot. All

have shown steady, small, yet consistent gains. Many can't see our son's autism

anymore. I consider him in recovery still.

> > >

> > > I was thrilled to find this group after speaking with Heidi. We just

finished several rounds of lo dose oral dmsa followed each time by IVs of

glutathione, vit C, and minerals. Yesterday we had a hard time getting his blood

to flow. After talking a bit with Heidi I'm understanding that this may be due

to pathogens in the blood, maybe as we're chelating the pathogens being

released.

> > >

> > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along with

acv enemas over the next few weeks.

> > >

> > > I appreciate any insight and look forward to reading posts to learn more!

> > >

> > >

> >

>

[Guest guest]

Hi ,

Do you consider that the apv fixes the issues of the mucus/ropey things coming

out with the poop?? I have seen a few ropey bits in my son in recent days then

have periods where everything is fine again.

I do enemas on my son daily (using RO filtered water) as he has a very long

history of issues with distended bowel, had a MACE done in 07 that wrecked him,

but improving finally.

He has severe intellectual issues and I decided medications, excessive magnesium

etc were doing nothing to balance his gut in the quest for regular bowels. He

can't cope with Vit C so had to find other measures to get regularity (using

prunes now).

Despite the " yuk " of it, he too is very cooperative and understands that he

feels better afterwards. I find if he has a nice warm bath (with a dash of

detox clay) things work much easier since he is in a happy zone -- plus we have

his fav music going in the bathroom the whole time.

na

> ________________________________

>

> To: BorreliaMultipleInfectionsAndAutism

> Sent: Thursday, September 3, 2009 5:19:49 PM

> Subject: Re: new to the group

>

>  

> I believe enemas to be very important to assist cleansing. Many say their

child is moving fine/daily so why would they need to do these? I've experienced

many times with my kids a full bowel movement followed by an enema and then

still more mucus etc....being released. Without this enema the mucus would not

have been released.

>

> Back when my child was very affected I did a series of enemas each night for 3

straight months. I used an enema bag so maybe 2 liters of water with 1-2 tsp of

raw apple cidar vinegar. I followed this with 6 colonics.

>

> It all started with my son having a seizure. My husband in Germany and I was

home with my infant and son. I had heard Donna Gates say that when you enter

water in the colon this signals the liver/body to dump. I had heard that

seizures were the brain being toxic. SO I put 2 and 2 together and decided to do

an enema while his eyes were rolling around in his head.

>

> He then sat on the potty and released yellow fluid from his rectum for many

minutes. His eyes stopped rolling and he said his first pronoun. This is when I

knew this would be important for him. The color in his face even changed in

front of my eyes.

>

> I've found apple cidar vinegar to release mucoid ropes, mucus, and other scary

things.

>

> Afterwards I'd implant vit C capsules, young coconut kefir, and minerals in

about a cup of water.

>

> I do not suggest giving enemas to children until the parents have peace around

the subject. It really should be as helpful as brushing your teeth. I say " we

need to clean our body so we can be healthy. " When my son was affected I used

more simple language as I didn't know what he understood. " help with poo poo. "

>

> We're still on our journey, but my son asks for enemas now. He knows what

helps him and at some point he took over and really understood what he needed.

>

>

>

>

> > >

> > > Hi, I'm to a 6 yr old in recovery from Autism. We believe we

prevented with our 4 yr old daughter. We started our journey using body ecology

diet and learned a lot along with reducing many of his symptoms. The last two

years we've added more biomedical treatments from supplementation, to Hbot. All

have shown steady, small, yet consistent gains. Many can't see our son's autism

anymore. I consider him in recovery still.

> > >

> > > I was thrilled to find this group after speaking with Heidi. We just

finished several rounds of lo dose oral dmsa followed each time by IVs of

glutathione, vit C, and minerals. Yesterday we had a hard time getting his blood

to flow. After talking a bit with Heidi I'm understanding that this may be due

to pathogens in the blood, maybe as we're chelating the pathogens being

released.

> > >

> > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along with

acv enemas over the next few weeks.

> > >

> > > I appreciate any insight and look forward to reading posts to learn more!

> > >

> > >

> >

>

[Guest guest]

na I have to share something very personal that happened just this morning

honestly. I have stuck with body ecology principles and lots of acv enemas for

4 years now while recovering my children. I believe in doing this all with them

I've understood more what my son needs.

This morning after and acv enema I turned around and saw a clear potty with a

huge matrix looking stucture. Horrible,creeped me out. It kind of looked

like a bowl full of spaghetti.

Lots of work here and I've been releasing things all along, but nothing like

this.

After the release I felt a huge surge of energy in my body. I felt overall so

much better. Yesterday I had a strange strange day. Noises bothered me, I

was just " off. "

Wow now I have more insight into what our kids go through. When their

behaviors spike, maybe they are trying to release something. If so, it stands

to reason that everything we can to help them detox is a good idea. Far

infrared sauna too.

> > > >

> > > > Hi, I'm to a 6 yr old in recovery from Autism. We believe we

prevented with our 4 yr old daughter. We started our journey using body ecology

diet and learned a lot along with reducing many of his symptoms. The last two

years we've added more biomedical treatments from supplementation, to Hbot. All

have shown steady, small, yet consistent gains. Many can't see our son's autism

anymore. I consider him in recovery still.

> > > >

> > > > I was thrilled to find this group after speaking with Heidi. We just

finished several rounds of lo dose oral dmsa followed each time by IVs of

glutathione, vit C, and minerals. Yesterday we had a hard time getting his blood

to flow. After talking a bit with Heidi I'm understanding that this may be due

to pathogens in the blood, maybe as we're chelating the pathogens being

released.

> > > >

> > > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along

with acv enemas over the next few weeks.

> > > >

> > > > I appreciate any insight and look forward to reading posts to learn

more!

> > > >

> > > >

> > >

> >

>

[Guest guest]

,

I appreciate so much what you have been posted for the past few days to share your experience. I just started my son with an anti-parasite protocol right after he came back from school today. I look forward to getting the tools you recommend for doing acv enemas.

Limin

From: tylertaylin

Sent: Friday, September 04, 2009 12:19 PM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: new to the group

na I have to share something very personal that happened just this morning honestly. I have stuck with body ecology principles and lots of acv enemas for 4 years now while recovering my children. I believe in doing this all with them I've understood more what my son needs. This morning after and acv enema I turned around and saw a clear potty with a huge matrix looking stucture. Horrible,creeped me out. It kind of looked like a bowl full of spaghetti. Lots of work here and I've been releasing things all along, but nothing like this. After the release I felt a huge surge of energy in my body. I felt overall so much better. Yesterday I had a strange strange day. Noises bothered me, I was just "off." Wow now I have more insight into what our kids go through. When their behaviors spike, maybe they are trying to release something. If so, it stands to reason that everything we can to help them detox is a good idea. Far infrared sauna too.> > > >> > > > Hi, I'm to a 6 yr old in recovery from Autism. We believe we prevented with our 4 yr old daughter. We started our journey using body ecology diet and learned a lot along with reducing many of his symptoms. The last two years we've added more biomedical treatments from supplementation, to Hbot. All have shown steady, small, yet consistent gains. Many can't see our son's autism anymore. I consider him in recovery still. > > > > > > > > I was thrilled to find this group after speaking with Heidi. We just finished several rounds of lo dose oral dmsa followed each time by IVs of glutathione, vit C, and minerals. Yesterday we had a hard time getting his blood to flow. After talking a bit with Heidi I'm understanding that this may be due to pathogens in the blood, maybe as we're chelating the pathogens being released. > > > > > > > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along with acv enemas over the next few weeks. > > > > > > > > I appreciate any insight and look forward to reading posts to learn more!> > > > > > > >> > >> >>

[Guest guest]

,

I would be interested to hearing more about how you implemented enema right

after the seizure. I am sure your child was pretty small, but I have a 14 year

old that I would like to try this with, we are both comfortable with

enema/suppositories, but he is big enough that he is hard for me to handle, let

alone when he is " dead weight " after a seizure.

Do you have some ideas how this could be done for my child? (We are of the

thought, if there is a will there is a way, messy doesn't matter! )

Thanks for your help!

Kathy

> > >

> > > Hi, I'm to a 6 yr old in recovery from Autism. We believe we

prevented with our 4 yr old daughter. We started our journey using body

ecology diet and learned a lot along with reducing many of his symptoms. The

last two years we've added more biomedical treatments from supplementation, to

Hbot. All have shown steady, small, yet consistent gains. Many can't see

our son's autism anymore. I consider him in recovery still.

> > >

> > > I was thrilled to find this group after speaking with Heidi. We just

finished several rounds of lo dose oral dmsa followed each time by IVs of

glutathione, vit C, and minerals. Yesterday we had a hard time getting his

blood to flow. After talking a bit with Heidi I'm understanding that this may

be due to pathogens in the blood, maybe as we're chelating the pathogens being

released.

> > >

> > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along with

acv enemas over the next few weeks.

> > >

> > > I appreciate any insight and look forward to reading posts to learn more!

> > >

> > >

> >

>

[Guest guest]

Hi Kathy we were lucky to have this sort of info and I connected the dots.

Really I was scared to take him to the hospital as I thought they'd put him on

drugs. At that time I didn't know where to take my son, who would understand

autism. We haven't seen any sign of seizure for well over two years. I have

no idea what it would have progressed to. My son would loose all energy, limp,

and eyes rolling, no awareness. But not hard to manage. Very young though

too.

So anyway I was lucky in that my child though moderate to severe and headed down

a difficult path got interventions that worked at 2. So yes this might look

quite different with an older child.

I carried him into the bathroom, threw a towel on the floor with one hand,

inserted and then carried him to the potty and propped his body up, I mean I

supported him. After a while he was then able to hold his own body in the

sitting position, his color in his face changed, eyes focused after a bunch of

yellow fluid evacuated.

I think my best guess is to have the enema kit right near the good filtred

water. Maybe have towels handy in case you'd just need to deal with this. You

might even get a cheap table cloth to throw down for easy clean -up if it came

to that.

We do SonRise and they suggested even having a camping potty in the playroom.

We didn't do this, but I thought a great idea. If you wanted to plan this

sort of intervention it might work to have a " portable potty " accessible to get

to quickly. I only used filtered water for these quick fixes. I didn't start

adding acv until further down the road into our healing.

You are already in a good spot that you are comfortable with the idea. I'm

sure you'll figure it out. We've all learned to pull off miracles everyday

huh!

> > > >

> > > > Hi, I'm to a 6 yr old in recovery from Autism. We believe we

prevented with our 4 yr old daughter. We started our journey using body

ecology diet and learned a lot along with reducing many of his symptoms. The

last two years we've added more biomedical treatments from supplementation, to

Hbot. All have shown steady, small, yet consistent gains. Many can't see

our son's autism anymore. I consider him in recovery still.

> > > >

> > > > I was thrilled to find this group after speaking with Heidi. We just

finished several rounds of lo dose oral dmsa followed each time by IVs of

glutathione, vit C, and minerals. Yesterday we had a hard time getting his

blood to flow. After talking a bit with Heidi I'm understanding that this may

be due to pathogens in the blood, maybe as we're chelating the pathogens being

released.

> > > >

> > > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along

with acv enemas over the next few weeks.

> > > >

> > > > I appreciate any insight and look forward to reading posts to learn

more!

> > > >

> > > >

> > >

> >

>

[Guest guest]

Limin I'm so glad Heidi N gave me this site info...so glad to be here. It's

funny though just typing I can feel the difference in this group compared to

other autism groups. Everyone here wants to learn and will find ways to

implement. It's a gift to be here.

ONLY 1-2 tsp of water in say 2 liters of water. Too much could stop your

heart. Now don't let this stop you from this important intervention. Just as

with anything.....more isn't better.

So excited for this next step for your child! I've even implanted parasite

herbs that we've done orally like w.w. from Pure Herbs for example.

> > > > >

> > > > > Hi, I'm to a 6 yr old in recovery from Autism. We believe we

prevented with our 4 yr old daughter. We started our journey using body ecology

diet and learned a lot along with reducing many of his symptoms. The last two

years we've added more biomedical treatments from supplementation, to Hbot. All

have shown steady, small, yet consistent gains. Many can't see our son's autism

anymore. I consider him in recovery still.

> > > > >

> > > > > I was thrilled to find this group after speaking with Heidi. We just

finished several rounds of lo dose oral dmsa followed each time by IVs of

glutathione, vit C, and minerals. Yesterday we had a hard time getting his blood

to flow. After talking a bit with Heidi I'm understanding that this may be due

to pathogens in the blood, maybe as we're chelating the pathogens being

released.

> > > > >

> > > > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along

with acv enemas over the next few weeks.

> > > > >

> > > > > I appreciate any insight and look forward to reading posts to learn

more!

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Dear and Limin and Kathy

 

I would highly recommend looking into a colema board.....the difference with these is that you put one end over the toilet and the other end over a 5 gallon bucket or a chair....then you fill a bucket with warm purified water and any additives you may want and have your child scoot their bottom up to the end which is over the toilet. You insert a very small (diameter) tube and begin the flow of water. ...massage the colon (circular abdominal massage) and when the child must release......they just lie there and release and the feces comes out and goes right into the toilet with out removing the tube. You can stop the flow any time and begin again. If you want to see what has been released you can put a collander in the bottom of the toilet. Do a search on colema board and you will find many....some provide a dvd which you can watch with your child or just for your own instruction. I first began using one of these 30 years ago and it was explained in Bernard Jensen's book called " Tissue Cleansing Through Bowel Management " He recommended these boards over professional colonics.......I put mine away for many years and " forgot " about it but it has become the way I personally do coffee enemas and I believe you will like it over an enema once you have a short lesson.The only down side is I then have to take the whole board into the shower and give it a scrub down with some hydrogen peroxide in a spray bottle and just having a colema board lying around the house.......trying to hide it when company comes over ) ha ha but seriously " try it you;ll love it )

 

 

Hugs,

 

,

 

I appreciate so much what you have been posted for the past few days to share your experience.  I just started my son with an anti-parasite protocol right after he came back from school today.  I look forward to getting the tools you recommend for doing acv enemas. 

 

Limin

From: tylertaylin

Sent: Friday, September 04, 2009 12:19 PM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: new to the group

 

na I have to share something very personal that happened just this morning honestly. I have stuck with body ecology principles and lots of acv enemas for 4 years now while recovering my children. I believe in doing this all with them I've understood more what my son needs.

This morning after and acv enema I turned around and saw a clear potty with a huge matrix looking stucture. Horrible,creeped me out. It kind of looked like a bowl full of spaghetti. Lots of work here and I've been releasing things all along, but nothing like this.

After the release I felt a huge surge of energy in my body. I felt overall so much better. Yesterday I had a strange strange day. Noises bothered me, I was just " off. " Wow now I have more insight into what our kids go through. When their behaviors spike, maybe they are trying to release something. If so, it stands to reason that everything we can to help them detox is a good idea. Far infrared sauna too.

> > > >> > > > Hi, I'm to a 6 yr old in recovery from Autism. We believe we prevented with our 4 yr old daughter. We started our journey using body ecology diet and learned a lot along with reducing many of his symptoms. The last two years we've added more biomedical treatments from supplementation, to Hbot. All have shown steady, small, yet consistent gains. Many can't see our son's autism anymore. I consider him in recovery still.

> > > > > > > > I was thrilled to find this group after speaking with Heidi. We just finished several rounds of lo dose oral dmsa followed each time by IVs of glutathione, vit C, and minerals. Yesterday we had a hard time getting his blood to flow. After talking a bit with Heidi I'm understanding that this may be due to pathogens in the blood, maybe as we're chelating the pathogens being released.

> > > > > > > > My plan is to introduce Biocidin,, D-elonate, and Natto enzymes along with acv enemas over the next few weeks. > > > > > > > > I appreciate any insight and look forward to reading posts to learn more!

> > > > > > > >> > >> >>

[Guest guest]

Hi ,

I've had these spidery/ropey types of things tested by pathology and they are

considered mucus. Figure it must relate into the whole biofilm thing and that

on occasion the bowels just let some go. I was told that it was due to faecal

matter remaining in the bowel for too long, but that no longer applies in my son

since I have him as regular as the clock chimes. We have a full moon here

tonight so perhaps some of this " release " comes with the moon ???

-

na

> This morning after and acv enema I turned around and saw a clear potty with a

huge matrix looking stucture. Horrible,creeped me out. It kind of looked

like a bowl full of spaghetti.

>

[Guest guest]

Hi na, fwiw a person can have regular bm and still be impacted (old

bm piling up in colon, blocking the passage). I know of one particular

child who had perfect bm every day, flat tummy, when they xrayed the

bowel the impaction was there, it had been there all along. They would

have never guessed.

Natasa

>

> Hi ,

> I've had these spidery/ropey types of things tested by pathology and

they are considered mucus. Figure it must relate into the whole biofilm

thing and that on occasion the bowels just let some go. I was told that

it was due to faecal matter remaining in the bowel for too long, but

that no longer applies in my son since I have him as regular as the

clock chimes. We have a full moon here tonight so perhaps some of this

" release " comes with the moon ???

>

> -

> na

>

> > This morning after and acv enema I turned around and saw a clear

potty with a huge matrix looking stucture. Horrible,creeped me out.

It kind of looked like a bowl full of spaghetti.

> >

>

[Guest guest]

Hi Natassa,

I am aware of that, I have used MgO combined with Vit C/lemon but refrain from

doing it too often as it really messes with my son's digestion and his urinary

concerns. I keep an eye on what he has eaten and what is coming down the chute.

I know of some families who use that protocol every weekend for their ASD kids

as a form of weekly cleanse.

na

>

> Hi na, fwiw a person can have regular bm and still be impacted (old

> bm piling up in colon, blocking the passage). I know of one particular

> child who had perfect bm every day, flat tummy, when they xrayed the

> bowel the impaction was there, it had been there all along. They would

> have never guessed.

> Natasa

>

>

[Guest guest]

Hi everyone,

Thank you so much for all these information. The lab you mentioned, did a test urinaire and found out that my son has a high level of infection and should use probiotic. Next week I have the appoitement with the nuitritionist who did this test to start the diet and use the probiotic.

I asked this lab about the Rizol oil, I was told that they have not heard of it (and have not heard of the lyme-autism connection). but they said if my son has the lyme disease, they don't need a provokation. that the results are reliable.

Do you think that I should wait a while to see whether my son will benefit from the probiotics or should I do the lyme test soon?

Thanks again for your kind attention.

Eisser

To: BorreliaMultipleInfectionsAndAutism Sent: Fri, November 20, 2009 7:31:58 AMSubject: Re: New to the group

Is this the lab you meant, Limin? This is the only one I heard of http://www.melisa. org/borrelia- lyme-disease. phpDina.> > > Hi from Switzerland, I have a six-year-old autistic child. Recently > > I heard about the connection of Lyme-autism. I contacted some > > specialists and labs, none have heard of this connection neither of > > the provocation with Rizol oil.> > I looked up the symptoms of lyme, but I don't have any of these > > symptoms. And my son has never be biten by a tick (although I know > > that there are a lot ticks, here in Switzerland) .> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > > TEST???> > I would appreciate your sharings.> >> > Eisser> >> >> >> > ------------ --------- --------- ------> >> >

[Guest guest]

Eisser,Can you post where you are at, for example, what symptoms your son have and what treatments, biomedical interventions you've implemented so far, and how your son responds to the treatments and interventions? I think that it is difficult for the group to provide you with meaningful inputs or dialogue without the contextual information of where you are at now.Liminwww.healthbylimin.comYoung Living Distributor ID: 1111136Hi everyone, Thank you so much for all these information. The lab you mentioned, did a test urinaire and found out that my son has a high level of infection and should use probiotic. Next week I have the appoitement with the nuitritionist who did this test to start the diet and use the probiotic.I asked this lab about the Rizol oil, I was told that they have not heard of it (and have not heard of the lyme-autism connection). but they said if my son has the lyme disease, they don't need a provokation. that the results are reliable.Do you think that I should wait a while to see whether my son will benefit from the probiotics or should I do the lyme test soon?Thanks again for your kind attention. EisserTo: BorreliaMultipleInfectionsAndAutism Sent: Fri, November 20, 2009 7:31:58 AMSubject: Re: New to the groupIs this the lab you meant, Limin? This is the only one I heard of http://www.melisa. org/borrelia- lyme-disease. phpDina.> > > Hi from Switzerland, I have a six-year-old autistic child. Recently > > I heard about the connection of Lyme-autism. I contacted some > > specialists and labs, none have heard of this connection neither of > > the provocation with Rizol oil.> > I looked up the symptoms of lyme, but I don't have any of these > > symptoms. And my son has never be biten by a tick (although I know > > that there are a lot ticks, here in Switzerland) .> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > > TEST???> > I would appreciate your sharings.> >> > Eisser> >> >> >> > ------------ --------- --------- ------> >> >

[Guest guest]

HI Limin,

First, my is 6 years old, diagnosed with autism 3 years ago. At the diagnose we (the parents had not even heard of autism). The pedopsychiatre who diagnosed told us that we can do nothing. Only to continue to love him and to send him to a specialised school. At the beggining we tried to understand what autism is. and then all the professionels told us to accept his handicap=(((It was so hard, I imagine that all of you know what it is...

He has been going to a specialised school since two years. The school is using the ABA and TEACH. My son after the age of three he started to regress (specially his language) before the age of three he was using more than a hundred words. But now only two words left.

We did EEG, nothing found. later IRM nothing again. but the doctors had not found the infections in his intestin, till some days ago.

Since 5 months I started to search about the possible treatments for autism. I learnt about stem cell treatment, HBOT (till now none of the specialists around us have heard of these treatments). Unfortunately, there are no DAN! doctors here. So my son has not been on biomedical intervention.

I think, the doctor who did the test of infection (a nuitrionist who is specialised in the intestinal problems but not in autism) is going to propose us a diet (I have an appoitement with him next week).

During researching, I learnt about lyme disease. And I am sorry if sometimes I don't understand all you mention. I am just trying to understand whether my son may have this disease. and which is the best lab. Because the lab you mentioned (MELISA) don't know about the rizol oil. So, I thought may be they will not find out.

I hope I gave a clear idea about my son. And thank you for your interest.

Eisser

To: BorreliaMultipleInfectionsAndAutism Sent: Fri, November 20, 2009 10:01:58 AMSubject: Re: Re: New to the group

Eisser,

Can you post where you are at, for example, what symptoms your son have and what treatments, biomedical interventions you've implemented so far, and how your son responds to the treatments and interventions? I think that it is difficult for the group to provide you with meaningful inputs or dialogue without the contextual information of where you are at now.

Limin

www.healthbylimin. com

Young Living Distributor ID: 1111136

Hi everyone,

Thank you so much for all these information. The lab you mentioned, did a test urinaire and found out that my son has a high level of infection and should use probiotic. Next week I have the appoitement with the nuitritionist who did this test to start the diet and use the probiotic.

I asked this lab about the Rizol oil, I was told that they have not heard of it (and have not heard of the lyme-autism connection). but they said if my son has the lyme disease, they don't need a provokation. that the results are reliable.

Do you think that I should wait a while to see whether my son will benefit from the probiotics or should I do the lyme test soon?

Thanks again for your kind attention.

Eisser

From: fdina1977 <fdina1977yahoo (DOT) com>To: BorreliaMultipleInf ectionsAndAutism @yahoogroups. comSent: Fri, November 20, 2009 7:31:58 AMSubject: [borreliaMultipleIn fectionsAndAutis m] Re: New to the group

Is this the lab you meant, Limin? This is the only one I heard of http://www.melisa. org/borrelia- lyme-disease. phpDina.> > > Hi from Switzerland, I have a six-year-old autistic child. Recently > > I heard about the connection of Lyme-autism. I contacted some > > specialists and labs, none have heard of this connection neither of > > the provocation with Rizol oil.> > I looked up the symptoms of lyme, but I don't have any of these > > symptoms. And my son has never be biten by a tick (although I know > > that there are a lot ticks, here in Switzerland)

..> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > > TEST???> > I would appreciate your sharings.> >> > Eisser> >> >> >> > ------------ --------- --------- ------> >> >

[Guest guest]

Eisser,Don't worry about that the lab does not know about Rizol Oils. These ozonated,plant-based oils are antimicrobial and antiparasitic; they are effective in treating many different families of pathogens, but they are not the standard, nor are they the only treatment for Lyme and coinfections. People in this group have successfully done a challenge Lyme Western Blot using Nutramedix herbs, Dr. Zhang's Chinese herbal formula, Buhner herbal protocol, prescribed antibiotics, and other treatment tools, etc. It is also true that the tests performed by the European lab you are working with might not need a challenge, trial treatment prior to collecting blood sample for testing. A few labs in the Europe perform PCR or MELISA to detect the genetic material (DNA) of the bugs or observe lymphocyte reactivity that is specific to Lyme. Here in the US, the most popular Lyme test is Western Blot, which looks for IgG and IgM antibodies to Borrelia-specific entigens. A trial treatment before testing is usually recommended to encourage the body to produce antibodies needed for the testing.In our case, we did not observe much improvements and gains during the first two years of our biomed journey. Once I started focusing on treating viruses and coinfections, my son started making noticeable progress. Each child is different. I hope others in the group can also share with you their experience.I do think that focusing on the dietary intervention is a good starting point. But it is just a beginning point. After you have sufficiently addressed your child's issues with what the dietary, nutritional plan can achieve, you might find that it is necessary to move forward to tackle with oxidative stress, multiple infections, and chronic inflammation. And these issues might need to be addressed simultaneously. Our children have been systemically injured (cascading enzymatic deficiency induced by toxins). It is a marathon, not a sprint to get them back to where we want them to be. Pace yourself and again, welcome to the group.Liminwww.healthbylimin.comYoung Living Distributor ID: 1111136HI Limin, First, my is 6 years old, diagnosed with autism 3 years ago. At the diagnose we (the parents had not even heard of autism). The pedopsychiatre who diagnosed told us that we can do nothing. Only to continue to love him and to send him to a specialised school. At the beggining we tried to understand what autism is. and then all the professionels told us to accept his handicap=(((It was so hard, I imagine that all of you know what it is... He has been going to a specialised school since two years. The school is using the ABA and TEACH. My son after the age of three he started to regress (specially his language) before the age of three he was using more than a hundred words. But now only two words left. We did EEG, nothing found. later IRM nothing again. but the doctors had not found the infections in his intestin, till some days ago. Since 5 months I started to search about the possible treatments for autism. I learnt about stem cell treatment, HBOT (till now none of the specialists around us have heard of these treatments). Unfortunately, there are no DAN! doctors here. So my son has not been on biomedical intervention. I think, the doctor who did the test of infection (a nuitrionist who is specialised in the intestinal problems but not in autism) is going to propose us a diet (I have an appoitement with him next week). During researching, I learnt about lyme disease. And I am sorry if sometimes I don't understand all you mention. I am just trying to understand whether my son may have this disease. and which is the best lab. Because the lab you mentioned (MELISA) don't know about the rizol oil. So, I thought may be they will not find out. I hope I gave a clear idea about my son. And thank you for your interest. EisserTo: BorreliaMultipleInfectionsAndAutism Sent: Fri, November 20, 2009 10:01:58 AMSubject: Re: Re: New to the groupEisser,Can you post where you are at, for example, what symptoms your son have and what treatments, biomedical interventions you've implemented so far, and how your son responds to the treatments and interventions? I think that it is difficult for the group to provide you with meaningful inputs or dialogue without the contextual information of where you are at now.Liminwww.healthbylimin. comYoung Living Distributor ID: 1111136Hi everyone, Thank you so much for all these information. The lab you mentioned, did a test urinaire and found out that my son has a high level of infection and should use probiotic. Next week I have the appoitement with the nuitritionist who did this test to start the diet and use the probiotic.I asked this lab about the Rizol oil, I was told that they have not heard of it (and have not heard of the lyme-autism connection). but they said if my son has the lyme disease, they don't need a provokation. that the results are reliable.Do you think that I should wait a while to see whether my son will benefit from the probiotics or should I do the lyme test soon?Thanks again for your kind attention. EisserFrom: fdina1977 <fdina1977yahoo (DOT) com>To: BorreliaMultipleInf ectionsAndAutism @yahoogroups. comSent: Fri, November 20, 2009 7:31:58 AMSubject: [borreliaMultipleIn fectionsAndAutis m] Re: New to the groupIs this the lab you meant, Limin? This is the only one I heard of http://www.melisa. org/borrelia- lyme-disease. phpDina.> > > Hi from Switzerland, I have a six-year-old autistic child. Recently > > I heard about the connection of Lyme-autism. I contacted some > > specialists and labs, none have heard of this connection neither of > > the provocation with Rizol oil.> > I looked up the symptoms of lyme, but I don't have any of these > > symptoms. And my son has never be biten by a tick (although I know > > that there are a lot ticks, here in Switzerland) .> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > > TEST???> > I would appreciate your sharings.> >> > Eisser> >> >> >> > ------------ --------- --------- ------> >> >

[Guest guest]

yeah I know them. I am the member of one of them. These are associations of

parents of autistic children, not Dr.s. I looked up the DAN doctors and did not

find here. I contacted the DAN doctors in London, Paris and in Germany and they

told me they don't know any in Switzerland.

> > >> 

> > >> > Hi from Switzerland, I have a six-year-old autistic child. Recently 

> > >> > I heard about the connection of Lyme-autism. I contacted some 

> > >> > specialists and labs, none have heard of this connection neither of 

> > >> > the provocation with Rizol oil.

> > >> > I looked up the symptoms of lyme, but I don't have any of these 

> > >> > symptoms. And my son has never be biten by a tick (although I know 

> > >> > that there are a lot ticks, here in Switzerland) .

> > >> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS 

> > >> > TEST???

> > >> > I would appreciate your sharings.

> > >> >

> > >> > Eisser

> > >> >

> > >> >

> > >> >

> > >> > ------------ --------- --------- ------

> > >> >

> > >> >

[Guest guest]

Hi Eisser,

I would just like to extend some encouragement to you. We live in India. We have

not had access to DAN! Dr's or the usual professionals to help us with our

daughter. She was diagnosed at 3 with autism. She is now 6 and has basically

recovered. We are still working on some health issues and little things here and

there with her behavior, speech etc, but she is a million miles away from where

she was three years ago. I encourage you to have faith in your ability to help

your child yourself. there are so many amazing and knowlegable parents on this

group who can give so much good advice. Just get started and expect progress.

All the best to you,

Maggie

> >> 

> >> > Hi from Switzerland, I have a six-year-old autistic child. Recently 

> >> > I heard about the connection of Lyme-autism. I contacted some 

> >> > specialists and labs, none have heard of this connection neither of 

> >> > the provocation with Rizol oil.

> >> > I looked up the symptoms of lyme, but I don't have any of these 

> >> > symptoms. And my son has never be biten by a tick (although I know 

> >> > that there are a lot ticks, here in Switzerland) .

> >> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS 

> >> > TEST???

> >> > I would appreciate your sharings.

> >> >

> >> > Eisser

> >> >

> >> >

> >> >

> >> > ------------ --------- --------- ------

> >> >

> >> >

[Guest guest]

, Eisser,Thank you so much for this addresses in Switzerland!!!! It shall help a good friend of mine whose child in Germany just got diagnosed..... Well at least a bit closer to home. Eisser, l was wondering, since you live in the CH, would you be willing to travel to Germany to visit an MD who is one of the top MDs in the lyme-autism world? I wish l was that close to bring my child to him..... Can someone provide Dr K's address in Germany? (We refer to the MD's by initial only, that is a procedure in this group)Hope someone can chime in w the address or write to you off-list! Viel Glueck!Blessings to all!IsaEnviado desde mi oficina móvil BlackBerry® de TelcelDate: Fri, 20 Nov 2009 18:05:39 -0000To: <BorreliaMultipleInfectionsAndAutism >Subject: Re: New to the group Hello Eisser:Welcome to the group. I just wanted to make sure you had this list of autism organizations in Switzerland. I thought I recalled there being a DAN doc in Switzerland. I was surprised to read your email indicating there was not. Hmmmm. Here is the list. I don't know anything about these organizations in terms of how progressive or biomed oriented they are and I'm sure you already know about them but I wanted to be sure. Take care Eisser. SuzanSWITZERLANDAutisme Suisse Association de ParentsRue de Lausanne 91CH-1700 FribourgSwitzerlandPhone: 41 (0)26 321 36 10Fax: 41 (0)26 321 36 15Email: infoautism (DOT) ch Website: http://www.autism.ch Autismus Deutsche SchweizFischerhöflirain 88854 SiebnenSwitzerlandPhone: 41 (0)55 440 60 25Fax: 41 (0)55 440 60 25Email: infoautismus (DOT) ch Website: http://www.autismus.ch Autisme Suisse romande2, Avenue de RumineCH - 1005 LausanneSwitzerlandPhone: 41 (0) 21 341 93 21Fax: 41 (0) 21 341 90 79Email: infoautisme-suisse (DOT) ch Website: http://www.autisme-suisse.ch Fondation Pour L'Education Des Enfants Autistes " La Taniere " CH- 1125 Monnaz-sur-MorgesSwitzerlandPhone: 41-21-801-0220Website: http://www.hapi.ch/FEDEA.htm Schweizerische Informations -und Dokumentationsstelle fur AutismusfragenPetrus Kanisius - Grasse 21CH - 1700 FreiburgSwitzerlandPhone: 41 26 300 77 48Fax: 41 26 300 97 49> >> > >> > Hi from Switzerland, I have a six-year-old autistic child. Recently > >> > I heard about the connection of Lyme-autism. I contacted some > >> > specialists and labs, none have heard of this connection neither of > >> > the provocation with Rizol oil.> >> > I looked up the symptoms of lyme, but I don't have any of these > >> > symptoms. And my son has never be biten by a tick (although I know > >> > that there are a lot ticks, here in Switzerland) .> >> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > >> > TEST???> >> > I would appreciate your sharings.> >> >> >> > Eisser> >> >> >> >> >> >> >> > ------------ --------- --------- ------> >> >> >> >

[Guest guest]

Isa

Here is an address in Germany for DK. I dont know if its up to date etc, u might need to check that...

Shanthi

INK-Institut für Neurobiologie nach Dr. Klinghardt GmbHPlanckstraße 5670184 Stuttgart, Germany

HRB 18988, StuttgartUst.-IdNr.: DE812381100

Tel.: 0711-80 60 87- 45 Fax.: 0711-80 60 87-13 E-Mail: miriamscharpf@...Homepage: www.ink.ag

To: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Sent: Fri, November 20, 2009 9:34:47 PMSubject: Re: Re: New to the group

, Eisser,Thank you so much for this addresses in Switzerland! !!! It shall help a good friend of mine whose child in Germany just got diagnosed... .. Well at least a bit closer to home. Eisser, l was wondering, since you live in the CH, would you be willing to travel to Germany to visit an MD who is one of the top MDs in the lyme-autism world? I wish l was that close to bring my child to him..... Can someone provide Dr K's address in Germany? (We refer to the MD's by initial only, that is a procedure in this group)Hope someone can chime in w the address or write to you off-list! Viel Glueck!Blessings to all!Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

Date: Fri, 20 Nov 2009 18:05:39 -0000

To: <BorreliaMultipleInf ectionsAndAutism @yahoogroups. com>

Subject: [borreliaMultipleIn fectionsAndAutis m] Re: New to the group

Hello Eisser:Welcome to the group. I just wanted to make sure you had this list of autism organizations in Switzerland. I thought I recalled there being a DAN doc in Switzerland. I was surprised to read your email indicating there was not. Hmmmm. Here is the list. I don't know anything about these organizations in terms of how progressive or biomed oriented they are and I'm sure you already know about them but I wanted to be sure. Take care Eisser. SuzanSWITZERLANDAutisme Suisse Association de ParentsRue de Lausanne 91CH-1700 FribourgSwitzerlandPhone: 41 (0)26 321 36 10Fax: 41 (0)26 321 36 15Email: infoautism (DOT) ch Website: http://www.autism. ch Autismus Deutsche SchweizFischerhöflirain 88854

SiebnenSwitzerlandPhone: 41 (0)55 440 60 25Fax: 41 (0)55 440 60 25Email: infoautismus (DOT) ch Website: http://www.autismus.ch Autisme Suisse romande2, Avenue de RumineCH - 1005 LausanneSwitzerlandPhone: 41 (0) 21 341 93 21Fax: 41 (0) 21 341 90 79Email: info@autisme- suisse.ch Website: http://www.autisme-suisse.ch Fondation Pour L'Education Des Enfants Autistes"La Taniere"CH- 1125 Monnaz-sur-MorgesSwitzerlandPhone: 41-21-801-0220Website: http://www.hapi. ch/FEDEA. htm Schweizerische Informations -und Dokumentationsstell e fur AutismusfragenPetrus Kanisius - Grasse 21CH - 1700

FreiburgSwitzerlandPhone: 41 26 300 77 48Fax: 41 26 300 97 49> >> > >> > Hi from Switzerland, I have a six-year-old autistic child. Recently > >> > I heard about the connection of Lyme-autism. I contacted some > >> > specialists and labs, none have heard of this connection neither of > >> > the provocation with Rizol oil.> >> > I looked up the symptoms of lyme, but I don't have any of these > >> > symptoms. And my son has never be biten by a tick (although I know > >> > that there are a lot ticks, here in Switzerland) .> >> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > >> > TEST???> >> > I would appreciate your sharings.> >> >> >> >

Eisser> >> >> >> >> >> >> >> > ------------ --------- --------- ------> >> >> >> >

[Guest guest]

THanks Isa

To: BorreliaMultipleInfectionsAndAutism Sent: Sat, November 21, 2009 7:34:43 AMSubject: Re: Re: New to the group

Isa

Here is an address in Germany for DK. I dont know if its up to date etc, u might need to check that...

Shanthi

INK-Institut für Neurobiologie nach Dr. Klinghardt GmbHPlanckstraße 5670184 Stuttgart, Germany

HRB 18988, StuttgartUst.-IdNr.: DE812381100

Tel.: 0711-80 60 87- 45 Fax.: 0711-80 60 87-13 E-Mail: miriamscharpf@ ink.agHomepage: www.ink.ag

From: "isaguzmandiaz2@ yahoo.com. mx" <isaguzmandiaz2@ yahoo.com. mx>To: "BorreliaMultipleIn fectionsAndAutis myahoogroups (DOT) com" <BorreliaMultipleInf ectionsAndAutism @yahoogroups. com>Sent: Fri, November 20, 2009 9:34:47 PMSubject: Re: [borreliaMultipleIn fectionsAndAutis m] Re: New to the group

, Eisser,Thank you so much for this addresses in Switzerland! !!! It shall help a good friend of mine whose child in Germany just got diagnosed... .. Well at least a bit closer to home. Eisser, l was wondering, since you live in the CH, would you be willing to travel to Germany to visit an MD who is one of the top MDs in the lyme-autism world? I wish l was that close to bring my child to him..... Can someone provide Dr K's address in Germany? (We refer to the MD's by initial only, that is a procedure in this group)Hope someone can chime in w the address or write to you off-list! Viel Glueck!Blessings to all!Isa Enviado desde mi oficina móvil BlackBerry® de Telcel

Date: Fri, 20 Nov 2009 18:05:39 -0000

To: <BorreliaMultipleInf ectionsAndAutism @yahoogroups. com>

Subject: [borreliaMultipleIn fectionsAndAutis m] Re: New to the group

Hello Eisser:Welcome to the group. I just wanted to make sure you had this list of autism organizations in Switzerland. I thought I recalled there being a DAN doc in Switzerland. I was surprised to read your email indicating there was not. Hmmmm. Here is the list. I don't know anything about these organizations in terms of how progressive or biomed oriented they are and I'm sure you already know about them but I wanted to be sure. Take care Eisser. SuzanSWITZERLANDAutisme Suisse Association de ParentsRue de Lausanne 91CH-1700 FribourgSwitzerlandPhone: 41 (0)26 321 36 10Fax: 41 (0)26 321 36 15Email: infoautism (DOT) ch Website: http://www.autism. ch Autismus Deutsche SchweizFischerhöflirain 88854

SiebnenSwitzerlandPhone: 41 (0)55 440 60 25Fax: 41 (0)55 440 60 25Email: infoautismus (DOT) ch Website: http://www.autismus .ch Autisme Suisse romande2, Avenue de RumineCH - 1005 LausanneSwitzerlandPhone: 41 (0) 21 341 93 21Fax: 41 (0) 21 341 90 79Email: info@autisme- suisse.ch Website: http://www.autisme- suisse.ch Fondation Pour L'Education Des Enfants Autistes"La Taniere"CH- 1125 Monnaz-sur-MorgesSwitzerlandPhone: 41-21-801-0220Website: http://www.hapi. ch/FEDEA. htm Schweizerische Informations -und Dokumentationsstell e fur

AutismusfragenPetrus Kanisius - Grasse 21CH - 1700 FreiburgSwitzerlandPhone: 41 26 300 77 48Fax: 41 26 300 97 49> >> > >> > Hi from Switzerland, I have a six-year-old autistic child. Recently > >> > I heard about the connection of Lyme-autism. I contacted some > >> > specialists and labs, none have heard of this connection neither of > >> > the provocation with Rizol oil.> >> > I looked up the symptoms of lyme, but I don't have any of these > >> > symptoms. And my son has never be biten by a tick (although I know > >> > that there are a lot ticks, here in Switzerland) .> >> > DO YOU THINK THAT I SHOULD MAKE THE LYME AND OTHER CO-INFECTIONS > >> > TEST???> >> > I would

appreciate your sharings.> >> >> >> > Eisser> >> >> >> >> >> >> >> > ------------ --------- --------- ------> >> >> >> >